to be really pissed of my DR is an hour late!

[lola88]

DS is lactose intolerant so gets prescription milk has been for 5 months now he is 6 months i have to start weaning him on to milk, little by little in 6 weeks try him with one bottle of normal formula (once he is used to milk in his food) so that all fine.

Yesterday i phone the DR to order his repeat prescription to be phone back and told the DR has cancelled it because he's 6 months and needs weaned from it! I had to explain to the receptionist the ins and out of why this was wrong before she would make me an appointment for the DR to phone me so I and explain it to the DR. So spent all last night wondering how the DR can think wean at 6 months means stop dead called HV to confirm i'm right she told me no way was i to put him straight on to 5 normal bottles a day it would make him really ill tell DR any problems phone back.

So now i'm sitting waiting for the idiot DR to phone for my 9.15 phone appointment so i can tell her how it bloody works i can actually feel my blood boil with every min that goes by. I timed DS nap to go down for 9.45 so i can get showered and go out for 11 now i'm not going to be able to shower until he's up and will be late!

sorry for the rant but i'm so annoyed this is not the first problem i've had with this DR they 'forgot' about is last week and we had to wait an hour n a half with a starving DS in the waiting room!

Still no phone call.

pmsl at "Have you got a lactose intolerant baby penis?"

SarkyWench

Im saying that people tend to listen to their doctor. And trust them. As that is what they are there for.

The OP is being blamed for not going against her doctors advice and reading up. Even if she did want to challenge the advice her doctor is difficult to reach.

When my DD was 6months I was pretty busy. You know, looking after her. Getting over sleepless nights. I would have followed my GPs advice too.

And go back to the specialist and tell them even small amounts are making the baby ill

You can buy soya formula can't you?

Yes KRUMBUM, you can buy Soya infant formula and a number of other lactose and/or cows milk protein formulas without prescription.

We tried some of them before putting DS4 (21 months) on Goat milk (full fat, not skimmed of course). Mostly, these formulas taste bloody awful. Goat milk OTOH is very similar to human milk (a much, much better match than cows milk).

Our older 2 DS (now teenagers), were put on Infasoy for the same reason (couldn't take cows milk), but I understand research now suggests babies should not have soya formula - firstly about 20% of babies allergic to cows milk also react to Soya and secondly, it is full of eostrogenic compounds which may harm the development of the reproductive system especially in boys.

• cows milk protein FREE formula

I didn't call her ridiculous, I said the advice given was ridiculous.
And yes, I think if your baby has a serious condition you can find the time to give in a google and learn about it.

OP asked if she was BU. She was. And so is her doctor if indeed this is the given advice. OP clearly needs specialist advice. But if she wants to be spiky and rude instead of listen to those who know a lot more about it than her, thats up to her.

I've had similar problems with DRs, when my son was born I attempted breastfeeding for several days and got no where (midwife was pushing for bottle feeding due to me being young and inexperienced, GAH!) So I ended up putting my son on formula. He became very ill very quickly and wouldn't settle after a feed at all. Me, my brother and sister were lactose intolerant from birth and with my mum's advice we decided my son must be the same. I spoke to the midwife who agreed it was possible and advised DRs appointment. The doctor told me that I was to feed my son the normal formula then take his nappies to the dr and write down all side affects for a week. I was so annoyed! I understand that they needed all information but my son was around 2 weeks old and it was so unfair! I decided to put my son on soya milk and ignore docs advice. He settled very well on it and we had no more health problems. When my son was around 5 months old we went to baby clinic for weighing and prodding as usual, the HV on duty told me I was harming my son by giving him soya, making him infertile and it was child abuse!! Needless to say I changed docs and have weaned my son onto cow's milk over the years. He is now 4.5y and has no more lactose problems! You know your baby and when he needs. Your the best judge the majority of the time so go with your gut and by the formula yourself (and yes I know how ridiculously expensive it usually is compared to normal formula) if it's any help I use to buy in bulk online!

Goats milk has more lactose than cows milk, only use for a cows milk protein allergy, not a lactose intolerance which is not an allergy.
For lactose intolerant babies the best formula is lactose free cows milk formula.

taboots advice goes to show why you need a specialist, since her theory doesn't add up. If you have true congenital lactase insufficiency, which is from birth (which is very very rare) you cannot digest lactose at all, and cannot grow out of it. The fact that her child is on cows milk at four years old means he did not have that condition, since its lifelong.
He might have had a different issue, but not that one, its not physically possible.

Don't self-diagnose, its dangerous. Get specialist advice.

Yabu to be angry your dr is running late, it's frustrating but normally means they are busy with other patients.

Yanbu to not be happy with the advice you have been given, but like has been suggested do some research so you can approach your GP showing you know what your talking about and why your not happy to start weaning him off the milk yet

But penis, most people who are "intolerant" to cows milk do NOT react to Goat milk....... I know this may actually be related to alpha S1 casein protein allergy/intolerance (not found in human or Goat milk), which gives the same symptoms as lactose intolerance.......or it may be because goat milk digests more completely than cows milk...... it's just by trying the stuff for a few days that you would find out if it was ok for a particular person - the abrupt change in my DS4 within 24hrs of switching to Goat was amazing (from screaming clingy and obviously in pain to being calm and happy).
Look at the nutritional profile of Goat milk - much, much closer to human milk than cows formula and with more calcium and other important nutrients than cows milk formula....... so that's why I think natural goat milk is a better milk for human babies than processed, altered cows milk (or Soya milk) PROVIDED of course that the child is not one of the very few people who can't tolerate goat milk .

Hence why I said intolerance and not allergy. An intolerance is something that can be worked up to conquering, an allergy however isn't. My theory doesn't add up? It's worked for 24 years for me and 4.5 for my son. Sorry it doesn't fit your criteria Penis

allergies and intolerances are completely different things, you can't lump them together.
Lactose intolerance is far more likely that an alpha casein allergy, so for the majority of people goats milk wouldn't be any use at all. Most people who are intolerant (doesn't need the ", its's a real and serious thing) to cows milk are intolerant to all lactose containing milk, since lactose intolerance is far, far more common than any milk based allergy.

AS I said, for anyone who is diagnosed (not half-arsedly self diagnosed) as lactose intolerant, goats milk is no use either.

People claiming lactose intolerance without basis are like those who clain allergies when they have none, it makes it much harder for those of us with children who have real problems.

No, that is not true taboot. An allergy is an immune response, an intolerance is to do with digestive enzymes and the like. Congeniatal lactase deficiency is a serious and rare autosomal recessive disorder which you do not grow out of. That kind of intolerance is not somehting that can be conquered, since you lack the genes to allow you to break down lactase. You can't grow new genes by giving milk later on.

It's not my criteria, its in medical textbooks. It's scientific fact, not an opinion. You self diagnosed and were wrong.

Can people try and understand the difference between allergy and intolerance? And the fact that intolerance does not mean it is any less serious? Lactose if you are severely intolerant can make you very, very, ill.

I highly doubt I was wrong to put my son on an alternative milk after he was having such problems with the other, as that is basically what it boils down to. I respect your opinion and was just sharing mine. Hope OP's baby is healthy and happy and you get everything sorted (I would be peeved too lol).

Why do threads always turn into who's better than who? I see myself as a good parent with my son's best interests at heart as I'm sure do all parents/grandparents on here. We doubt and judge ourselves enough through without others doing it too. I'm sure you're right Penis, I did what was right for my son at the time as I will continue to do.

I didn't say you were. I'm saying that you were wrong in your explanation. It is not OPINION, it is Fact that your child could not have been lactose intolerant at birth and then grow out of it by now. Both you and your partner would have had to have the gene for this and its not something you grow out of. It is simply not possible.
They could have had any number of things that made your choice of formula a good idea. That is entirely up to you. I'm merely looking to correct misinformation which is detrimental to those of us with children who suffer because people think and intolerance is nothing compared to an allergy, and give them an ice cream.

its not who is better than who. can't you understand that some things are fact and not opinion?

YABU.

Yes your baby needs the prescription, but the original problem has been sorted and he will get the prescription. You might just have to wait a little while, but that's a small price to pay for free food for your baby and free healthcare.

Get over yourself.

Well I thought Penis was a little harsh to begin with but I've learnt a lot from her posts.

Taboot - the stuff about soya milk and the effects on boy's reproductive systems is well knows so your HV wasn't being unreasonable to point that out.

OP - hope you got the prescription and get to see a specialist soon to get everything you need clarified.

Also sounds like Penis could point you in the way of some useful info [now shake hands please nicely]

I probably am a bit harsh but I really get sick of the nonsense talked about this subject. It's not like its difficult to learn about, if you stick to reputable sites there is a wealth of information out there readily available.

Google and stick to the real medical sites, the american ones are good.

I can imagine its very frustrating.

I was using the "" because I am well aware of the difference between allergy (immune response mediated), and intolerance (primary {as in congenital} or secondary {for example after illness})......... but in the real world, "intolerance" and "allergy" are used to mean any kind of reaction, firstly it can be hard to actually reliably diagnose allergy/intolerance to a substance with skin test etc, an exclusion diet or a change of diet which gives a marked and reliable change in digestion is a DIAGNOSIS that a substance is causing problems for a particular individual and then they can avoid that substance....... this can be an easier, cheaper and faster approach than waiting for genetic testing, blood testing etc.

With my DS4 we reintroduced cows milk several times with at least couple of months in between....... his reaction to it has been the symptoms each time, so to me it doesn't matter if he is allergic to a particular protein or intolerant to a particular sugar - if he is off cows milk, he's happy..... and goat causes him no problems at all........ and this is the case for many other kids who switch from cow to goat.

Congenital lack of lactase is very rare..... but reactions to cows milk are VERY common, that's why we are advised to give no cows milk until our kids are 1yo, all cows milk formulas are industrially altered to make them more "human", but lots of babies still have problems digesting it - worth remembering, cows milk is a completely unnatural food for humans to be drinking/eating . Goat, is too of course, but it is much more like human milk.