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to not understand why we aren't talking about this - young mother with bowel cancer [title edited by MNHQ]

59 replies

PoohBearsHole · 21/09/2014 20:44

I've searched, but found nothing here but I can't believe with this blog post going semi viral there isn't a conversation about it!
www.huffingtonpost.co.uk/charlotte-kitley/bowel-cancer-charlotte-kitley_b_5836238.htmlCharley
please read it, with tissues at the ready! please share it with friends and loved ones.
It made me take a little, ok huge step back on a bad day.

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PoohBearsHole · 21/09/2014 21:35

five, I'm so sorry for your sisters diagnosis. But please know the outcome is so much better than ever before, it's just that so many people don't know about it. To quote the article without having to read it "grab life with both hands". It should apply to all of us, just to live and enjoy every moment x best wishes to your sister x

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PoohBearsHole · 21/09/2014 21:39

thanks trills, I've asked for the title to be changed, am more than happy for apMN towers to choose a suitable title, have given them an idea though :)

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PoohBearsHole · 21/09/2014 21:42

to all the posters who've seen it on fb, I'm so glad you have come across it, your friends have shared it and hopefully you all have felt the same way those of us who first saw it did. To my shame being Scottish but not a resident, my grief took centre spot. And I think you will agree, I now don't feel that ashamed to let my grief take centre stage for a couple of days :(

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Curiouslygrumpycola · 21/09/2014 21:47

:(

zen1 · 21/09/2014 21:53

She sounds like an inspirational woman. So sad for those who knew her.

ThermoLobster · 21/09/2014 21:53

Made me cry.

PoohBearsHole · 21/09/2014 21:55

she was. they are very proud x

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PoohBearsHole · 21/09/2014 22:00

thank Trills, I was going to link to his article in response to her post but you thankfully beat me to it :)

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HeySoulSister · 21/09/2014 22:09

It was the 'selling my car' bit that got me.... So final Sad

Don't know why that stuck out

PoohBearsHole · 22/09/2014 20:06

it might be the daily fail, but I salute them for writing about it!

www.dailymail.co.uk/health/article-2765083/Mother-36-died-bowel-cancer-calls-grab-life-enjoy-heartbreaking-final-blog-viewed-millions.html#comments

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PiperIsOrange · 22/09/2014 20:20

Very moving, cancer is a truly awful disses that poor family.

Writerwannabe83 · 22/09/2014 20:31

My MIL died of bowel cancer two months ago - the doctors had missed it Sad She'd been ill for 7 months but doctors just put her symptoms down as being down to her having coeliac/crohns. It was only after the post mortem they realised she'd had cancer all along when they found the large tumour in her bowel. She had just turned 60.

PoohBearsHole · 22/09/2014 21:04

Writer, I am so sorry for your loss :( another very valid reason to make sure there is more knowledge both amongst us laymen and the medical profession.

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CallingAllEngels · 22/09/2014 21:30

Have been reading Charley's blog for the past few years as am friends with her Dsis. Thinking of her family. Gone too young. x

CallingAllEngels · 22/09/2014 21:34

...last few months I mean.

PoohBearsHole · 22/09/2014 21:39

Calling, her blog has had me in stitches since she started it :) that last post floored me. still does every time I read it.

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TallGiraffe · 22/09/2014 21:46

frownyface good luck with your IBD tests, they are not pleasant but worth it to get the answers. I'm sure it all seems very bleak right now but there is hope, I've had IBD for over half my life now, had most of the drugs there are out there and more operations than I care to count. But it hasn't stopped me skydiving, having a child, or finishing my PhD. Pm me if you want to ask anything.

frownyface · 24/09/2014 12:04

Thankyou so much tall giraffe thats so kind of you :) Thanks

Eyespy24 · 24/09/2014 12:53

My DM has advanced bowel cancer so I stumbled across Charley's blog a few months ago. She was an amazing woman.

It is such a tragic tale but her writing is truly inspirational. It does make me thankful for what I have.

DidoTheDodo · 24/09/2014 12:57

Bah. I never cry at things on the internet. But I did at this.
What a lovely piece of writing.

SookyBunny · 25/09/2014 12:02

I was diagnosed with bowel cancer in January at the age of 39 and discovered Charley's blog not too long after. It resonated with me immediately as I too have very young children (5 and 2) and I could relate to Charley's humour too. To those of you who knew her personally, be assured that she really touched the life of strangers, as I have seen many posts about her on the Beating Bowel Cancer forum. Her family, though undoubtedly deep in grief just now, will have that to be proud of in the future along with so many other things. I hate to think about her poor wee boy and girl having to grow up without the mum who obviously loved them so much and this is my ultimate fear for my children, although the signs are good that my chemotherapy is seeing off my tiny secondary lung tumour and I feel positive and strong. I have read Charley's last post several times and sobbed my way through it each time. A truly inspirational young woman.

What I would say to all of you, is that if you feel that there is something wrong, push, push, push your GP. They are NOT looking for cancer in young people. I attended mine several times in the run up to diagnosis and there was never any suggestion that there was anything serious, even though I was occasionally vomitting, had serious bowel problems and complaining of excritiating pain (for which I was told to "take paracetamol". I was seriously doubled over a lot of the time.) I was eventually referred to a gastroenterologis but the appointment was going to take at least 12 weeks to come through. We decided to go private as my husband had free cover through his work and saw a colorectal surgeon who felt a lump straight away. I was sent for a scan, found to have a large tumour and was operated on the next week. The tumour had perforated my bowel wall and was attached onto an ovary which also had to be removed. Unfortunately, had I waited for my NHS appointment, I don't know how far advanced it would have been. I fully support the NHS but think that GPs seriously need to be aware that cancer doesn't just affect the elderly. When I go for chemo or to support groups, there are many people in the 30s and 40s and sometimes younger, so it's NOT that unusual. I wonder how awareness can be raised.

I must add that since my diagnosis, I cannot speak highly enough of all the care I have received both privately and from my GPs.

bigmouthstrikesagain · 25/09/2014 12:32

A very good friend of mine was diagnosed with bowel cancer in her mid twenties. It took ages to get her diagnosis as a young, fit vegetarian woman, the Doctors just were not looking for it.

she was operated on had chemo and recovered fully. Through it all she was amazing and resilient and positive. Last year it was wonderful to see her getting married and looking fantastic.

It is good to see people ralking about this cancer and raising awareness.

YoungGirlGrowingOld · 25/09/2014 19:07

Spooky - same story as you here, except I was 31 and not 39. Since been diagnosed with Lynch syndrome, which is probably what Stephen Sutton had, if only his GP's had bothered to look at his family history. I am still here 7 years down the line and have been NED the whole time.

I couldn't read the entire post. It's too upsetting. My friend had a similar blog and died last year at 42. She asked me to post a final picture of where she was laid to rest (green burial site) and it was one of the hardest things I have ever done.

FWIW there is current research being undertaken to try to determine why bowel cancer becoming so much more prevalent in the young. Hopefully it will lead to changes in the way suspected cases are investigated at GP level.

SookyBunny · 25/09/2014 19:39

YoungGirl - thanks for posting. I love to hear about people who are doing well after all the horrible treatment is over! Can I ask if you feel that you can put it in the past or does it stay on your mind a lot. When treatment is finished I want to feel like I'm really living but I'm scared that the shadow of this will hang over me.

I've taken part in a Cancer Research project looking to see if there are lesser known genes that make bowel cancer in younger people (cancer's the only time you can pass yourself off as a young'un at 40!), so hopefully they will know more soon.

I don't really blame the GPs I saw (although I am a bit bitter about the paracetamol comment), I just think they need to know more about it. It's a very curable cancer in the early stages, it's frustrating that it takes such a long time to get to the stage of considering it a possibility. Too much time for it to spread. Once my treatment's done, I will think hard about how to raise awareness.

Best wishes an love to all of you touched by cancer. In the words of the mighty Eels "It's a Motherfucker"! xxx

SookyBunny · 25/09/2014 19:41

ps Please excuse typos - how do you edit posts?

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