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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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to think my local Social Services are a bunch of charlatans?

127 replies

FlaminNoraImPregnantPanda · 17/12/2012 17:21

I'm so very, very angry at them. At best they are utterly incompetent and at worst they are dishonest and stepping way outside their remit. Sorry, I'm pregnant and need to rant to release some of the stress so I can stop crying and calm down.

I have AS and need a little bit of support in the home. I'm not in the UK and here there is a specialist unit at the hospital to support people with autism. They have done a referral to the local SS for me. There are certain support services which adults with autism are entitled to by law in this country, once a referral is made.

SS have rejected this referral as they say they think my difficulties are down to low self-asteem. In their opinion I don't have autism. Despite a team of autism experts carrying out a full assessment and diagnosing autism. Their report was full of blatant mistakes and outright falsehoods. EG saying things were said in our meeting which weren't. I can prove this as the whole thing was recorded.

The autism unit couldn't believe the referral was rejected. They deal with people in my circumstance all day every day. They say they have never had a referral rejected before and the fact they are dismissing my diagnosis is unacceptable. So we appealed to the council's social services appeal board. The appeal included reports from my consultant, physiotherapist, occupational therapist, psychologist and a full and detailed correction of all the mistakes from me. I was told that if this appeal failed the file is then automatically passed to the County Court for review.

It was rejected.

So for the past 6 months I've been waiting for the County Court appeal, which is all done on the file, not in person. I've just got a letter from the County Court saying my appeal will be done on 27th December and if I want to have any further evidence taken into account it has to reach them by Friday. They have sent me a copy of the file to date which they have received for me to review. They have only been sent the original Social Services report and a note stating that I was asked for further information, as were the hospital unit, but we have declined to submit further information.

I can't believe that these people are given responsibility for organising care for vulnerable people. I wouldn't trust them to care for an ant farm.

I've tried to get hold of the hospital unit, the court clerk, a translator, one of the incompetents at Social Services, etc but of course, no bugger is around as it's Christmas.

I feel like I'm going to have a heart attack.

/rant

:(

OP posts:
Onebadbackandalostpelvicfloor · 17/12/2012 17:26

Sorry to ask but what support exactly are you wanting them to provide?

FlaminNoraImPregnantPanda · 17/12/2012 17:26

Further more, even if I printed off the further reports I do have (some, not all). There's no way they'll be at the Court by Friday. It's Christmas post now. (Court is about a 4 hour drive away)

OP posts:
Onebadbackandalostpelvicfloor · 17/12/2012 17:29

Again, what support do you require?

DozyDuck · 17/12/2012 17:32

Can you email them to the court?

FlaminNoraImPregnantPanda · 17/12/2012 17:34

There's 2 bits of support requested.

  1. A contact person. People with autism are entitled to a contact person for 3 hours per week. This is like a professional friend/buddy system. Someone you can chat to, go out for coffee with etc.
  1. Someone to support me with setting up systems and routines within the home. To work with me until I can manage and then gradually step back as I get better at coping. This is normally done hand in hand with the occupational therapists from the hospital.
OP posts:
Onebadbackandalostpelvicfloor · 17/12/2012 17:34

I ask because diagnosis doesn't necessarily mean you'll get help if you are otherwise functioning. We go by what you can and can't do more than the diagnosis in conjunction with your wishes. I would assume many other ss departments work the same way. If you are fully independent apart from requiring access to some universal services this may account for your discharge.

trueblood1fan · 17/12/2012 17:34

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Onebadbackandalostpelvicfloor · 17/12/2012 17:35

Sorry cross posted there!

FlaminNoraImPregnantPanda · 17/12/2012 17:35

Dozy there's no email address included. I've just emailed the autism unit in the hope that someone is around, but I'll have to at least wait until tomorrow for a reply now.

OP posts:
Onebadbackandalostpelvicfloor · 17/12/2012 17:36

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DozyDuck · 17/12/2012 17:36

Trueblood she has a disability. None of the support is to do with being pregnant. How rude!

trueblood1fan · 17/12/2012 17:37

sorry xpost but can you not rely on friends-family??!! ss have their hands full im afraid.

DozyDuck · 17/12/2012 17:37

Onebad no she wants support because she is finding it hard to cope because of her disability! If she couldn't walk and wanted a ramp she would also be entitled, but would you be so rude about it???

trueblood1fan · 17/12/2012 17:38

yes it was rude but i agree with onebadback.

Onebadbackandalostpelvicfloor · 17/12/2012 17:38

No she wouldn't. There are strict rules in place about access ramps. Very hard to get one of those.

FlaminNoraImPregnantPanda · 17/12/2012 17:38

erm, what "free" support are you wanting & i presume you planned this pregnancy so support yourself?!

That's a bit vicious and uncalled for.

OP posts:
DozyDuck · 17/12/2012 17:38

Trueblood. There are different sections of social services. One section is for helping adults with disabilities. They have their hands full with people like the OP

Lovecat · 17/12/2012 17:39

First sentence, second paragraph. "I need a little bit of support in the home"

That's 'need'. Not 'want' or 'feel entitled to'

Trueblood I have reported your nasty comment, you have form for disablist remarks, what exactly is your problem?

Onebadbackandalostpelvicfloor · 17/12/2012 17:39

A lot of needs are actually wants.

DozyDuck · 17/12/2012 17:40

Flamin. Have you got anyone at the hospital or elsewhere that can help you with the legalities of all this?

DozyDuck · 17/12/2012 17:41

She wants to be independent. Autism is fucking hard to live with. How about instead of starting off on the attack of someone with a disability needing help you listen to them first. I am absolutely disgusted. I am so sorry OP for the way you have been treated by other humans on this thread Sad

Onebadbackandalostpelvicfloor · 17/12/2012 17:43

And a lot of people with autism are high functioning and can successfully run a home with the help of some universal services. Whilst she is going through the courts (which baffle me so not sure how she's managing that) perhaps she can implement some self help or ask social services to put her in touch with the universal services in her area.

crashdoll · 17/12/2012 17:43

Yeah exactly onebadback I mean does anyone need to walk?

cory · 17/12/2012 17:44

What truly bizarre reponses on this thread. Confused

DozyDuck · 17/12/2012 17:44

Flamin I hope you don't mind, but I have reported your thread to see of it can be moved somewhere a bit less.... Unreasonable