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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wonder if a diagnostic label is a good thing.

36 replies

raltheraffe · 22/12/2014 10:57

Big day for me today. Last week I gave up trying to get help on the NHS for my bipolar and so decided to pay private for a psychologist.
Met the psychologist on Monday, she seemed very professional, but half way through our first session that she was an expert on ASD and she thinks I may have ASD and would I want a formal assessment.
So today is the day of the big formal assessment. I am curious to know if I have it but also scared that a label might be a bad thing. Being labelled with bipolar was the end of my nuclear family, parents were ashamed and embarrassed of me and told me that at every opportunity. Thankfully I have DH and DH's family who would not bat an eyelid if I got Dxd but I am still very worried.

OP posts:
PausingFlatly · 22/12/2014 19:39

Gosh, so lots of changes coming up, in how you think about yourself. And maybe how you manage yourself.

A bit scary to get used to, but I hope this is the beginning of better things.

SaucyJack · 22/12/2014 20:34

Does a score above 34 always mega autism?

smokepole · 22/12/2014 21:01

Saucy. It means you are likely to have symptoms of Autism and it is advisable to have a proper test or diagnosis.

"48" Wow . I thought 42 was high, it does though depend on how you answer which could be different on another day depending who you are feeling that day.

smokepole · 22/12/2014 21:02

How you are feeling ....

greenbananas · 22/12/2014 21:07

raltheraffe, congratulations on your diagnosis Smile This can only be a positive thing.

I haven't got a 'proper' diagnosis myself, but have known a few years that I have dyspraxia and also Aspergers Syndrome. I realised about dyspraxia when a teenaged friend was diagnosed and lent me a book about it. I have worked with children who have Aspergers Syndrome, have read extensively about it, recognise the symptoms in myself, and score ridiculously highly on all internet tests.

I can't tell you how liberating this has been for me. I spent years in my twenties struggling with depression and low self-esteem, and with one of my sisters telling me I am a freak with no social skills etc. (she has a number of symptoms herself, and has now cut all contact with me - and after a lot of grieving about this I have discovered that my life is much richer without her constant criticism!)

Now I am able to forgive myself for all the mistakes I have made in the past, and appreciate that I try really hard - with some success - to cope and be ordinarily social. I can laugh at my weird coping strategies, e.g. having everything in neatly labelled boxes, eliminating clutter from my house so I don't fall over it, making systems for getting things done. Lots of my friends have copied my labelled boxes system for toys, and Ofsted love it (I am a childminder).

I have a number of close friends who know about my dyspraxia / Aspergers, and they say I am surprising normal.

A few years ago, I trained as a breastfeeding supporter, which involved learning a lot of 'active listening' skills (as well as some technical knowledge, obviously). The active listening stuff has been invaluable to me, and helped with my whole life. I volunteer at a health visitor clinic, which involves building relationships with various professional staff and helping new mums at a very vulnerable time in their lives, which is a great privilege and responsibility. The feedback from colleagues and mums in the community is that I am remarkably good at this Shock and I am amazed that I can do such a touchy-feely sort of role - and really glad that I am able to help and make a difference.

Your diagnosis doesn't mean that you are 'lacking' in some way. It simply means that your are differently wired - and of course you have strengths because of this, as well as weaknesses.

We Aspergers folk have fairly logical minds, as a rule. If you are apply logic to this situation, you will soon see that knowing exactly what you are dealing with gives you the power to use your talents in the best possible way, and deal with any issues you know you might need help with.

Good luck... and again I say congratulations. Getting this diagnosis is a life-changing event, and not in a bad way!

raltheraffe · 22/12/2014 21:22

Feeling OK just been Tesco and bought ds a Spiderman web slinger toy, so have spent last half hour having spider webs shot in my face.

OP posts:
OxonConfusedDotCom · 22/12/2014 21:22

Green- what a lovely post! You sound like you've really got a satisfying, fulfilling life sorted. Much more so than many of us achieve.

GraysAnalogy · 22/12/2014 22:08

Just realised you weren't talking about bipolar I really need to read properly Blush

You've been through the mil with these diagnosis, I remember you posting on another thread we were both discussing our diagnosis

Do they still make those toys?!! I had one of those as a kid and I loved it.

maddening · 22/12/2014 22:28

Diagnosis can explain why you feel the way you do and through that insight you can approach your coping techniques, therapies and treatments - it may enable you to take pre-emptive action that minimises the effect of your conditions (not sure of right word) so that you can achieve from life what you want to - with the right support and clinical/medical intervention it can be a very positive thing. Go in thinking how you want "you" to change - what do you want to achieve?

So I think it can be a cross roads - if your illness/condition affects your life to the extent that you have sought help then it can the point at which you end the impact to your life and move on to wherever you want to be.

snowplug · 22/12/2014 22:43

I got diagnosed at age 30 with autism and it's been a positive thing for me Smile. My score was 48 on the Baron Cohen test too! Mine was an NHS dx and I'd also been through the mill with various psychiatric (mis)diagnoses as well. I get a bit of support through my CMHT, been rehoused by the council, plus I've joined some local support groups and also been approved for DLA and ESA which have helped enormously. I am not really open about my diagnoses, but I'm a private person generally and I wouldn't hesitate to use it if I needed to, for legal or financial (e.g. benefits) reasons.

Enpoid · 22/12/2014 23:00

I just scored 39 on that test and am awaiting an NHS ASD assessment, but apparently the service is rammed at the moment so it may be a while Grin I'm also having other diagnosis quibbles with genral MH services too Grin

I think that as long as you can see ways in which the diagnosis fits with any difficulties you have, a proper diagnosis can be a great thing as it can allow you to understand your experiences within a context of the experiences of those who deal with similar problems, and access support and services designed or tailored for those with such difficulties.

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