Ok this is a long one! At 5 days old at a routine midwife check in our local hospital my baby started to have what looked like a seizure. Thank god we were on site and went straight to A&E, once there a triage nurse hooked him up to monitor his oxygen levels, said they weren't dropping but that we would need to stay in, and wondered off. The fitting lasted 15 minutes, the oxygen monitor fell off and I was in the hallway asking her for a doctor. Heard her on the phone sometime later saying I was a very worried mum. He stopped fitting, consultant eventually came who was very good, told us to come get her if he started again, he did minutes later, I found her in the hallway, she pages her boss, the next thing he is covered in wires, a Cannula is inserted into his tiny veins and shell shocked we are moved upstairs to a paediatric ward. A series of what looks like fits continues, we are told very bluntly and very early on that there is no good outcome for a baby who has long and sustained seizures, and that he is definitely seizing. An emergency CT scan is organised for midnight, when we get into the room there is an argument between the nurse and the radiologists, our baby was supposed to be asleep but the nurses hadn't been told, they asked me to get him to sleep, so we decided to change his nappy they breastfeed him to sleep, when changing his nappy he weed on the blanket and my dh asked if there were anymore, the nurse literally snarled at us 'we're miles away from the paediatric ward, don't you think it would be a bit dangerous if I left you to get a BLANKET?'. The porter who was wheeling my baby's trolley then had an argument with the nurse about how long it was taking and walked off and left us stranded to take another call. When we got back to his room to wait for results I could hear them discussing him loudly outside our room, saying results didn't look right etc Etc. A registrar came in and started to introduce herself, I interrupted her and just said 'is it bad news?' to which she replied 'yes' she then told us he'd had a brain bleed and she couldn't say if he was or wasn't brain damaged yet. They were sending the results to GOSH for review. Two hours later another registrar appeared and said the scan had been viewed again by GOSH who said they were normal. Videos were also sent to GOSH of the seizures and we were they thought it might be a harmless condition called benign neonatal sleep myoclonus, basically an immature nervous system. The next day we were told they thought he might have a syndrome by a different consultant, that his movements were rhythmic and he was definitely seizing. They performed two failed lumber puncture on him and wouldn't let us be with him for the procedure. They also treated him by drip for meningitis and encephalitis as a precaution. He was so knocked out he wouldn't breastfeed, I was expressing watery blood, so I started bottle feeding him. He was then, thank god and the universe, transferred to GOSH where they performed a million tests, we're amazing, gave him a EEG while he was twitching and confirmed the diagnosis of Benign sleep myoclonus. We were seen by three top neurologist and neuro radiologist, they told us we had a perfectly healthy baby. We had to return to our local hospital for another day as they had also diagnosed him with a blood infection (GOSH told us he couldn't have one) and it turned out they had contaminated his blood sample. We were then ignored for a day, fighting for formula milk and eventually released with no explanation. I'm forever indepted to both hospitals because I believe they both used huge amounts of resources and things like ct scans and results happened incredibly fast. But there were so many errors and I sensitivities at our local hospital (moments after bring told out baby had a brain bleed the consultant asked where we lived and if we knew of any good nannies) while another consultant I felt treated us with a lot of suspicion and was blunt to the point of being aggressive. I'm so hugely thankful he is ok, now a healthy 6 months I feel I should just leave it be, but would also like to feel parents going forward in a similar situation would have kinder treatment and more consistency. I don't think I explained properly but we went from it being ok to bring catastrophic again for a period of four days. Should I write to them and highlight our experience? I've since had quite bad post natal anxiety.