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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think that somebody - the consultant, the surgeon, my doctor, whoever - should have warned be about the after affects of this operation

70 replies

Puffykins · 22/11/2014 18:00

I've recently - as in nearly a month ago - had a haemeroidectomy. (Or however it's spelt.) My situation was bad, my doctor said that I had the worst she has ever seen, but I could live with it - and indeed have been living with it ever since I pushed out 9lb 5 of DD, and what felt like most of my insides, two years ago.

I was sent to a consultant. "The best thing if we do this under general anaesthetic," he said. "You won't feel a thing, it's an outpatient procedure - I just think that banding them will be too uncomfortable for you." Great, I thought, and agreed to it.

Cue the operation.

I have never felt pain like it. I would have given birth again every day rather than experience the first four days, which felt like somebody rotating razor blades in my bottom. I had been sent home with over the counter painkillers, which didn't even touch the sides. I didn't sleep for three days I was in such agony. I ended up back in hospital (A&E) because it was the weekend, and then the doctor said to me "You know, I sometimes don't think we prepare people very well for this." And gave me codeine and local anaesthetic gel, which helped.

But, thinking that I was going to be better in a matter of a couple of days, I'd done nothing to prepare. I couldn't walk or sit up for two weeks - and I had to arrange emergency child care while hallucinating from lack of sleep/ too much codeine. I've had to cancel numerous events, including work (I'm self employed). And then I started googling it, and discovered legions of people who have had to take 8/ 12 weeks of work for this procedure, and who also describe it as the most painful experience they have ever had.

I'm not at nearly a month, and I'm still far from better. I'm still having to employ a full time nanny to look after my children, and the guilt that I feel from not being able to be with them/ take them to parties (DH is working on a huge project at the moment, so working weekends too). Going to the loo is AGONY. I still can't drive. I can stagger a short distance, but it's pathetic, and it exhausts me (and physically, I was very fit before this - I could run a half marathon quite easily.) Even going anywhere in a car is incredibly painful (I tried. I went to a meeting which I HAD to go to on Thursday, and I feel like I'm still paying the price.) I still haven't slept through the night without having to have had a pain relieving 2am bath and then wait around for the pain killers to kick in again.

Why, WHY did no one at any stage prepare me for this? I wouldn't actually have had it done now, at this point in my life - or, if I had had to have had it done, I at least would have been able to properly arrange childcare rather than having had 3 different nannies since this started. Should they have told me? Or is it my responsibility to have fully researched the operation that I was having before I had it? (I believe that it is partly my responsibility, incidentally, and I am furious with myself.)

Finally, if anyone else has had it, when will I be okay again?

OP posts:
MrsWedgeAntilles · 22/11/2014 20:21

Whether you were told or not is neither here nor there, they should have checked that you understood before you signed the consent form and that is very much our responsibility as HCPs.

Carrierpenguin · 22/11/2014 20:21

Yanbu, that sounds awful op :-( I'm so sorry that you've had to go through this.

cheesecakemom · 22/11/2014 20:23

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

thegiraffewithnoname · 22/11/2014 20:27

I'm a theatre nurse. The consent form has to have risks and possible complications listed on it. The 2 always on there are pain/discomfort and infection.

With regards to your being woken up sitting up, everyone is laying down when they are first woken up (ie when extubated) but are moved to sitting up very soon after. This helps with oxygen saturation and getting the anaesthetic out your system. All our patients are woken in theatre before being moved to recovery.

There is no excuse for the antisickness apart from if the previous nurse had signed to say shed given them then you can't be given them again just in case. Nothing to stop them asking the anaesthetist to write up a different one though. Some work on some and not on others (cyclizine doesn't work for me)

Hope you feel better soon.

thegiraffewithnoname · 22/11/2014 20:32

BTW I also think it may have been a new surgical dr with not much experience of consenting. Junior doctors aren't always the best at communication.

Puffykins · 22/11/2014 20:32

Thank you thegiraffe for explaining the sitting up thing - that makes sense. I'm sure that I was woken up in recovery though, not in theatre, unless I don't remember it right. Or does it differ between hospitals?

OP posts:
Puffykins · 22/11/2014 20:34

Thegiraffe yes he was very young..... So was the consultant who initially suggested I have the operation.

OP posts:
Eeeeekyeeek · 22/11/2014 20:37

I'm so sorry Puffykins and it does sound like you were badly misled about your recovery.

There was also another poster on the health board I think who had the same op and suffered terribly for a very long time afterwards.

DP was also booked in for the same procedure two years ago. He went to the pre-op and cancelled it.

The op would have been exactly 6 weeks before a family wedding abroad and after we researched it online, we realised it would have been very unlikely he would have made it Sad

The nurse at the pre-op agreed that he may not have made the trip but I still think they downplayed it quite a lot (and it was a private hospital).

He's self employed and just cannot risk being out of work for up to three months or maybe more, especially as it's very physical and he's on his feet all day, seven days a week for much of the year.

The problems he has now come and go (bad this week actually with a lot of blood loss, which he didn't tell me until it stopped).

But I just can't see how he could have the op - we're now looking into alternatives such as laser and just hoping it doesn't flare up too often.

Please do get an emergency appt with your doctor or your consultant. You at least need proper pain relief.

whatever5 · 22/11/2014 20:38

I hope you feel better soon. It sounds as if you weren't given adequate pain relief or warned that you would have to be off work for a while and need help with childcare. Don't blame yourself for not doing any research beforehand regarding the pain. You shouldn't have to.

NotDavidTennant · 22/11/2014 20:41

"It's like signing for a loan - you can't come back later and say why wasn't I told."

It's not like signing a loan at all. It's called informed consent for reason - the patient has to properly informed what they're consenting to.

Thisismyfirsttime · 22/11/2014 20:41

I have no experience of what you've been through but I would be making an emergency appointment at the gp's first thing on Monday and demanding strong pain relief. I would explain the situation and would not leave the surgery without proper, prescribed pain relief. It definitely wouldn't put you back to normal but it'd at least take the edge off?

lougle · 22/11/2014 20:43

I used to be a theatre nurse. You're always woken in theatre so that if there are complications you can be dealt with swiftly. Most patients don't remember it though, because they are still partially anaesthetised until it leaves the system, which takes a while. A nurse/ODP then protects your airway (by holding your jaw and extending your neck gently) until you are awake enough for your own protective reflexes to take over.

Most patients remember the 2nd/3rd time they wake up, then think it's the first time.

Puffykins · 22/11/2014 20:50

In terms of pain relief I'm fine now that I've got codeine (well, not fine obviously, but a lot better.) The problems arise when the pills wear off and I can't take any more for an hour/ if I have to do anything. Today's nanny couldn't do a full day - in fact she only did 3 hours - and DH is away. So I've been on my own with a 2 year old and a 4 year old for much of the day and am both exhausted and in serious pain, nearly a full month post-op. (The nanny arrives at 9 tomorrow morning, thank God .) But this is all costing me a fortune, and it's disruptive for the children and I hate it. And my temper is short, because I'm in pain, which is making me a pretty crummy mother right now.

OP posts:
Puffykins · 22/11/2014 20:53

Thank you lougle, that makes sense.

OP posts:
ToffeeWhirl · 22/11/2014 20:56

I'm so sorry for the pain you're in, op. My mum had this operation and I remember her crying with the pain afterwards. She was given very strong painkillers by the hospital and could only just about bear it on those. A male friend of hers had told her the op was worse than childbirth and she said it couldn't be and argued with him, but after the op she said she agreed with him. I'm speaking to her tomorrow, so I'll ask her if she remembers how long it took to recover and what painkillers she was given.

And YANBU to think that a medical professional should have prepared you for this level of pain and disruption to your life.

Puffykins · 22/11/2014 21:04

Thank you Toffee that's really kind of you.

And certainly it's been worse than either of my childbirths were. Although I'm kind of seeing this as an extension of childbirth - after all, that's what caused it! And looking at my (now sleeping) children is the only thing that stops me descending into a trough of total despair - going through this for them is the only thing that makes it worth it.

OP posts:
ReindeerBollocks · 22/11/2014 21:14

I had a very similar thing happen. Different operation though - I had a kidney removed. Estimated length in hospital two to three days and I was given a spinal block to ensure I would be in only a little discomfort afterwards...

It was hell on earth, there were complications in surgery - the surgeon tore an artery and this massively hindered recovery time. I had a further internal bleed after six weeks and I was amazed that in all honesty that it took me so long to recover. The specialist nurses asked how long it took before I felt normal and I'd say it was four months. However, I did return to hospital when I was very unwell (the six week internal bleed stage). I was checking how and why and was simply told every person has a different recovery length.

I wish the surgeons and nurses would have been more honest - they were brutuly honest about the scarring, the potential loss of kidney and even death, but they definitely didn't mention that had surgery been successful that I would take so long to recover and feel so shockingly awful. I struggled to walk due to depleted energy levels and having to be carried home after four weeks.

I wish they could have prepared me so that I was able to plan accordingly and be prepared for it.

I really sympathise with you OP. I hope you contact your GP and get a check up to ensure everything is ok. Otherwise please just try and rest and get good strong painkillers to be taken every four hours. Best of luck with the rest of your recovery x

ToffeeWhirl · 22/11/2014 21:15

It will be worth it in the end, Puffy. My mum's life was severely affected before the op, but transformed for the better afterwards. At least you have a month of this awfulness behind you now and will never have to go through that again. Just think of all the things you will be able to do with your children when you're fully recovered.

ChablisLover · 22/11/2014 21:20

I can sympathise with you.

Have had it done and it was excoriating.

But once it stopped, I had no bother with sore piles. I know that's not what you want to hear.

Have you gone back to your gp to ask for help?

ChablisLover · 22/11/2014 21:22

I agree with other posters

Some discomfort is code amongst doctors

I got steroid injections in my hips (I'm falling apart) and the consultant said it would be a slight prick! I actually shouted at him when he did the injection! A slight prick my arse

nocoolnamesleft · 22/11/2014 21:31

Small practical point...

Given the amount of pain you're already having on opening your bowels, and codeine's irritating habit of causing constipation, I hope to goodness you're on a decent amount of a decent laxative? If not, get on one now! Should help a little bit to be on enough laxative to keep your poo (sorry about this bit) about the consistency of scrambled egg. Movicol was a life saver when I was on loads of codeine...

Puffykins · 22/11/2014 21:34

Oh, I'm taking laxatives.... Thank you though.

OP posts:
Puffykins · 22/11/2014 21:37

And thank you Chablis, that gives me hope, sort of. What is super frustrating is that that were all internal before I had this done. Now I have an external one. Also - and this really might be too much information (sorry) - I don't think my stitches are dissolving. I say that because I've got string coming out of my bottom. I trimmed it, but the amount that is left has been there for about a week now. And it hurts if I pull it (so I don't.)

OP posts:
HulaHoop12 · 22/11/2014 22:17

Nothing to add other other than get well soon Flowers and don't blame yourself! That sounds awful. I really sympathise. Fingers crossed for a very speedy recovery and happy Christmas

Ladyfoxglove · 23/11/2014 01:03

I really feel for you OP as I had this op four years ago, twice. They had to go in again four weeks later. I was warned of the pain though and told to do nothing for two weeks. A shuffle to the kitchen made me sweat and I, like you was fit. I was given codein & other industrial strength pain killers though which helped but the pain woke me up in the night when the meds had worn off. On the 1 hour journey home my sister had to stop twice due to my pain. It is grim but not unbearable and it sounds like you may have been treated badly (neglect by surgeon in respect of preparedness?) Maybe investigate. Im now glad I had it done but it was a difficult op. Good luck.

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