I have had bad and good experience with the NHS,
When I first diagnosed with my brain disorder, I was sent to one hospital (I never had a choice which hospital it was as it was an emergency) and the DR's there did a Lumber Puncture without numbing me first, it totally stung like fuck, the worst pain I have ever felt, especially as they hit every nerve in that area.
I had to go back a week later for a repeat Lumber PUncture, I was so nervous after the last one I kept tensing up, The Neuro numbed me then tried to do a LP but as I was tensing it hurt more. So the Neuro pinned me down and did a LP. My DP could hear me screaming out in pain down the corridor, there was nothing he could do to stop me being in pain. They stopped the LP as the ward manager thought I was making to much noise.
4 days later I had to go back (by this time I was losing my sight by just going from standing to sitting and vice versa) The tried the LP again, once again I couldn't handle it with fear, it took 15 attempts to try abd get a LP done. including pinning me down once again. They never got it done so I got introduced to my first neuro surgeon.
The neuro surgeon burst into the room and said "I'm xxxxx and I will be outting a shunt in tonight as you are going blind" I was petrified so I burst into tears and said "I can't let you do that tonight, I cant let you touch me"
So the surgeon sais "Ok you can go home tonight and come back tomorrow for surgery either tomorrow afternoon or Sunday"
I went home and arrived back the next day. Surgery went ahead on the Sunday all was fine and I went home on the Monday.
A few months later my symtoms returened and I was told they can't have as I have placed a shunt, it still working (al l without the surgeon seeing me) It took a year before anyone would see me, in that time I ended upo partially sighted.
I then got told I needed another LP. A surgeon tried and she couldn't get it done. So I was sedated, it never worked,. I was sent home.
A week later I was told I would be having a LP under General Anesthetic. It got done and it was showed I had very high pressure.
I was told I would need another surgery,
The surgery was planned for a few months later. In the mean time I was ina gony and losing more and more sight.
I went to my pre-op assesment and got told it would be another LP shunt and I would most likely need a new shunt placed a year later.
I was not ahppy and asked if the surgeon could take the old shunt out and just leave me to go blind as I am was going to go blind anyways.
I was told "NO"
I was told to go home and think of what I wanted. On the way home I ended up getting phone calls from my neuro who was begging me to go back in to hospital. For the next week I had phone calls constantly all day and night by lotas of DR's and Surgeons.
I finally agreed to go into hospital to discuss my options. I was told "If you fon't allow me to place a new LP shunt, I will send you home and allow you to be in pain, as the shunt will carry on coiling and not stop until it strangles your organs. If you alow me to put a new LP shunt in I will convert it to a VP shunt in a few weeks. " I had no choice but sign the concent forms.
I had surgery the day after.
2 hours after surgery I was back on the ward and I asked for some pain killers as my cuts were sore. I was tolf "your being unreasonable, you have already had 1 paracetamol you are getting no MORE, STOP COMPLAINING" this was by my surgeon.
I asked to see someone else, so the Surgeon put his hands in the air and as he brought them doen he caught my cannualas and dragged them out of my hands and my central line out of my neck was also dragged out. It hurt loads. I then burst into tears with the pain and the seeing the blood fly all over. I said " I want to go home"
The surgeon then left the ward and I met the Duty Surgeon and he tried to bribe me to stay, If I stayed I was allowed morphine. I said " I want to go home"
I finally got home 5 hours after surgery.
The next day the surgeon discharged me.
It took 4months of begging my GP to get me back to a new surgeon. As I was in a lot of pain and having loads of problems
I ended up changing Gp's. Then I got my new Surgeon.
The best thing I ever did.
I was diagnonsed with another illness that could have killed me if left untreated.
I had my 3rd and 4th Brain surgery in Novemeber,
I also found out that the old hospital could have done a LP under Xray. Just like my new surgeon. But they wouldnt.
There is times I would like the NHS to be changed then I think about my Surgeon now and all the help he is giving me. (My old Surgeon also does Private Clinics, my new Surgeon just does NHS) If it was not for my new Surgeon and the NHS I would have been dead now.
The NHS has bad and good points but I am so pleased we have a NHS.