to be genuinely really traumatised and a mess ?

[arsenicandoldlace]

DD has had two episodes where her mouth has dropped to one side as if having a stroke. agmongst other symptoms< such as dropping to the floor suddenly and without reason or warning.

she had an MRI on wednedsay but because she is only 12 months she had to be sedated< this involved force feeding her a foul tasting medicine, she screamed, she was so devestated. i had to hold her down while the nurse fed it to her, she was coughing and reaching. she kept looking at me as if to say " mummy what are you doing to me?". she fought the sedation with all her might, crying until she coulnt cry any longer.

Then, the MRI itself was awful. i didnt realise how loud they were! DD was strapped to the table and earplugs put in her ears.

She now refuses to go to sleep until she is so tired she cant stay awake any longer.

we are pretty sure its epliepsy. and, im so devestated.

fuckety fuck fuck!!!!!! DH is useless, ive got no family support, being thru some total shit this year apart from this.

I dont know how to be a good mum all of a sudden!

Thankyou so much.

Your right buxomwench i should take her somewhere great to overcome the awful time we are having! we have just been huddled on the couch together today watching maise's circus. But, im thinking a trip to the zoo tomorrow!!! it will do us both good.

she is also sleeping in bed with me, god, i couldnt bear to leave her on her own in the dark at the moment. Last night she woke up really frightened.

Hi, my DS is 5 and has epilepsy. He had to be held down by 3 people when he was 3 to have that horrid medicine put into him before his MRI. It was deeply traumatic for all of us and I was about 8 months pregant and crying hysterically. BUT DS is doing well now. He is on good medicine for him, is seizure free and he needed to get those tests (the MRI checks for brain damage/tumours). My son is leading a perfectly normal life.

I will admit that his diagnosis was a very bad time for us. I'd just had a baby and took it really badly. I was terrified for him. It affected our marriage and how I bonded with my new baby (poor thing). It is hard work but we are all getting there. I am waiting for counselling as part of my effort to come to terms with my son's medical condition but as I said, he is totally fine and a happy wee boy. It is me and DH who took it badly.

BTW, 50% of all kids with epilepsy do go on to outgrow it. HOLD ON TO THAT THOUGHT! And 70% of all people with epilepsy get total control of their seizures with medication. Good luck my friend.

BTW, go onto Epilepsy Action. There is a very supportive forum and you can gets lots of information from them.

Feel free to PM me if I can be of any help. I know how hard it is.

Just wanted to echo what everyone else has said and say that your most recent post shows what a good mummy you are to your DD.

You are not being AT ALL UNREASONABLE. You should weep all over everyone who crosses your path. And I mean that with all seriousness. There is nothing at all wrong with venting your feelings. You are understandably in a very uncomfortable place and trying to be brave and holding it all in will only make for bigger problems later. If people see that you are truly upset with all that has gone on with DD then hopefully they will step up to the plate and try to make going forward as stressless for you as possible.
HCP's can be rather 'straightforward'. If they understand the level of distress you are feeling then this can only help.
I really hope that things work out and are resolved as soon as possible with your little dd and that you get some positive news soon xx

Hope you get some good news - she'llhave forgotten the medicine really soon...

You are a brilliant mum and you're doing the very best to get dd treated. As the others say, she will forget this before long. hope you both get a good nights sleep.

Yanbu. It really does hurt us more than it hurts them, doesn't it? My son was terrified of needles and it took several nurses plus my friend and myself to hold him down for a blood test when he was 3. My friend and I were both crying and trying to hide it from ds.
Hope the test results are "good", hang in there!