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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think mumsnet much better and realistic on asd than rl?

5 replies

Londonteacher · 17/09/2015 17:39

Posting here for traffic really and have name changed as not my place to discuss family wo their permission and could be identified... Am teacher in mainstream secondary with handful asd students each year and auntie to gorgeous asd boy. Scrolling over active threads quite often struck by number of asd stories and (generally if not always!!!) warm support from
Mn and yet at this time of year when meeting new parents and students with statements always struck by how isolated they feel and even sometimes unaware of local support or nas etc. know from family support far from perfect but def more out there than some students' families seem to know of and also get impression they often consider selves only ones in their community in their situation and v v isolated as if v v rare but overview as teacher and from here is that to varying degrees fairly common. Does mumsnet paint a disproportionate picture as many asd families use it as a resource? Is my school unrepresentative? Seems like families started working with should have been linked with support way before secondary and not feel so isolated, surprised at how relieved they are to hear the limited info I have from experience with other kids and family about what's available in and outside school.

OP posts:
Londonteacher · 17/09/2015 17:46

Sorry, realistic wrong word - meant informed and aware really

OP posts:
LonnyVonnyWilsonFrickett · 17/09/2015 17:46

YANBU. MN is fantastic on ASD knowledge (well, the SN boards are and most MNers, I should say). It was a lifeline for me when DS was first going through investigation and onwards.

The issue is (and I'm interested to hear your take on it as a teacher), when you have a child who is newly dx'd, you don't know what you don't know. You are relying on HCPs and school to tell you what's available. Most don't. MN gave me the knowledge to know what was available for us as a family.

I do think it does 'weight' the SN boards very heavily towards ASD issues though. Because the knowledge is so good, it draws more and more ASD families in, so the board is quite ASD heavy. But I don't know how you'd change that.

Londonteacher · 17/09/2015 17:48

And realistic about numbers - ie aware not most unusual thing in the world

OP posts:
isDSonthespectrum · 17/09/2015 18:32

Of course each school is going to have a smaller "community". MN is where people have gathered together, from across the UK and the world!

summerainbow · 17/09/2015 19:49

I think at primary school, they are thought are rare. And there behaviour is known by everyone. So they stand out from the crowd.
Senior school was were a change for both my boys as they met other ASD kids and made real freinds.

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