Ok, this is a total pity-party so feel free to ignore.
Dh has MS. He has had it for 10 years and been lucky enough, up until now, to have one two-week relapse per year with no symptoms in between. This year, our luck has run out and, following his usual bout in Feb, he has never been 100% . On the plus side, from this Sept both dc will be in school so the SAHD years are over, but on the negative side we have recently moved and increased the mortgage and his earning power is now less. He has done online marking throughout the SAHD years, but has done less this year due to illness and his plans to get some sort of school-hours-friendly job is looking ropey due to his health.
I earn a decent amount (teacher of 8 years with extra- responsibility) but we are utterly skint at the moment. Dh is tired all the time, though has no pain, he says. We are all at home with no money to do anything and dh is being grim. I know I am being completely selfish and awful but I can't help feeling resentment. I am scared more than anything, but it is coming out in anger/irritation. If I ask how he is, he snaps, "I've got a disease, dear, it's called MS." and if I don't ask for a while, he pulls me up on that. I know it's worse for him than for me, and he must be scared, but I can't seem to find it in me to play the compassionate wife
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I am worried about money constantly. If I could just pack the dc up for a great day out, it would help, but I can't. We usually camp and could just about afford that (at a stretch) but his health won't allow it. I am considering booking a few days in a pod on credit, though that is probably a bad idea, but we are stewing here.
He has agreed to go to CAB to see if we are entitled to anything, but if ever I mention making the appointment, he bites my head off and doesn't make it. I know we probably aren't, anyway, but would like to try. He just goes around with a 'set', grim face and I feel so awful for the dc. My father had depression while I was young and spent an awful lot of time in bed. The feeling of oppression in the house was awful, and the way things are now reminds me of that time
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I think the dc are ok, but feel so bad we can't give them a holiday, or some good days out. Ds1, always a thumb-sucker and hair-twiddler, has pulled out a huge chunk of hair this week, and I feel this must be related to the atmosphere at home. We hardly know anyone here, so no friends to meet up with another source of guilt. I feel we have made an awful mistake in moving the dc away from an, admittedly small support-network and that we shouldn't have risked moving, but it didn't look so risky at the time.
Apologies for the self-pity and doubles typos - am typing in a hurry.