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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To keep my medical condition well and truly private?

28 replies

BuggersMuddle · 18/07/2014 00:07

Throughout my career, I've had probably low to average time off overall, however in my 20s I had a minor op (couldn't fly until it got sorted so had to tell work). This was just bad luck and not recurring.

Swiftly following that I was diagnosed with Ulcerative Colitis and hospitalised. As is normally the way with these things, it takes a while to settle down, so I had two hospitalisations with steroids, then some arse came into the office with active pneumonia (really) and post steroids, well - I had 3 recurrences before it disappeared. To an onlooker, this could look like I'm fragile, but I'm not - I had 2 years of utter shit. Anyway, I delivered around my illness, came back as early as possible etc. but I came to realise 2 years on that people still saw me as delicate.

I've moved company and people talk about themselves, their families, etc. A few people have talked about Crohns and Colitis. I didn't think it was that common, but I even had someone telling me the different symptoms. I did say I was aware of the disease, but other than that, I nod, I smile and I walk away.

I've been without symptoms for well over 2 years. AIBU to say precisely nothing when others are discussing the disease? My previous experience was that sharing with a truster confidante made minor flares easier 'buggers had to take an urgent call', but having it widely known was career suicide. I should add I work my hours as a minimum, generally more, am considered a high performer and efficient. I just feel a bit like I'm lying when UC comes up (colleagues with family members who are severely affected) and I try to extricate myself asap.

OP posts:
BuggersMuddle · 18/07/2014 22:46

So sorry to hear that electric

There are degrees of severity of course, but I & many others (including my DP) live very normal lives - often with medication admittedly, but not always (my doc would prefer I was on it tbh but that's a whole different story).

My normal life involves distance cycling, hiking and camping. I won't kid on everyone would feel comfortable with this as it's a very individual condition but just wanted to give a perspective from someone who is very well when in remission. (BTW posts above might suggest this is my first remission. I've had quite a few periods of remission in early disease - 6 years in - but this is my longest. Worst period was faffing about in early days to get diagnosis, try medication to see if it works and agrees with me etc. It does get better.).

Very best wishes to you and your son Thanks

OP posts:
bughunt · 18/07/2014 22:58

YANBU. I had/have endometriosis. I never talked about it at work, or anywhere else, really until recently. I think the reason I now talk about it is, post kids, I am much less career orientated and as I am now part time, can work around any tricky days so am never off sick with that.

Electriclaundryland · 18/07/2014 23:01

Thanks Buggers.

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