I have multiple sclerosis (for those who might not know it's an incurable neurological disease where lesions form on the brain, leaving scar tissue, and affect whichever bodily function that part of the brain they've damaged (in my case it's memory, balance and limb weakness).
This means my brain has to work about 3 times harder than anyone else's, to do the simplest of every day tasks.
For example, I have a weak and slightly numb arm, and so to lift a drink to my mouth takes 3 times the physical effort than it would for my partner. And my one sided weak and numb leg wears out 3 times faster than his, so being on my feet makes me very tired. Not to mention the extra hard work from the lesion causing the poor balance (double whammy effort there!).
So I live really tired. Abnormally tired. I am told by the hospital that I need to manage my tiredness and have a sleep to get though each day, to prevent myself going under.
My husband has to be told repeatedly that I need to lie down to reset my tired brain. If I don't, my symptoms get worse and eventually I risk growing more lesions through being physically stressed and run down. He seems to forget or ignore it, and questions whether I actually do need to rest. Today when I asked if he was ok if I nipped off o a half hour sleep before my hospital Physio appointment he got a bit hostile and said e was really busy preparing food and that he wouldn't be free for the baby. So no, in short.
I was so angry we had an argument about it. By this time he backed down but time had passed and besides I was too mad at him for making me feel bad that I need to physically rest.
Am I being unreasonable to expect him to be on board with me here?