to throw in the towel?

[BalancingOnTheEdge]

Things have been really tough lately. I've posted about most of it here in one guise or another (couldn't put it all under one user name as nobody would believe me). I've reached the end of the line and can't take anymore. I just want to go to sleep. I'm so tired.

Ring Samaritans. They will listen and not judge. We are here for hand holding if you need it x

Sorry if that sounded abrupt - just wanted you to know you're not alone x

just get through tonight and go to doctors first thing tomorrow and tell them. Ring the Samaritans now for someone to listen. Thinking of you

Sorry I haven't seen your other thread but you aren't alone, take things an hour at a time if you need to. Ring the Samaritans if you need to talk and see your doctor tomorrow.

Keep focussing on the really simple things, let the big stuff wash over you until you can talk to someone tomorrow. xxx

I've told my doctor. I've told my health visitor. I've told my husband. I've told social services. I've even told my solicitor who has fought through every court in the land to get me help and I now have an absolute court order ordering social services and hospital to support me. But it means nothing as they still won't do it. I even rang my mum in desperation today but she cut the call short as the woman from next door had popped in for a cup of tea.

what would you like to happen Edge?x

I want to be able to sleep. That means someone taking the pain I'm in seriously instead of just giving me a Tens machine I can't use and a box of paracetamol for pain relief.

I want the practical help the court says I should lawfully have so I'm not drowning in tasks beyond my capacity (I have AS and am physically disabled, my adult daughter lives with me and also has AS as does my husband). I'm currently stuck in a frantic game of wack-a-mole that never ends.

And more than anything I just want to feel like someone in real life actually cares about me and how I'm doing.

Sounds awful for you,Edge. I don't know what to say to help you feel better. I don't know what AS is but feel sorry that you feel you are drowning. Why can't you use the tens machine?

Because of my autism I have hypersensitivity. The sensation of the Tens machine freaks me out. I can only use it on such a low level that it's pretty pointless and that's if I can even get the sticky pads on properly. I can't reach where they need to go because of my limited movement.

it won't help for tonight but go back to drs and discuss pain relief, their may be more they can help you with. it may be you have depression as well which they can help you with

how are you?

Please go back to the drs and say very clearly that you need more effective pain relief. I think once you have got that under control, you will be in a better position to get the other help that you are entitled to. Good luck x