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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To try and claim DLA? Dont shout!

53 replies

WhiteTrash · 17/03/2012 21:25

Do you know what I think I already know IABU Ive already about people on here who have an elderly family member who desperately needs DLA or someone who needs it who for some daft reason isnt getting it.

And I doubt we'd qualify.

Except I really dont know what else to do.

My son is 10 months old, he had his first anaphylactic shock to milk at 5 months. It wasnt as simple as just using adrenalin though, he suffered with painful and itchy urticaria for 2 months after. Its likely he will get this everytime he eats anything milk based.

Since the first anaphylaxis he suffers from asthma (had to call an ambulance recently, Im from a family of asthmatics, my eldest is too, so I recognise when it gets serious). Awful exzema all over every inch of his body. Constant ear pain (narrowing of his 'ear tubes' apparently a typical sign of an allergic child', which means laying flat is difficult because of the added pressure.

He claws at his face, head, ears a LOT (always covered in cuts) because his head/face itches and his ears hurt.

He wakes 8 (which is a good night, a rare night) to 20 times a night. On times of 20 I dont sleep at all. On those nights I lay there and count to 15 between his waking.

His reactions are weekly, despite our home being an allergy free one. So I simply cannot have him at a nursery.

I want to child mind but dont see how I can while all the reactions and hospital appointments are going on.

We spend a fortune with hospital appointments (allergy specialists, dermatologists) and DP has to take time off work to get us there (if I cant get a train- eldest schoo pic ups, appointment times etc) and hes self employed so, losing a days wages, petrol money, etc.

Basically, we are so fucking poor I could cry. Fucking hell I do cry, and whats worse is I DONT KNOW WHEN IT WILL GET BETTER.

'They' have no idea. Any hope of me working has gone out the window. DP's wages in the last year were dire (self employed, it was just a Bad Yea because of the economy).

I doubt we'd even qualify for DLA but am I bastard for applying? I know its possible for allergies, I just read on here too damn often about people who sound so desperate for it, it just makes me ache.

Rock and a fricking hard place.

OP posts:
fanjoforthemammaries7850 · 18/03/2012 10:56

WhiteTrash..we used bandage garments over Epaderm, with steroids almost every day.

At the moment we just use Epaderm and Dermol and hydrocortisone for flareups.

She is allergic to polyester..I think that was the one that made her skin so bad when she was a baby as so many things are made from fleece and velour.

Also eggs, fish, peanuts, lentils, peas and beans and possibly soya, hasn't grown out of any of them so far :(

MABS · 23/03/2012 08:42

Whitetrash - go to Amaze charity in BRighton to help you fill in forms, they are really good. good luck!

Mrsjay · 23/03/2012 09:03

Please apply for DLA for your baby I do know it used to be given to children over 2 though that may have changed , your baby is disabled by his illness and you have out of normal expenses for him apply the worst they can say is no , and then you appeal the No , Im not sure if childminding would suit your familiy ATM maybe when your baby is older ,

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