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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Raising Awareness of......

51 replies

LittleRedSparke · 26/10/2015 13:28

How many times do we need to be 'made aware of ' so many different things?

Is there a single person in the UK who does not know about breast cancer, or autism, or disabilities or mh issues, or etc etc etc

Even at work there's someone posting about doing xxxx pink to raise awareness of breast cancer... (its a work thing so dont want to 'out' myself)

what does it help, you wearing pink doesnt raise any funds to research it, doesnt make me have a cure..... argh

(i'm very grumpy today, so ready to be told aibu - i still wont like it though)

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ShamelessBreadAddict · 26/10/2015 13:55

I know someone with breast cancer who says the same about some of these awareness campaigns.

I think a lot of it's about fundraising but is called awareness. When we had dress pink for work days for breast cancer "awareness" for example, all participants had to donate to a cancer charity (we sent round a bucket and everyone had to donate £1 or more), or else they couldn't participate. Is this not what's happening at your work?

The "awareness campaigns" where people get their boobs out on fb (haven't seen this but apparently it was a thing), where no money is raised (I think) are a bit silly to me. Though I guess it serves as a reminder so people might think "oh breast cancer awareness, I'll check my breasts" or "oh I want to donate to that cause".

AliceInUnderpants · 26/10/2015 13:58

WRT autism... it is helpful to continue to raise awareness of the differences of autism. People still stereotype and judge, and think all autistic people are the same, when they very much are not.

I agree with the fundraising ones, if it's not making money - what's the point?

LittleRedSparke · 26/10/2015 13:58

Never once after seeing the 'i like it on the stairs' or that other crap have i EVER checked the girls out!

I do my checking in the shower, where its easier (for me) to do

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LittleRedSparke · 26/10/2015 13:59

no, i dont think this is, they want to add something to the uniform... these are people that are not seen a lot, only on the way to and from their offices

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KurriKurri · 26/10/2015 14:02

I've had breast cancer, and belong to a BC group on FB - October is a bit of a nightmare month for people with bC - what with all the pink shit and love your tatas etc going on !
We've enjoyed this though

news.bfnn.co.uk/last-person-finally-made-aware-of-breast-cancer/

TaliZorah · 26/10/2015 14:06

YABU - it's not to raise awareness these things exist. It's to raise awareness of the symptoms, of how it impacts people, of the lack of services available for those who need it

Birdsgottafly · 26/10/2015 14:07

Not in relation to Breast Cancer, but people's awareness of things to drop off.

I worked as support for people with HIV, around 2008 and for a few years they highest number of people diagnosed were 40+, they'd all lived through the 80's, but for some reason at a time when they were newly single after long marriages etc, they'd forgotten about safe sex.

This isn't popular but for a lot of Cancers, we know what causes them, but people want to lead crappy lifestyles, so I don't want to waste money on giving to researching those. I am aware of how research links into other conditions, so I'm not saying it's a waste of resources.

Early detection does make a difference between survival and death, with some Cancers.

At least these things get people talking.

LittleRedSparke · 26/10/2015 14:09

but what help is it to raise 'awareness' of it - it doesnt raise awareness of the problems faced its simply to raise awareness of it

no one wears a pink ribbon to tell the world that there is a shortage of drugs in the NHS or about the difficulties you face when you have bc, (i dont know what the difficulties are actually - i only know that bc exists.... despite all the pink stuff around )

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TaliZorah · 26/10/2015 14:09

This isn't popular but for a lot of Cancers, we know what causes them, but people want to lead crappy lifestyles, so I don't want to waste money on giving to researching those.

Bit dickish. My auntie died of lung cancer having never smoked. She used to seethe at people who asked her that question and at the fact lung cancer funding is so awful compared to other cancers

Sirzy · 26/10/2015 14:10

A lot of conditions do need awareness raising - autism, mental health and disabilities are 3 which certainly do.

Even with something as widely known about as breast cancer awareness is still needed of how to check/when to check/what to check for etc.

Now I would agree that posting a heart or the colour knickers you are wearing on your timeline on Facebook isn't going to do anything to raise awareness really - although it may get some people talking - but that doesn't mean awareness doesn't need raising.

thelittleredhen · 26/10/2015 14:11

I have a friend with an ASD DS who says "it's autism awareness week every day in our house".

My reply to your question How many times do we need to be 'made aware of' so many different things? - my answer is, until there is a cure for breast cancer, until there is acceptance and understanding of ASD, until domestic violence and mental health stop being tabboo subjects etc etc

TaliZorah · 26/10/2015 14:11

littleRef

The idea is "oh a ribbon? What's that for? Breast cancer?" And then people will go away and research it/look on the charity page. Or have a chat about it

Of course some people join in without really knowing what it's about.

IndomitabIe · 26/10/2015 14:14

YANBU OP. Sharing a picture of a teddy with words to the effect of "share this to raise awareness of xxx" doesn't make anyone more aware of anything, doesn't raise money for anything and generally makes the sharer look like an idiot.

I usually respond to the BC ones with an infographic of types of lumps, etc. and a link to a Just Giving page. I'll donate to & share people's JG pages if they're doing something to raise money (something a little more inconveniencing than giving up alcohol for a fortnight Hmm).

I've rarely seen one that's taught me anything new.

Ironically, I run a support group for people with a rare condition that is almost unheard of, and as such is chronically underfunded. We've had infographics made and tried to share them, but it doesn't cause death (immediately) or obvious physical disability (only brain damage over several years if treatment is inadequate). So no one gives a shit. People don't care about something genetic that they know they won't get.

Birdsgottafly · 26/10/2015 14:14

""October is a bit of a nightmare month for people with bC""

But less so if your the one Woman who desides to check her Breasts/Symptoms and that improves your health/saves your life.

How many people die because they neglected their health, ignored the symptoms because they're busy and conditions are something that happens to other people.

ShamelessBreadAddict · 26/10/2015 14:25

This isn't popular but for a lot of Cancers, we know what causes them, but people want to lead crappy lifestyles, so I don't want to waste money on giving to researching those.

Bit dickish...

Not just dickish also inaccurate. Would love to know how you are qualified to make a sweeping statement like that Birdsgottafly when experts still don't know "what causes cancer" in many cases.

TestingTestingWonTooFree · 26/10/2015 14:34

I find Facebook slactivism annoying. There are hidden/unusual/misunderstood conditions that do need awareness raised but I don't think you often see them.

KurriKurri · 26/10/2015 14:41

That wasn't quite the point I was making Birds.

It is a nightmare month because it is upsetting to see the way people trivialise a life threatening disease with all the pink crap and fluffiness that we are bombarded with. All the stuff that suggests that BC is a rather fun soft girly kind of cancer to have, that suggests it is a woman's cancer (lots of men die from it too - and the pink stuff is very alienating for them)

People need to be encouraged to be health aware at all times of the year not just when they have a bit of a reminder because it's BC month. And rather than models with pink glitter on their boobs prancing around in their underwear, women should constantly be aware of the signs and symptoms of BC and how to check and when to go to the doctor and how to really know what their bodies look like so they can detect changes early.

Instead of lets all buy a pink ribbon, lets have a look at the reality of this illness - have scars from my shoulders to my pubic bone from my surgery - some over a foot long. I have lain in a hospital bed on every kind of drip and transfusion, bedsores on both my elbows from having to keep my arms rigidly in place because of all the stuff being put into me, antibiotics to try to contain the massive kidney infection and septicaemia from the neutropenia, liquid diarrhoea dripping out of me continuously. I could go on about the two years of active treatment and the major residual health problems from continuing treatment.

But I was lucky, I am still alive. Breast cancer doesn't kill people, secondary metastatic breast cancer kills people - the funding for people with secondary BC is appalling, the govt, have stopped funding for some of the life extending drugs available.

This is awareness, this is the reality of cancer - it isn't pretty so lets stop pretending it is. Lets drop the stupid awareness once a year stuff and get some real education going and some means of addressing inadequate funds. TV infomercials about checking all year round, information in schools about checking (very young women can get BC too). And lets talk about other cancers that get far less publicity than BC - but are not 'glamorous' enough for models to endorse the campaigns.

Awareness is fine if it really is awareness, not a once a year marketing - no one thinks cancer will happen to them, most people don;t want to talk about it, we need to talk about cancer as a real thing that happens to lots of people all year round, not put a burst of energy into putting your bra colour on FB then forgetting about it. These things make people dealing with illness and conditions angry - as someone said up thread if you are living with something, every month is awareness month.

Toooldtobearsed · 26/10/2015 14:52

Kurri - applause!

I completely agree with you. I had breast cancer and secondaries. I HATE all the pink shit, it is so girly and fluffy and totally alien to the reality of any cancer.
I also feel almost embarrassed by the huge publicity it generates when there are a multitude of other health conditions that are given very little focus.

By all means have an awareness campaign. By all means have a fundraising campaign. But please don't make it into a pink froth of sooper dooperness.

I attended a race for life when I was bald and frankly, too ill to be there, to support friends who were doing it on my behalf. I appreciated the hard work they put in, but stood. looking around at all the women in pink tutus and silly wigs, and wondered just why they were doing it.

No doubt I am in for a slating with these sentiments, but we are not school children, allowed to wear fancy dress for a £1 donation, we are adults.

Fund raise all you want, I will chip in. Campaign - I will join you. Raise awareness, I will add my voice. But please stop with the pink fluff.

IndomitabIe · 26/10/2015 14:52

Now THAT has raised my awareness, Kurri.

Fuck "save the Ta-Ta's" (I will unfriend the next person that shares that misogynistic minimising bollocks).

It's stories like yours that should be shared. But they won't be, because as you say reality isn't fluffy or sparkly or cutesy. People don't want to think about reality.

One of the other things that 'raised my awareness' profoundly was meeting a man (in his 60s/70s) who was on holiday recovering from breast cancer when I was 14. That would make an awareness-raising meme.

x2boys · 26/10/2015 15:02

My friend on facebook does this but she had breast cancer at 34 very young i think she wants to point out that younger women can get it too. I post stuff all the time my son has a rare chromosome disorder causing his disabillities untill 18 months ago i had never heard of them i like to raise awareness that it can happen to any family.

LittleRedSparke · 26/10/2015 15:03

Thanks Kurri! That! is what I am talking about x

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x2boys · 26/10/2015 15:07

and the stuff i post is informative not cuddly, glittery crap.

balletgirlmum · 26/10/2015 15:07

I've got a friend who is heavily involved in raising awareness of pancreatic cancer. She lost someone close to get who in turn when they were alive took part in a controversial campaign.

It is a cancer that does need awareness raising as its so overlooked (would you know the symptoms?) and the survival rate is very poor.

Another friend is organising a dance flash mob to raise awareness of pancreatic cancer. I don't know how or why she is involved in this (she's an ex professional ballet dancer) but I would support it if I was able to.

overthemill · 26/10/2015 15:29

It's important to raise awareness that, say, men get breast cancer too but most people know that cancer is a possibility. I would never in a million years have thought that my insignificant symptoms were symptoms of a pretty major though not very common cancer ( less than 1500 people a year) so raising awareness of it would probably have passed me by. I loathe fuzzy cuddly breast cancer month and all the other ones too - cancer gets oodles of money spent on research overall - some smaller types maybe not so much- but other illnesses get peanuts ( on high horse as dd incredibly sick and totally unable to treat her illness which gets £60,000 a year from government for research).

I guess that these awareness campaigns have run their course and we should think of other ways. Pouring buckets of ice over myself won't do it for me nor climbing a mountain or skydiving

amberlight · 26/10/2015 15:43

KK, fab post. Hear hear.