DS is back in hospital for routine treatment, he has a portacath (easy access for veins) for Intravenous Antibiotics. He also suffers with extreme needle phobia due to years of hit and miss medical care. They needed bloods from him and weren't able to get them in the usual way (by bleeding the portacath back) so they used a butterfly needle.
Now the nurse who was on knows our DS extremely well and suggested sedation, which was rebutted by the paediatric registrar who insisted it not necessary. I said if they wouldn't do this he would need holding down and would try every tactic in the book, with offers to help - a delaying tactic, or talking to the doctors about everything and anything. He also lashes out and screams if not in control of the situation (he is back to his lovely self as soon as it is over).
Well the doctors told me they knew best (despite having a patchy history of DS) and when they were trying to get blood he was doing all of the above. And the doctors, despite the nurse and I telling them what DS would do, ignored it and tried talking to DS, thereby delaying bloods. Then when I said just take blood, he began to lash out, which led to the doctor calling him a mean bully, telling him off for kicking them (i warned them to hold his legs) and other such comments during the treatment.
Why don't they listen? They were the same earlier in the day, when taking his history. Constantly overiding what we were saying and telling us what was happening (we knew what was happening, it was routine treatment, and has been for the last four years!), didn't answer our valid questions and ignored some of our concerns that we wanted raising with the consultant. We have a long history of dealing with DS's conditions and do have more knowledge of it than some general paediatricians, so they should listen to us.
DS's behaviour in these situations isn't normal I'll admit, but we had progressed so well with months of counselling, and he deals really well with certain needles into the portacath. But this threw him and has undone all the work that we have had over the last few months. Plus he is due back next week for bloods which he has pointedly refused.
If they'd have listened it wouldn't have had to be like that but I'm so sick of 'know it all' doctors who actually know fucking nothing.*
*Disclaimer - not all doctors, just the majority of registrars we've met. New doctors, some registrars and consultants do listen and they are such a credit to the media, profession.