Not really that relevant to the discussion, but actually many people who are ill enough to need transplants themselves often can donate organs, including those with CF. It used to be quite common to transplant heart and lungs into CF patients, taking the CF patient's heart and donating that to a heart failure patients.
If you agree with donation on principle, but don't think you'd be eligible, why not join the register anyway and let the doctors make that decision, should it ever come to it?
There is a really good list of questions and answers here, but the questions relating specifically to pre-existing conditions/medical eligibility are here:
- Can I be a donor if I have an existing medical condition?
Yes, in most circumstances. Having a medical condition does not necessarily prevent a person from becoming an organ or tissue donor. The decision about whether some or all organs or tissue are suitable for transplant is made by a healthcare professional, taking into account your medical history.
There are only two conditions where organ donation is ruled out completely. A person cannot become an organ or tissue donor if they have been diagnosed with HIV or have, or are suspected of having, CJD.
- Can I be a donor if I have been turned down to donate blood?
Yes. The decision about whether some or all organs or tissue are suitable for transplant is always made by a specialist, taking into account your medical history. There may be specific reasons why it has not been possible to donate blood, such as having had a blood transfusion or having had hepatitis in the past. Or there may be reasons why you could not give blood because of your health at the time - sometimes a simple thing like a cold or medication that you are taking can prevent you from donating blood.
- Who can join the NHS Organ Donor Register?
Everyone irrespective of age or health and who is considered legally competent can join the NHS Organ Donor Register. Joining the Register expresses a wish to help others by donating organs for use in transplantation after death but importantly, joining the Register also is a way to give legal consent or authorisation for donation to take place.
Your entry in the Register provides legal consent for the donation of your organs. Children can register but their parents, guardians or those with parental responsibility will be asked to provide their consent should the child's death lead to donation being considered.