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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to reach out to folk with children who suffer chronic constipation?

78 replies

Totality22 · 27/02/2015 21:29

Sorry I know it's technically not an "AIBU" but on the squash thread I noticed a lot of parents who mentioned their child has / had chronic constipation and I need to some help and support.

DS is 27 months and has had chronic constipation on and off since weaning.

At the moment he is going through a really tough phase - poo'ing maybe twice a week and finding it incredibly painful to go [took him 3 hours to pass his last poo and lots of tears / upset]

We're nearing potty training age and I am scared this is going to hold him back.

Please can any parents of constipation sufferers share your experiences - how you cope / how you managed to potty training etc.

For information DS isn't on medication but was given a course of Movicol at 13 months, when it finished the GP wanted him to go it alone. We had a period of relative "ease" for a good while but now we're back to full on, horrific constipation. DS is incredibly fussy with food at the moment and I know that is the direct cause but nothing can persuade him to vary his diet? I beg, plead, force, reason, bribe to no avail.

Seeing GP on Monday (just moved house and had to sign up to new GP.. I also have a 5 week old baby so have been a lot more lax in the "healthy" dept and we've all been eating a bit more crap than usual)

OP posts:
Flomple · 27/02/2015 21:49

Poor love. All I can advise is stuff you probably already know. You're doing the right thing to go back to GP. Drinking loads of liquids is key so lots of juice etc, whatever will encourage him to drink. Make sure cups are ones he can get plenty out of without having to work too hard - straw cups are good, valved cups bad.

I find breakfast makes a big difference to DD, we tend to avoid cornflakes, rice krispies and cheerios. Fruit filled mini shredded wheat or porridge are better.

For potty training be aware of the link between the bladder and bowel. I would delay completely until his constipation is in a better state. The last thing he needs is hard poo irritating his bladder when he is learning how to control it. He is still on the young side for potty training, it's normal to see 3 year olds in nappies now.

TinyTearsFirstLove · 27/02/2015 21:54

Dd has chronic constipation. I now realise (having seen a specialist) that this was the cause of me struggling to toilet train at 3y6m. It took three months of accidents (wee) before she was daytime dry as she was holding poo.
When we finally sorted the constipation, she was dry at night within a week. Sodium Picosulphate is our friend. Found Movicol to be useless for dd.

howtodrainyourflagon · 27/02/2015 21:57

there is an end to this. With movicol, great patience and just a bit of growing up, ds has moved on from this. It's horrid, and a real nightmare when it's not under control. DS had this from early toddlerhood through reception and into y1. In y2 he came off the movicol and it's been under control since.

do a mn search on this you'll find lots of similarly affected parents and children,

seaoflove · 27/02/2015 21:58

Hey. I'm an expert here. DD has been chronically constipated virtually since birth (Hirschprungs disease has been ruled out) and has been on Movicol since seven months (she's now 3.5).

Firstly, your GP is an idiot.

It is WRONG not to treat constipation in young children. Not treating it can cause so much harm and can take months to reverse. DD sees a gastro consultant a few times a year, just to review progress and dosage, etc. He said at our last appointment that it's essential you treat this aggressively at a young age, with Movicol and/or other appropriate meds, because if you don't you can find yourself at square one with a seven year old.

I can link to the NICE guidelines if you like, so you can show your GP that they need to start following them. I'd also ask for a referral to a gastroenterologist, so that your DS can be properly examined because no doubt he is quite impacted and that will need aggressive treatment.

As for potty training, well you can't even contemplate it until you get his bowels in something resembling a regular pattern. My DD is a total potty refuser, and I'm not sure it has much to do with the Movicol (although her bowel movements are quite explosive and liquid a lot of the time); she's just very very stubborn and wilful.

seaoflove · 27/02/2015 22:00

NICE guidelines:
www.nice.org.uk/guidance/cg99/chapter/1-recommendations

BerniceBroadside · 27/02/2015 22:01

Have a look at the ERIC website. www.eric.org.uk/

And do not accept a wait and see approach from your GP. Chronic constipation needs treating, and not just with dietary adjustments at this point, although obviously long term they help, or it can can cause ongoing bowel issues.

Stripyhoglets · 27/02/2015 22:05

Movicol. Or you could end up with a 7 year old with overflow incontinence. Get on the movicol before potty training. My child will be on it for as many years as she needs to recover from the years where she wasn't on a high enough dose.

Stripyhoglets · 27/02/2015 22:06

And it was my child with the best diet who suffered.

Stripyhoglets · 27/02/2015 22:08

And we had to do the big clear out before going down to a maintenance dose - but life is so much easier now.

attheendoftheday · 27/02/2015 22:09

Me, me! I never knew so much of my parenthood would involve obsessing about my children's bowels.

Movicol is the only thing that really works for us, dd1 has been on it on and off since she was 10 months (now 3.9), dd2 has been on it since 14 months, (now just 2). The other thing that has a big effect is monitoring and encouraging their fluid intake.

I'm pretty sure our problem is that dd1 was so constipated she got an anal fissure and it was very painful, she associated poking with pain so held her poos in, so would get constipated again. It's taken literally years to get her to change her association, but things are getting better now. Things were always better with dd2, I think because I got the right treatment more quickly and kept her on it.

I'd expected the constipation to make it harder to potty train, but it didn't at all. At 2.3 dd1 announced she didn't want to wear a nappy and never put one on again.

Mintyy · 27/02/2015 22:09

Totality - why don't you search for and explore older threads on this subject in children's health? There is a huge amount of excellent advice and information on there.

iwouldgoouttonight · 27/02/2015 22:19

Stripyhoglets we also have an 8year old with overflow incontinence. OP definitely don't let your gp fob you off, really try to get the help you need to get it sorted while your DS is little. Our gp kept saying DS would grow out of it and now he has to deal with wetting and soiling himself regularly at Junior school.

howtodrainyourflagon · 27/02/2015 22:23

Ask the new GP for movicol. Our GP was excellent. DS was on movicol for four and a half years in the end - with the dose very very gradually lowered over the last six months. This needs to be nipped in the bud while your dc is still young otherwise he will grow up associating bowel movements with pain and distress, which perpetuates the problem. By the time DS was treated, he'd spent most of his life with it, and it took a lot of time to really get it under control.

quirkychick · 27/02/2015 22:32

Hi, I was on the squash thread. My dd2 5 has chronic constipation. She has ds and hypotonia (low muscle tone) which causes the constipation as she doesn't eliminate efficiency.

Things that have helped us are movicol. Drinking lots. Dd2 is much better now she is more mobile (we have mobility issues). Also, she won't eat fruit that is "crunchy" so we use a nutribullet to make smoothies for her each day. She likes fig rolls and we buy loads from aldi. Adding milled flaxseed, also cheap from aldi, into foods she likes e.g. pancakes, crumble etc. Vogel bread with linseeds helps too.

Definitely get seen and get it treated. You can always gradually reduce the movicol. Hth

3littlefrogs · 27/02/2015 22:32

I always post on these threads because I feel so strongly about this.
The ERIC website is excellent.
I am shocked at how many GPs seem to know so little about this problem, refuse to investigate or treat properly.
I was lucky that my GP was very good.
Definitely search and read the other threads OP - there is a huge amount of information on here.

quirkychick · 27/02/2015 22:33

*efficiently

debbriana · 27/02/2015 23:39

Am going through this now with my 15month old. I want yo cry when she crosses her legs or hold on to things refusing to poo. I have medicine from the gp. We are on the fourth day. It's getting better.

CallMeExhausted · 28/02/2015 02:15

DD loves dried fruit. Any kind, prunes, sultanas, apricots, apples... they are all fantastic when "nature needs a nudge".

She has congenital structural GI abnormalities, and regular "treats" of dried fruit has allowed us to stop laxative and stool softener therapy altogether.

LarrytheCucumber · 28/02/2015 07:22

I was that child.
The GP told my mother I just made good use of my food Confused
Please get it sorted out. I had a lifetime of pain, embarrassment and fear until I was diagnosed with IBS in my fifties, and given medication.
I also learnt that a lot of food that helped other people has the opposite effect on me, so that side of things can be trial and error.

pudseypie · 28/02/2015 07:33

My ds has hirschsprungs disease only diagnosed aged 2. Been through all the constipation issues and still are, will do for life. Definitely agree with getting on movicol and maybe sodium picosulphate as that stimulates the bowel whereas movicol draws liquid from the gut to soften the poo to make it easier to pass. Lots of fluid and fruit / veg in diet. Exercise good for getting the bowels moving too.

DustBunnyFarmer · 28/02/2015 07:39

We have been seeing a specialist gastro paediatrician with DS since he was 3. All I can say is that it took the best part of 4 years' trial and error to find a truly effective regimen. He is currently on a high dose of sodium picosulphate - so high, the paediatrician said it would render most adults housebound (toilet access) and he still doesn't go daily. He had awful overflow soiling & it was that (unable to toilet train) that tipped us into insisting on a referral. He has been very resistant to most meds (movicol does not work for everyone). Paed said one of the key risks with not treating chronic constipation effectively is that the bowel becomes so distended and loses tone, that faecal incontinence can carry on into the teens and adulthood (and is very difficult to remedy if its gone that far). When children are growing rapidly, and if you can shrink the bowel through regular emptying (with meds), it will right itself. Don't dawdle and if you're not getting results (regular emptying) on one drug, press to try a new one or combination until you hit on the regimen that works for YOUR child.

x2boys · 28/02/2015 07:48

My four year old has constipation he has movicol he also has autism and learning difficulties so he isn't toilet trained yet I have difficulty getting him to drink it as even though it supposed to be tasteless he always seems to know he has a rare chromosome disorder and constipation is apparently common with his disorder.

OinkBalloon · 28/02/2015 08:08

I, too, have an 8yo with overflow soiling. He has been soiling on and off since toilet-training. He complains of nausea and stomach cramps, but only ever at bed-time. He was dairy intolerant, but may have grown out of that by now. He tested negative for coeliac (a family member has it). Eventually a different GP diagnosed constipation. I was gobsmacked. Ds has an excellent diet, a fabulous appetite, and is active and healthy. We had no idea that he was constipated! We even thought it might be attention-seeking behaviour.

Ds has been on Movicol on-and-off for a year so far. At first it made no real difference. But a few weeks ago we finally saw a specialist constipation nurse and she explained the whys, hows and whats of the whole process. Apparently I had been dosing ds incorrectly and managing his toilet trips incorrectly. I changed what we were doing and within a week ds had far less tummy trouble and the soiling had reduced from 0-3 times a day to 0-3 times a week.

Apparently the nurse had always been available, but because I appeared to be coping, we had not been offered an appointment!

Ds will need to be on Movicol for at least as long as he has been constipated. In his case this could mean 4y or more. He needs to have regular disimpaction when the Movicol dosage is greatly increased for a week. Holiday homework!

I also had a constipated toddler (different ds) whom we managed with diet. Increasing wheat fibre was an utter disaster: caused more pain and more tummy discomfort. Increasing oat fibre OTOH was very helpful. So we switched from whole meal bread to white (naice white!Wink) plus oatcakes and porridge. Dried fruit of any sort was also very helpful. Fortunately ds1 loved it. I also cooked with dried fruit; not just in sweet dishes, but in meat stews as well. Meat was actually a surprise: reducing the amount of red meat in his diet also helped. It wasn't just that he had more veg to compensate. There was a distinct difference in his bowel movements if he had, say, fish stew rather than lamb stew.

Increasing fluids was tricky, and probably also the source of his problem. Homemade juice ice-lollies were a hit, as was jelly. I even learned how to make jelly from scratch, so that he could have pure juice jelly with no added rubbish. Yeah, I know, PFB.

The constipation resolved at about 2 1/4, and he toilet-trained very easily a few months later. He is a log-laying, loo-blocking, healthy teenager now.

Sorry for long screed. Hopefully something in my boys' experiences will help you. Please get a referral to the Cobstipation Clinic, and see them in person. They were vastly more helpful and informative than any of the GPs or paediatricians we saw. A matter of expertise, I expect.

OinkBalloon · 28/02/2015 08:21

X2boys: mine will drink it in juice, squash or non-dairy chocolate milk. We have also found that if you mix it up in advance and let it rest, the drink becomes clear again and the stuff is less obvious. Does your ds see you mixing it up? Could it help if you had a bottle in the fridge and just poured it straight into a glass for him with no apparent preparation?

Is there something that he will happily drink, that he can only have at home? You could backtrack on the treatment for a while. Start by making the drink very dilute - maybe even only a teaspoonful of Movicol per cup - and very gradually, over a period of weeks, increase the amount of Movicol so that he never notices a change in the flavour. That's how I get my Aspie boy to eat new things, using soup. Takes months, and admittedly is not always successful, but I have widened the range of foods he will eat this way (even if he still does not know he is eating them).

seaoflove · 28/02/2015 09:26

I was that child too, Larry. I hate the fact my DD has inherited my sluggish bowels, but at least I have the benefit of really understanding what it's like for her.

I also learnt that a lot of food that helped other people has the opposite effect on me, so that side of things can be trial and error.

Absolutely yes! Honestly, after more than 30 years of badly controlled constipation that really blighted my childhood, teens and adulthood, I've finally discovered that most natural or diet-based remedies have little effect on me (apricots in particular give me intense stomach cramps and wind but no bowel movement). Starting Movicol changed my life. I don't take it daily, just as and when I need to, usually a few sachets a week. I'll happily take it for life.