To think a Surgeon/DR should not say they will do something then another surgeon/DR say they don't do that treatment and to make a formail complaint?

[ImPeppaPigOink]

Hi I have been getting treatment for an illness for a few years now.

I've seen a number if Surgeons for Surgery. I was then transferred to another hosputal to get a second opinion from another Surgen as I was not happy with my last Surgeon and the relationship broke down.

So last November I met my new Surgeon. He seemed nice and willing to treat me. He ended up doing a test to see if the headaches were my illness, migraines or through overuse of painkillers.

The results were overuse of painkillers so he took me off them.

In December I was still getting severe headaches. I ended up getting sent back to the day ward. The Surgeon said it was migraines and he got a second opinion off another Surgeonas the sight where I had Surgery was really sore. The othe Surgeon ( lets call him B) said the oain was pycological and he recomends a full mental healthassesment.

I had my assesment in January this year off a psychiatrist who worked with me when I had severe PND. The results showed NO MENTAL HEALTH PROBLEMS.

I ended up going back to the Surgeon in February. The surgeon said " I will look into things".

I got no better and went back in may(after phoning daily as I was vomiting, severe headaches, sore neck, bright light hurting my eyes this went on since april) the Surgeon decided to do a Lumber Puncture, it showed my illness had deteriated and the previous Surgery had failed. As the Surgeon had to go to a cobference he told me B will see me after the LP. Iwasnt happy as B never helped in the past ( when I was phoning from April to May he told me to drink water or Energy Drinks).
B came to see me and he said it was psycological (even though there was proof of my Surgery failing.

I left feeling low and upset as I knew the problem with leaving this illness.

The next week I phoned my Surgeon and he told me to come in for a check up and he will discuss next steps. By now I was desperate, I wasnt sleeping and in severe pain.

I went to see my Neuro and Surgeon, the Neuro recomended a revision on my shunt. My surgeon agreed it will be the best course of treatment. (finally I felt like I was getting somewhere)

I was told by my Surgeon that he will contact me for a pre op assesment when hes cleared his theatre list a bit.

I ended up failing pregnant. So I told my Surgeon to save him wasting a pre op appointment. My Surgeon said " when you are 12weeks I can operate,I will see you after my annual leave at the end of August"

I got on with the pregnancy and went to my other appointments (eye dr, neuro) my eye DR saw swelling at te back of my eyes (sign my illness is playing up and I could lose my Vision if its not treated) My eye DR told me to phone the Surgeonsfor them to check me over.

I phoned my Surgeons secretary last Wednesday and she said "MR XXXX is still on Annual leave I will get another Surgeon (lets call him C) to see you tomorrow on the day ward".

I went to the day ward last Thursday to see C. He agreed that there was swelling at the back of my eyes he also said it never goes but as I see my eye Dr 8weekly the eye DR had not seen the swelling for nearly 11 months C said he will get a second opinion off B. I wasnt happy as I feel B does not listen to me and only focus on my past PND. I had no choice but to agree. I sat back out in the waiting room for 15mins until B came.

B called me into the room where he checked my eyes. This time he couldnt see any swelling. B asked me what I want as I'm always wasting their time and hes quite fed up. He believes my problem is psycological. When I explained my mental health is fine and my GP agreea with the psychiatrist. I then went on to say that my aurgeon was going to revise the shunt. B shouted at me and told me to stop lying the Surgeon would not say that as he does not do them.
Isaid the Surgeon did and Dp heard him. I was called a liar and I need a menral health assesment doing ASAP.

I was getting upaet as once again B has used my past mental health against me.

B then stormed out of the room saying the Surgeon will not be seeing me again. So that means you will go blind and in a horrible amount of pain and never able to give birth through the risks.

I'm still upset about it.

So AIBU? to make a formal complaint as I feel the Surgeons have made me worse since last November and have lied to me since then aswell as the attitude off B?.

I've now not got a Surgeon and scared of the same thing happening again if I go to another hospital.

Sorry for any spelling errors I'm using my phone and its hard to type on.

Thank you for reading.

Have you spoken to PALS?

You need some support, it's hard to get what you need from the NHS sometimes.

good luck.

Fucking hell he sounds a disgrace. Complain and take it as far as you can, he doesn't sound fit to work with human beings when they are at their most vulnerable

I've spoken to PALS and they have said there is not much they can do as the Surgeon is refusing to see me.

But the Surgeon who I'm under is still in Annual leave and not spoken to me since May.

If you have a shunt in place, surely he's being negligent by discharging you and refusing further surgical input?

YANBU to complain. Can you contact the other (holidaying) surgekn's secretary and find out when he is returning and ask to be seen by him?

Do you have the means to have a consultation with a surgeon in the same field on a private basis? You can be referred back to the nhs for any treatment.

Yes I have a sunt in place for all the use it is.

The surgeon who I was under is back next Tuesday. I was supposed to see him next Wednesday.

I don't have the means to see a Surgeon privately. I would love to see a private Surgeon but through the pain and other problems I'm reliant on full benefits including DLA, DP gets Carers Allowance for me.

Complain to the GMC

I've emailed my MP I'm just waiting for a email/call back.

DP and I are both getting fed up as the pain is making it unbearable for me to sleep. I'm only allowed Paracetamol through the pregnancy. I'm hoping the Obstetrician will help me as she said she might be able to get Codeine prescribed but as the Surgeons never likes me taking anything my GP wouldn't issue it.

DP is going to phone the Holidaying Surgeons secretary next Tuesday to see if he is still going to see me. I'm not asking for much I'm just asking for the treatment that I should be allowed (Shunt revision or regular Lumber Punctures) to be able to live a normal-ish life.

Don't wait until Tuesday to phone the secretary, phone today. Then if it is not what you want to hear you can get your GP to contact them.

I am confused as to why you are the one having to do all the ringing and running around, surely it is the norm for the consultants/secretaries to liaise between themselves.

Everytime I phone when the Surgeon is not there I get told to either phone back on whichever day hes back or the secretary would speak to another Surgeon who is the B or she will get him to phone me back which he never does.

I've always had to do the running around after the Surgeons, the only DR's they speak to is the Neuro's or my Obstetrician who faxes the Surgeons after my appointment with her.