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AIBU?

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To be so upset about losing second lot of funded IVF treatment through no fault of my own

69 replies

Mightbethehormones · 01/02/2012 19:15

I am usually pretty unflappable but I am so upset tonight that I've had to post on here - and I've never posted on IABU before.

DH and I have been going through the infertility rigmarole for five years now. It has been a long and torturous process mainly because I had (non-fertility related) health issues that make everything more difficult before we started and then I was found to a benign pituitary tumour during the process that lead to us having to stop TTC while I was was treated and my condition stabilised.

I am now 39 and I have been very lucky in that my local authority grant women under 40 three funded cycles of IUI and two of IVF. I received most of the initial fertility assessments at my local hospital and then last year I was referred to a clinic that is about two hours' drive away for IUI & IVF. Every time I went to either my hospital or the clinic they would seem to have forgotten how old I was and when I brought it up they would seem surprised and say I looked young for my age - every BLOODY time. Usually this would be flattering but not in these circumstances as it seems to have affected my treatment.

It was agreed and written in my notes that I would initially try the less invasive treatment of IUI and would then progress to IVF. Sadly, IUI didn't work for me and when I brought up the subject of IVF before Christmas I was told it was 'too late' to go ahead with it now as I wasn't in the system and the clinic was fully booked up until after my birthday (which is in early June). This was despite me saying that I wanted to go ahead with IVF if IUI didn't work months back - and stating again that I would need to do this before June of this year when I was was forty. Then there was a cancellation and I was able to start IVF last month.

Today I went to the clinic and they couldn't find my ovaries (don't ask!) so I have to take six more days' worth of a higher dosage of Menopur and then they will scan me to see if there are any follicles. If not, the IVF will be cancelled and I was told very abruptly that I almost certainly won't get the second chance of IVF. I am so gutted as I had no idea that I wasn't on the list for IVF, I thought I would just progress to it after IUI - no-one told me that by continuing with the full three cycles of IUI I was putting my chances of IVF in jeopardy.

I just don't know what to do. Am I being unreasonable to put in a complaint. I'm not a whinger generally but I just feel so low that I have lost my final chance. I suppose I could be referred to another, larger clinic but it would be very short notice and I don't know if I would be any more likely to get treatment there either.

OP posts:
Mightbethehormones · 09/02/2012 17:19

Thanks everyone, really appreciate all the support. I had egg collection yesterday and they managed to collect six eggs and today the hospital says that five have fertilised. So chuffed! Embryo transfer tomorrow hopefully, we are hoping to have two put back. So, at the moment, things are good. Smile

OP posts:
BagofHolly · 09/02/2012 17:37

Wow weeeeeee! Fab! X

PopcornBiscuit · 09/02/2012 18:51

Great to hear things are going well so far. Good luck for tomorrow, please let us know how you get on!

FatimaLovesBread · 09/02/2012 19:00

Just read your thread and wanted to say good luck for embryo transfer Smile

Mightbethehormones · 11/02/2012 22:02

Thanks folks. :-)

Everything went really well yesterday. Out of the five fertilised eggs, four went on to develop properly, three were high grade and one slightly less high grade but still good. We had two put back and two frozen for future use if necessary.

The most amazing thing was seeing the embryos on the screen, they were beautiful. The worst thing was having to have a full bladder through the procedure, I was desperate for the loo when I came out! Just got the awful waiting game now.

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BagofHolly · 11/02/2012 22:09

So now you're PUPO! Pregnant until proven otherwise!

TheOldestCat · 11/02/2012 22:15

So glad everything went well yesterday. Fingers crossed for you.

piprabbit · 11/02/2012 22:26

That is wonderful news - I'll be keeping my fingers crossed for the next couple of weeks.

giraffesCantDonateBoneMarrow · 11/02/2012 22:29

fingers crossed

diddl · 12/02/2012 08:40

Sounds good so far.

Hope it all continues to go well.

DelGirl · 12/02/2012 08:48

Do you have an understanding gp? I was in a similar situation to you and discussed it with my gp who agreed to funding. However, before this I had to write to the the local health authority to state my case. I would suggest writing what you've put here but I wouldn't go in all guns blazing iiwy. I can see why you're upset but just calmly state your case. Perhaps your gp can also do something more???

good luck

DelGirl · 12/02/2012 08:55

sorry, just read the rest now Blush but wishing you all the luck in the world and hope for a bfp soon.

Blx2thelotofem · 12/02/2012 09:09

Good luck! I am pregnant after our third attempt at IVF.

Snowboarder · 12/02/2012 10:25

Best of luck Mightbe , let us know how you get on. Fingers crossed for a positive outcome!

Celestia · 12/02/2012 13:47

Wishing you all the best xx

Mightbethehormones · 25/02/2012 13:08

Thank you so much to everyone who wrote and supported me on this thread when I really needed it. Sorry I haven't posted much in the last fortnight but the progesterone I had to take aggravated my existing condition and made me feel reallly ill so I wasn't up to doing anything much.

Sadly, this time our embryos did not stick BUT we have been very, very lucky and the clinic has had another cancellation right before my birthday so we will have another funded fresh cycle and we still have two embryos left from this cycle. FET at our clinic is only £1000 per cycle so we are going to go ahead with the fresh cycle and then fund our own frozen cycles (after I am 40) until either I get pregnant or we no longer have any embryos left.

The whole IVF process is such an intense experience with so many hurdles along the way but it really helped to 'talk' to other people who had been through it too, thank you and good luck to anyone who is going through IVF as well. :-)

OP posts:
EnjoyResponsibly · 25/02/2012 13:17

Mightbe I'm so damn sorry your embryos didn't stick. I know how that ending feels as I was there 5 times. Be kind to yourself, take a while to grieve and head into your next cycle.

Keep posting with your progress.

Panda1234 · 25/02/2012 13:29

Sorry it didn't work mightbe, I did 5 cycles before I got one that stuck and in the right place, and I'm 30 now. It's such a horrible thing to go through.

Remember it's a numbers game and the more you do it, the more chance you have of it working. And enjoy a couple of days off doing something nice with your DH - I used to either go out for dinner or go camping and get drunk after a failed cycle.

Mightbethehormones · 25/02/2012 14:51

Thanks Enjoy & Panda - glad you got there in the end Panda. Enjoy, that must have been so hard. I am doing ok, I think that deep down I knew it hadn't worked this time about five days ago so I have had time to prepare myself. I am really enjoying having my body back to myself for a bit - I can have a rest for a few weeks thankfully. Going to go and get my hair coloured in a couple of days as I have very long roots due to not wanting to dye it in case I was pregnant, so really looking forward to looking more like me if you know what I mean. DH and I went out for lunch yesterday and are just relaxing today, we are very lucky as we are very happy together and tend to pull together in a crisis and that helps a lot. :-)

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