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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to be fed up with how hard it is.....

19 replies

threesocksmorgan · 24/11/2012 22:22

dd is 17 and severely disabled and in a wheelchair.
recently she has got a new seating system and 2 new wheelchairs. great.
except the manual one is so wide it won't fit through "normal" size doors.
so on visiting mil today, me and dh have had to lift her so much I feel 100.
on top of that I couldn't park the WAV in the disabled bay outside mil's house as WAV is massive and a car was parked way to close to it...so the WAV wouldn't fit and allow the space for the lift....
we have to have a massive WAV as we can't use buses and dd needs to have her personal care dealt with in the WAV(tinted windows so very private)

can I just scream

OP posts:
Glitterknickaz · 24/11/2012 22:28

You can indeed.
It's really hard. Then when you try to vent about stuff you get derided and disbelieved x

Punkatheart · 24/11/2012 22:31

Of course you can scream. Shouldn't be this bloody hard for you.

KEB123 · 24/11/2012 22:33

Scream away, that must be so hard. Big virtual hug and G & T coming your way xxx

Softlysoftly · 24/11/2012 22:34

That sounds awful, and it's not helped by things that should make life easier (wheelchair) actually making them harder.

Go scream into a pillow, have a well deserved weep if you like then do something nice for yourself.

Tweasels · 24/11/2012 22:35

Ok,
I doubt anyone will deride or disbelieve threesocks.

Sounds like a really shitty day. Great that DD has new chairs but can't believe they weren't designed to fit through standard doors. You'd think this would be exactly the type of thing they'd think about.

I'm sure the people who parked too close did it innocently but it must be very frustrating. Sadly although we've come a long way in becoming an accessible country there is still a long way to go.

New day tomorrow eh.

threesocksmorgan · 24/11/2012 22:36

thanks
I am a positive person and dd is a delight, but sometimes it is like banging your head against a brick wall.
I was so pleased with her new powered chair.....then it didn't fit in the lift in our house.... so more manual handling.
we get respite....but chances are that will be cut when she moves into adult services....
add into it all that she is seen as a non person

OP posts:
EndOfTheRoad2011 · 24/11/2012 22:37

If u push the council they should be able to make the standard disabled bay longer turning it into WAV space. Not all councils will do it though.

threesocksmorgan · 24/11/2012 22:37

Tweasels you should have seen the parking seriously....small road and 2 cars with massive gaps in between, I realise that the parkers were not to blame, but it just added to the hassle .

OP posts:
GlitterySkulls · 24/11/2012 22:39

scream, shout, rant away.

you've had a crappy day & whatever helps, do it :)

Tweasels · 24/11/2012 22:46

My mam was in a wheelchair. I've seen some exceptional fuckwittary so I have a small idea of how it feels although I know it must be so different when it's your daughter.

I've actually scratched someone's car with my key deliberately when I was unable to get my door open wide enough to get mam in. And that was in a disabled parking space. I'm very ashamed of doing that now but I was just so angry at the time.

Rant away, and remember that the reason you feel this way is because you're a good parent.

Softlysoftly · 24/11/2012 22:46

Or you could have left a snotty passive aggressive note on the parked car, a bit of lashing out nicely always helps cheer a shitty day :)

threesocksmorgan · 24/11/2012 22:51

thanks for all being so kind, I just sometimes the world would fit round her needs instead of the other way round.
it annoys me that a visit to her much loved nans is so difficult. it shouldn't be.
she loves it, her nan is lovely and old so we have to make the most of her.
I do have dd's school OT looking into a different manual chair....so fingers crossed.
it isn't so bad when ds comes as he just lifts her...but that is going to hurt him long term(he is 20) and isn't good for her.
doesn't help that no one in the family see's how hard it is and helps....
(oh hang on they don't see mil anyway)
god I am moany.....
please someone change the subject

OP posts:
threesocksmorgan · 24/11/2012 22:52

Softlysoftly luckily they bove went in the end, so at least I could move the WAV into bay, so we could load easier.

OP posts:
Punkatheart · 24/11/2012 23:09

If you ever need any help writing letters/making complaints - let me know. I would be only too happy to help...

threesocksmorgan · 24/11/2012 23:10

aww thank you, I am lucky that I have a good transitions SW and dd goes to a brilliant sn school that help alot. but thank you for the offer.

OP posts:
Jingleflobba · 24/11/2012 23:42

I used to live near someone with the same type of car you are describing I think, if the WAV has a lift at the back? They had a big bold sign on the back window stating that they needed space for a wheelchair to exit the car, I wish I could remember the wording, it was polite but very much to the point! No car would park within 6 feet of the back of it. It shouldn't be needed but might help you.
Am currently stocking up for Christmas so I can offer you the drink of your choice and lots of chocolate xx

AlbertoFrog · 24/11/2012 23:59

Nothing helpful to say but didn't want to read and run.

Thanks to you.

Oh or maybe you'd prefer Wine

threesocksmorgan · 25/11/2012 00:03

parking the wav is a nightmare.
most BB bays are too small. we can't fit in a lot of car parks as they have height barriers.

OP posts:
Mintyy · 25/11/2012 00:06

Yanbu. Can't imagine how frustrating it must be sometimes. Its so wrong! Poor you.

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