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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to fucking hate this monster

7 replies

FarloRigel · 11/06/2012 12:49

This week is International Neuroblastoma Week. Two of DD's friends have been fighting this for the past three years. It is the second most common solid childhood cancer (after brain cancer) but despite 100 kids developing it every year, most people have never even heard of it.

Couple that with the fact that most kids are not diagnosed until it has spread widely and at that stage the prognosis is much worse and that due to the lack of treatment options for relapsed disease in the UK, many parents are forced to spend hundreds of thousands of pounds seeking treatment abroad if they want to try to save their child if they relapse.

I have watched these two beautiful girls fight like hell for their lives for years now, one is doing well and in remission but the other is still fighting for her life having private treatment overseas and cannot remember a life before cancer. I hate this monster of an illness and what it is doing to children I know and love.

Please, this Neuroblastoma Awareness Week, visit this site and make yourself aware of the signs and symptoms so that if a child you know becomes one of the 100 children who will be diagnosed with Neuroblastoma this year, they have a chance of being diagnosed fast enough to have a good prognosis.

www.familiesagainstneuroblastoma.org/

Also, if you have another five minutes, please visit my DD's friend's page, send £1 (or more if you can) and you can leave her a message of support here.

www.justgiving.com/olivia-downie-appeal

OP posts:
everlong · 11/06/2012 13:13

This reply has been deleted

Message withdrawn at poster's request.

Cassettetapeandpencil · 11/06/2012 13:28

This reply has been deleted

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Loonytoonie · 11/06/2012 13:29

I feel your pain. Awful, horrific disease and it scares the life out of me, especially after nursing my Dad through end-stage and holding his hand as he died. But for children to suffer like this? Terrible. Just so terrible.

Off to look at your links. Prayers for these little girls.

Stinkyfeet · 11/06/2012 20:16

YANBU Farlo. I hate that this monster has come into our lives, and the nagging feeling that it will never leave us - even when active treatment is finished Sad

FarloRigel · 12/06/2012 13:26

Thank you very much for all your good wishes. Loony I am very sorry about your Dad. I know cancer survival rates are rising but I so wish it was happening faster.

OP posts:
mummylin2495 · 12/06/2012 15:38

have donated by text,would be wonderful if this worked for her.

holidaysarenice · 12/06/2012 15:42

I saw something on fb about this. You are right that little is known to the public about it! Well done for raising the profile

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