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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be so frustrated at the lack of sensible care for mil, im just getting nowhere.

27 replies

gigglepin · 06/02/2012 18:20

Me again, sorry,but i cant find any forums for folk going through this, dont know where else to turn.

Today bil managed tog et a Dr out to mil. So far they have spoken to her on the phone. It was not her GP, it was another Dr she has never met.

He px antisickness medication..which isnt fucking anti sockness, its omeprazole. She nowhas not kept anything down for 3 days.

He px decent pain relief..but she ran out this morning, so has had nothing until after 4pm tonight. She is in pain. He told her to not take any paracetamol, so she hasnt.

her appointment is later this week, she isnt well enought to traips there, but has had no definitive diagnosis, so wants to go to get this. She was discharged from hospital and told "we think its melignant melenoma in your liver, we have reffered you. Now she is acutely unwell, its clearly end stage & time for palliative team care.

GP has reffered her to macmillan, but she has heard absolutely fuck all from them either.

So, until she gets her diagnosis, and they tell her that there is nothing they can do, she is in limbo, bieng ignored and fobbed off and suffering.
Its so frustrating.

sorry, rant over, does any one have any advice at all if you have been through this yourself?
Thankyou x

OP posts:
pranma · 07/02/2012 15:23

Have you contacted the hospice yourself?It is probably worth you ringing MacMillan yourself too and explaining the situation again-errrr if you could cry/sob a bit on the phone you might get somewhere!I know it is ridiculous but my mum had multiple myeloma and was in agony-she was so brave but I allowed myself to go to pieces on phone to doc and she was admitted to a private room with an intravenous morphine drip which she could control.She died a week later but she died pain free.
Good Luck

gigglepin · 07/02/2012 15:28

I have phoned Macmillan, for advice.
Ive suggested BIl ring them.
I have now stepped back.

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