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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To get in touch with SS as I just cannot cope with DS anymore?

29 replies

dripty · 04/06/2014 19:41

That's it really.
Have had to take ADs over the years but came off them finally a couple of years ago.
DS1 has been diagnosed with ASD and his behaviour is becoming so bad that I fear I might have to return to the ADs.
I just feel so ground down and am seriously thinking of contacting SS. Not sure what I think they can do but I am ready to pack my bags and go in order to save what little sanity I have left.

OP posts:
weatherall · 05/06/2014 20:29

You have a right to a carers assessment.

Contact the children with disabilities team.

Also find out if there are any carers support orgs in your area.

What about the national autistic society?

Go to the gp and say what you've said here.

You might also get support from some fb groups.

It might make it easier knowing you're not alone.

dripty · 05/06/2014 22:07

Thanks again for all the advice, it's been very useful.
DS doesn't have a statement but he's had educational psychologist involved since he attacked another child at nursery when he was 2.
He has an IEP which seems to be not worth the paper it's written on tbh.
I have been to the GP on numerous occasions over the years asking them to refer him to a specialist behavioural centre nearby but the first time I pushed for it he was too young. The second time the paperwork seemed to vanish and the third time the GO seemed disinterested and said he would have to contact school for more information first, which he never did.
I have contacted our local NAS branch today and asked them to send me some info about support groups for me and DS.
Have also enrolled DS in the local Cadet group. He is not interested at all but I think it would be good for him as it offers structure and rules which he must follow to work as a team and lots if opportunities for physical activity which might help to channel his aggression.
I have swung between wanting to curl up in a corner and wanting to fight the whole world all day which has been very draining. But I appreciate all the great advice on here.

OP posts:
Lozzie12 · 05/06/2014 22:15

The school don't sound very helpful, it must be a miserable day for him being segregated at breaks etc. I'm not sure that it will help his behaviour. Are there more suitable school placements in your area? It might be worth contacting local educational authority. I hope things improve for you soon.

MisForMumNotMaid · 05/06/2014 22:24

This link is about direct payments - money you can probably get to help you buy services to support your son and get you a little space. I've just applied and it involved a phone call to confirm name DS's diagnosis etc, then a shortish visit from a lovely social worker who briefly met DS and chatted to me about what support would help - she listened, which was lovely. I believe I should here within about two weeks so its quite a quick decision from application.

Statements of educational need are being phased out from September - they're being replaced by an Education, Health and Care Plan (EHCP). If you think one could be of benefit because the support you have now is not working then you can apply yourself. government link. From the bits and pieces I've picked up having attended a few meetings I'd suggest you apply because no one seams ready for the EHCP and I think there will be a lull period where people sit in the gap of statements ending but EHCP's not starting. statements should be ported across to ECHP's with the advantage that children who have them have access to support through to 25. I had much support on here with my application - I'm sure you'd receive the same.

Have you applied for DLA for your son? The money helps to take a little stress off when things get broken. As an aside my ASD DS1, 10, decided the banister needed pulling off yesterday. Last week he was punching bedroom doors and the landing wall that has been replastered/ heavily patched twice in the last year. He is not generally aggressive but I think hormones are starting to kick in and he doesn't process emotion well.

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