Aibu re Mirena and to lie to docs to have it removed.

[SquidBobSpongyPants]

I had the mirena inserted 3 days ago so i realise this is premature as i havent had time to get used to it yet, however i have reasearched and found numerous stories about the mirena causing the following issues

1- Increased stress incontinence: i am 27, i wet myself on a daily basis prior to having coil inserted, if this increased i honestly feel like i couldnt cope/leave the house, its so embarressing especially for someone my age

2- Increased anxiety: I have severe intrusive thought ocd and social anxiets, i ammanaging but i can slide very quickly and dont want to risk any increase to anxiety levels

3- Long family history of blood clots, cervical and breast cancers: it seems this increases the risk yet nothing was mentioned to me at the outset

4- Migraines- I have hormonal migranes that have setted down now due to my hormones leveling out (ie i had when i was going through puberty and through all pregnancies but limited other times so docs said it was 100% hormonal in my case and also inferred i would likely get them again when i go throguh menopause, joy). My migraines are completly debilitating, i know the arnt pleasant for anyone but i go completely bling and have severe tinitus with mine so i cant just carry on, luckily they dissapear quite quick (within a few hours) whereas my poo mum can carry on with hers as her hed dosent hurt too bad/retains full vision but they last for days (i realise that i am quite lucky in respect that they may be intense but short lived).

Anyway to get to the point, if i did notice an increase in any of these issues i have seen that many women have asked for removal and been denied/told to wait a few more months, couldnt i just tell docs ive changed my mind about having another baby (i havent, i would look to other non hormonal methods) in order to have it removed asap? Or could i actually deman it is removed regardless, do docs have to do what i request in this instance?

Tia

oh good lord i need my glasses checked, few spelling errors there,

To clarify i go BLIND not BLING

Well, I haven't looked into it that thoroughly since I had mine fitted 5 years ago but I have no history of any of those things and have had no problems myself.

It's your body so I think you can ask to have it removed, but I think your doctor may be a bit less than impresses with the wasted time and cost, when you could have researched and discussed this with them beforehand. They should have asked if you had certain pre-exidting conditions or family history if the risks are significant. Also, what will you use instead? Why not go in, explain your worries and ask them to evaluate the pros and cons with you.

Finally, please go and see the GP again about the incontinence, ask to be referred to the continence clinic, there is a lot that can be done to help and you shouldn't have to just live with it.

You need to discuss your points honestly with your doctor I'd say then perhaps monitor how the coil affects you.

Next time maybe research something before you have it done rather than after? It would save you a lot of anxiety.

ok thanks. The irony of this is that my ocd is mainly around excessive reseach into potential medical issues and prior to having it inserted i had just comeplted at 18 session course of 1 on 1 cbt to stop me doing this which reinforced that for my mental wellbeing i shouldnt research into issues, ive not relapsed, obviously, but maybe i need to try to find a happy medium where i can research without causing so much anxiety

I'd say your doctor is probably your safest way to get the info you need in that case and they'll also be very well informed, both about your OCD and the CBT you've had for it, and about the latest information on the coil.

Try not to scare yourself for now.

"1- Increased stress incontinence: i am 27, i wet myself on a daily basis prior to having coil inserted, if this increased i honestly feel like i couldnt cope/leave the house, its so embarressing especially for someone my age"
Incontinence is a horrible confidence-sapping thing to deal with. Please ask your GP about referral to physiotherapy for this. Personal experience - the consultant was willing to operate on me for this but I am a coward preferred to try the non-invasive method first and have had great results from it. Two years on from physio and it's almost never. Can't recommend it highly enough.

As to the Mirena - if it doesn't suit, get it removed. But bear in mind more people are willing to talk about bad experiences than good, so the anecdotal evidence out there may be unbalanced. Again, personal experience, I've noticed no problems with mine. But if you do struggle with it, tell your GP and have it removed.

I had the Mirena coil for 8 years (first for 5 years then second for 3 years before TTC). I absolutely did not have these symptoms at any point and in fact did not know that they were reported with Mirena? The only side effect I noticed was slightly bigger boobs. I recommend talking to your doctor but also, maybe wait a week or two to see how you feel?

The only time in my adult life I was free of hormonal migraines was when I had the mirena (and now as I'm post-menopausal!). The small, constant dose of hormones was infinitely preferable to the hormone roller-coaster that I was on!

Have had a mirena for 6 years and have not had problems.
No PMT/headaches and best of all almost no bleeding.
No regrets here.
Talk your GP abs take advice.

ok this all sounds quite positive, hopefully like most of you i wont get any of these symptoms so then i wont have to ask to have it removed . Thanks

I have had my Mirena for 16 years(not the same one obviously!) and I have loved it. I had stress incontinence before and had an operation about 8 years ago (TVT). I had really bad migraines too which I believe got a bit better. My PMT disappeared and NO periods. A positive story. But if you want it removed, go talk to your Dr. Drs are reluctant to remove before you give it a chance because it costs about £100.

OP, why did you leave all the researching for AFTER you had the coil fitted

I love my mirena an insane amount. You're right that we only tend to hear the horror stories on forums and the like. Eight years with no issues whatsoever here.

7 years here and no issues.

I have used Mirenas for about 12 years with no problems whatsoever.

You really should speak to your GP about the incontinence, you shouldn't have to live like that.

I've had a mirena since 2000, only having a break in 2004/5/6 while TTC and pg. I've not had any problems at all, and know several other people who have had one long term with no problems at all.

I have had a Mirena coil for 8 years now and after suffering from stress incontinence for about the same number of years (which has got MUCH worse lately), I am considering TVT surgery. This frightens the life out of me and it has only just occurred to me that my coil may be exacerbating my stress incontinence. Has anyone else found this? Also, is TVT really the 'magic' fix that the surgeons say?
If you have any experience of this, please post back.

My sister had the tvt surgery and it worked beautifully.

Another 6 years and v few issues, apart from a bit of acne at the very start. The benefits, in contrast, have been huuuge. I would stick with it for now and talk to GP about stress incontinence.

I had none of those problems but many many others. It was great for a year or two and then horrific - I very much regret ever having it. A year on from having it removed and my skin is only just starting to recover - I'd always had great skin before but it's wrecked it, amongst other things.

Stop worrying. If you want it removed then ask the doctor and they have the to remove it if that's what you want

ZOMBIE THREAD, PEOPLE.