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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to ask for your tips on getting your potentially ASD child assessed?

29 replies

PeppaPug · 01/09/2014 22:29

I have a doctors appointment on Wednesday about my 2 yo DD and am worried I won't be taken seriously. I'm not the most assertive of people but I'm pretty convinced DD has ASD after having 4 other children to compare her to and having worked with children with ASD before.

It's beginning to really affect our lives. She has an extremely restricted diet, barely eats and isn't growing. She pinches and scratches herself until she bleeds without realising when she's anxious. She cries at loud noises and even vaguely strong smells to the point where I'm struggling to cook without her crying and gagging throughout because of the smell.

She hates anyone bar me, sometimes DH and her siblings being in close proximity to her and grumbles constantly when out. She has a bag of belongings she unpacks and checks at least 25 times per day - getting to the point where we're late because she can't leave without checking her bag repeatedly. She collects, washes and orders stones in size. She can say about 5 words but forgets them and learns 5 new ones every few weeks.

She has to be approached in a specific way or it leads to complete meltdown. I'm dreading the GP trying to fob me off with the usual every child is different, it's the terrible twos etc. I have been in tears today because she physically can't leave a room without checking her bag, she's only eaten two slices of apple, she fell over because a tree rustled in the wind, shes scratched all her leg red raw because she doesn't like the noise of the shower.

AIBU to ask how you got your voice heard?

OP posts:
BoulevardOfBrokenSleep · 02/09/2014 12:12

DS got referred to paeds by GP for investigation (developmental issues)

I made a list split into sections which helped to organise what otherwise seemed like a fairly random list of symptoms, so sensory/speech/behaviour etc.

GirlWithTheLionHeart · 02/09/2014 20:21

I just went to GP, listed my concerns and she nodded and agreed to refer him to SALT and a developmental paed. He was seen within 3 weeks.

He doesn't sound as severe as your dd so I'm sure you will be taken seriously

chocnwine · 02/09/2014 20:24

Just wanted to say good luck, OP.

this time (having concerns but just getting fobbed off) was the hardest time for me. Stick to your guns and don't take no for an anwer.

PeppaPug · 02/09/2014 22:20

Yes, Arsenicy, can completely identify there. When she ate them, toast had to be just the right level of toasted and cut into even fingers, cheese had to be in tiny even cubes, banana just the right level of ripeness etc. Separate plates/bowls overwhelm her and lead to refusal but if one food touches another on the same plate it's all rejected too!

OP posts:
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