To be seriously confused over hospital / GP today regarding sons head :(

[Mixedupmind]

Feeling very confused and tearful so please be kind
I have a few threads on here regarding my little boys head and today it's all come on top.
6 weeks ago I noticed a bump whilst washing his hair, rock hard and about the size of a 50p
Put it down to him jumping up to give his dad a hug that morning and catching his chin with the top of his head.
He was fine in himself, thought not much of it until it was still there, although smaller a week later.
Mentioned it to the nurse at his pre school jabs who wasn't concerned, said they can take weeks to go but see a gp if concerned.
Saw the gp 2 weeks later as it was still there who mentioned possible haemotoma but again not concerned, might take months to go.
Last night whilst checking the bump I noticed a slight indent ( about 2 inches long ) on my sons head, on the same side as the lump but quite a bit further down.
I then panicked as he had a craniomoty as a baby on that side and have never noticed it before.
Doctor wasnt in today, so went to my local a&e.
She checked him over, wasn't sure and told me to have some bloods taken ( booked for a fortnights time ) and she would see me again in a month when the results are back.
Given his history she told me to go straight to my gp and get a referral for a neurologist ( different hospital ) to check him over.
Off I went to the gp who also felt his head, wasn't happy with making a referral as usually about 6 week wait and told me to go straight to the hosiptal for an MRI scan!
Off I went on the hours bus ride, in tears that my son was going to have to be sedated for an MRI scan and wondering what on earth was wrong with him only to see 2 paediatricians after a 3 hour wait at the next hospital who weren't concerned, said whatever the bump was from its not an a&e concern, it's hard therefore not a fracture and the depressions in the head may be from surgery and I've just not noticed but either way the neurology team won't need to see him and an MRI certainly won't be being done
I'm very confused and worried

Yes I will do that this week.
I now have these blood tests booked and an appt with the initial hospital for the blood results even though the second hospital said these aren't necessary
I don't want to put a 3 year old through anything he doesn't need to however id hate for them to hold an explanation so I think he will have to have them

I do feel for you because you sound so very worried and quite understandably too. To give a little background, my son has Down's Syndrome and so we have seen a lot of consultants, paeds and had several hospital stays and three operations. We also know many other families using the usually very excellent services of the NHS. I'm telling you all this as I hope my experiences, although not directly relating to your bump situation, have made me quite used to the systems used.

My reading here is that GP has referred for MRI being very cautious, perhaps as she doesn't know your son very well. The two paeds you have seen at the hospital "trump" the GP, if you see what I mean. They have more experience of children's illnesses and conditions. If both of them were satisfied, there's your answer, no real cause for concern.

If anything changes you can go back to GP, or as with any child, if unusual symptoms start to worry you and he declines rapidly, off to A and E you go.

If you've got standard bloods and another appt booked, you can attend these and express your concerns over the confusion. Or would your own GP take a call to reassure you. I can see why you are worried but IME the paeds aren't worried otherwise it would have been immediate bloods, scans and tests when you presented at hospital.

I can understand your worry, but please try to be reassured by the paeds comprehensive hospital experience.

I forgot to add, I think your previous experience with your son's history has probably made you anxious. This is very common in children with medical history. My child with DS is my third, but when he is poorly, I worry much more about him than I ever did his sisters and that's partly because things escalate and he becomes more seriously ill more quickly, but also because our periods of being in intensive care with him are etched in our brains, and we fear it happening again. Do you see what I mean?
When he is ill, I have to be very firm with myself and treat him symptomatically, and not imagine all the conditions he could be retreating into. I hope this makes sense. My DH once said to me "I know you mentally have his bag packed and car running when he's ill" and I do, I'm always poised as the fear never quite leaves.

I do hope you feel reassured by the good advice from posters, take care x

:( you're right.
The trauma of what happened to him before has never left.
I have been lucky that for 3 years whilst we've had other problems ( scarlet fever and other childhood illnesses ) we've never had a head concern with him.
I think this is why the first 2 doctors thought neurology was the way to go and I appreciate that however to then be told no as no need at all really confused me and worried me as how do I know who I need to believe?
I will go for the bloods as would hate not to and something show up although I know how unlikely that is but that a&e doctor said she would write to me to see him in a month once the bloods were back, is this normal practice?
I've never been told to return to a&e, maybe she meant by appointment

You poor thing!

Yes, I think she means she'll invite you to an outpatients clinic appt at the hospital to discuss results. Honestly I think you can take comfort from the time frame here; if this was an urgent situation, they would have done immediate bloods and scans. I'm thinking the bloods and clinic appt are just to be sure that all is still well and to reassure you. Trust me, if any Paed/consultant had suspected anything out of the ordinary, they would have done tests on admission.

I hope this reassures you a bit x

I'm really taken aback with all your kind comments.
Friends of mine and even family members think I'm over reacting
Thankyou so much

Bless you xx

It's no problem! I replied because I could feel through your words the back story that might help it all make sense. It is hard when you have been very frightened for your child's health before

My friend is a biomedical scientist in haematology, she's just said that if they were worried then these bloods would be on an urgent run, so please try not to get so worried

Thankyou again, I just love him so much I can't imagine my world without him
I don't actually know what they think these bloods might reveal in regards to a bump on the head / indents.
What on earth could they show?
Infection / inflammation I can see showing but not sure what else

Woken up very angry today that all these people don't seem to agree on the right thing to do
2 are telling me not ro subject him to blood tests and the other one is wanting me back in a months time to discuss the results
I'm really confused and annoyed that im now left so confused

I don't actually know what they think these bloods might reveal in regards to a bump on the head / indents.
What on earth could they show?

This is what your GP can clarify for you.

Yes I will bring along the blood form and ask him what they could show
Im guessing inflammation / infection but this is just a guess

How is your son now op?