This is a really long story with different parts, sorry if its confusing.
12 week scan everything was normal.
20 week scan in was told the heart looked ad normal and I was referred to a heart specialist at another hospital who said her heart was on the wrong side.
From then I had a heart scan at that hospital every 4 weeks but just for her heart and growth scans and to check everything else at my own hospital every week. So every week the Dr said it seemed to be isolated and her heart is on the right but nothing else and she would be fine.... Fast forward to 8 weeks later after 8 scans I was bk with the heart specialist at other hospital she called there obstetrician in and they discover my daughters liver in her chest which was pushing her heart to the right and rang my Dr to get me booked bk there for a scan asap.
My daughter had congenital diaphrwmic hernia with liver in her chest which came with a 50 percent survival rate.
After 3 scans later diagnosis had changed 3 times from Dr to Dr , one Dr said it was right sided and her lungs were 1.7 which gave daughter a 50 percent chance , then a 2nd Dr 2 days later was left sided with lungs at o.7 which gave her a 15 percent chance of surviving this Dr became my Dr until the end.
I was 29 weeks by now and saw the pedatrician who offered me a termination.
At 33 weeks they then said my daughter may also have a heart problem and if she did there was hardly any chance as both together would condradict each other but said I was at the best hospital for the hernia and liver and that the heart hospital was only 10 minutes away.
I was offered a termination again.
36 weeks I had a scan and was induced as it was thought she stopped growing although they said her chances were better if I made it to 38 but no was induced the nest day.
Her being born well she hadn't stopped growing and came out at 5lb 8 and I didn't have reduced waters either which was the other thing.
During that night I had to stay on the ward baby was stable in Nicu asked if they would ring me if anything happened, next morning in walked in uti where the Dr approached in the middle of the room and said she has the heart coactation and the cdh and she dipped during the night and is on full life support we don't know if she will make it and walked off , I thought it was over. The cdh would determine whether she made it or not. It took 8 days for a bed to be available at the heart hospital where they would do the heart op and the surgeons from my hospital would come and do the surgery on diaphragm and liver at the same time. Those 8 days I thought I would lose my daughter no Dr sat me down to discuss anything and it was awful I was still angry about not being the told the first night that she dipped.
We eventually got to heart hospital at day 9 to be told that in fact daughter didn't have the heart problem and so was taken of the medication which was interfering with her cdh treatment for then last 9 days.
We had to be transfered bk to our original hospital now for the cdh surgery to save my daughters life but they said there were no beds now so waited another 4 dwys .
Finallyn4 days later we were bk and surgery was ready they asked us to wait in the parenting room and we will be called to walk down with daughter to surgery but they forgot and never came and got us
Daughter made it through surgery and 2 days later was of the ventilator which because they said her lungs were so bad in was told it would be months.
Yesterday after 4 weeks , the peadatrician finally spoke to me the one I had when I was pregnant and said the following
Obviously her hernia was less severe than we thought and her lungs were more developed than we thought , and obviously she didn't have the heart coarctaion and was bigger than we thought.
Aibu to be confused ... I look at my daughter scared that they have it wrong again and to think I newrlky terminated 3 weeks befor she was born makes me sick.
Don't get me wrong in know even with just the cdh it was only 50 50 and she has done amazingly well better than anyone expected but I'm so traumitised by the whole thing I'm almost scared to love my daughter.