Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think my potentially dying FILs wishes should be overridden

35 replies

SunshineisSorry · 28/05/2011 22:04

History: My FIL is a lovely man, he is 75 and has not been in good health for many many years. Lots of things, heart problems, arthritis, neuralgia - he hasn't left the house, apart from medical appointments for probalby 2 years now. In the past six months he had reason (weight loss i think) to have a colonoscopy - it was a horrid experience for him, proved inclusive due to inadequate prep (hardly surprising, its a nightmare) and he refused to go back for further tests, he is a bit of a hypochondriac (alot, i sympathise as i suferfrom severe health anxiety) and has driven himself to distraction with his home medical books. He has recently, in the past month lost hideous amounts of weight and feels very ill has taken to his bed, insisting that he is dying and forbidding anyone from calling a doctor. My DP and his family was convinced he was dying because he looks so bad (ive not seen him) and my DP has been in a terrible state about it all. They were convinced he wouldnt see the week out - well, this was three weeks ago and there has been no change. He is ill, in pain but refuses quite aggresively, medical help.

I am convinced that whilst there is clearly a "physical" ailment here, the principal problem is one of depression - i know from my own experience how crippling this can be. This man is terrified of going to hospital (even though this has changed, the slightest twinge before would have him calling an ambulance and kicking up a fuss if he thought he might be sent home - felt safer in hospital iyswim) and losing his dignity - i understand all of this but i have so many problems with this.

Firstly, how can his family just be expected to let him die (if this is what is happening) with no palliative care apart from what his mum and BIL (we dont live nearby - bil is brilliant) can offer him, but they dont know what they are dealing with. FIL is convinced he has cancer and wants to die at home.

How can i make him see that by refusing medical intervention at this stage, ultimately he is going to going to be in such a state than him going to hospital will most likely be the only option left, but if we can get some sort of diagnosis at and paliative care plan in place we can fascilitate him staying at home.

Secondly, what are the legal ramifications if he is left to die, i mean, he is being looked after well but no medical care, and is apparently like a skeleton, how can his family prove they havent just left him alone in the room to starve to death :(

My biggest concern is, and this sounds awful, but what if he isnt dying? Is his wife expected to care for him for an indefinate time? It isnt fair on her, or him - i think he needs a psychiatric assesment. He is paranoid about "going mad" my poor fatehr had alzheimers and he told DP that all he does all day is recite times tables and his date of birth to prove to himself hes not going mad, err, i think that sort of obsession suggests quite the opposite.

I cant make anyone listen to my concerns and probably have no right to do so seeing as im not the one having to do the caring, but i can't bear to think of him festering away like this when he doesn't have to. Yes, he might have cancer, and he might not have long to live, but he is fortunate enough to live in a society where his suffering can be alliviated to some degree :(

Ive begged DP to call a doctor but he gets so cross with me and says its not his place, he has asked his mum and begged his dad but they wont hear of it.

This situation cannot be allowed to continue but i have no idea of what to do to help :(

OP posts:
SunshineisSorry · 28/05/2011 22:53

razzle, my DP wont take me (cos he knows im an interfering cowbag and wont be able to hush my mouth) because DFIL doesn't want to see anyone, wont even see his grown up grandson and i can't take it upon myself to go, they are a significant distance away so i can't just pop in while passing iyswim

OP posts:
fit2drop · 28/05/2011 22:55

Sunshine you need to ring his GP. This is too much for you to carry. Pass on all the information you have. The GP will listen and then decide what to do. But at least you have passed on your concerns to professional people.
The GP may very well decide to send a Crisis team member to see your FIL who will the assess and make a decision which may or may not involve sectioning your fil. If FIL is thought to be "self harming(self neglect comes under this) or unable or unwilling to maintain his own health safety the they very well may section him on 72 hr section. During this time all of your fil's health needs will be looked at , not just his M/H. If once he has had a diagnosis and he can be managed at home they will let him home asap.
Once you have passed this info on to the GP or a M/H worker they will have a duty of care to do whatever needs to be done. This has got to be in the best interests of your fil. They will definately take his opinions into consideration, they have to, legally and ethically, however if they feel he is not "safe" they have to deal with it accordingly.
I am sure once your fil is diagnosed and on the mend he and your DH will totally understand why this needed to be done.
Explain to the GP fil's fear of hospital admission after the colonoscopy, which although not the most dignified of procedures is these days handled with care and consideration to the patients needs and dignity (or should be!) If it wasn't then a complaint should have been made .

I sincerely hope your fil gets a speedy diagnosis and recovers very soon.
His wife will need to be treated gently too as she is probably only doing what fil asks out of respect for his wishes, which without the traumatic experiences of the colonoscopy would probably be totally different judging by his history.

Its nice that he has a caring DIL.

ReindeerBollocks · 28/05/2011 23:02

I've just read my posts back and they 'sound' quite cutting. I ws trying to help, but not sure it reads that way.

I apologise. It isn't an easy situation, especially if the relationship between you and your DH is already tense. I hope you reach a decision that you are comfortable with, as it must be incredibly stressful at the moment.

SunshineisSorry · 28/05/2011 23:08

reindeerbollocks - your posts are succint and to the point, not cutting at all, i appreciate all the answers that i am getting here, they are as polorised as my feeling towards the whole thing. Please dont apologise i saw nothign upsetting in your posts at all

for now im keeping my nose out of it, from what i can guage of the situation, MIL is coping and it would seem that whist it is a shit situation it hasn't reached the crisis point that we thought it would have before. It is actually my BIL i need to talk to as i think it is him who should be the decision maker as he is the one who has had to do all the running around up until now. He is at a loss as to what to do, i think THINK he did have a conversation with his doctor about this or at least that was what was going to happen, i need to check on this as i would hate for the family to have to be questioned should the worse happen.

OP posts:
SunshineisSorry · 28/05/2011 23:10

fit2drop, i think the actual procedure itself, whilst probably awful wasn't so bad as the preparation - not being able to eat properly for days before hand, laxatives etc, without going into TMI it was pretty grim :(

OP posts:
vickster11 · 28/05/2011 23:19

If it was my dad and he was in pain then I would speak to him. I would say your my dad and I cant stand seeing you in pain so Im calling the doctor whether you like it or not.

fit2drop · 28/05/2011 23:23

Sunshine I know about the prep, had it myself not so long ago. Bland diet for two days then something called moviprep which was as you say pretty grim.
To be fair it wasn't as bad as I had expected, I foolishly googled and read peoples experiences of it.so was dreading it. But I can truly understand how an older person would have found this incredibly distressing .
I just locked myself in the bathroom for two hours with magazines Grin and had two or three baths after each ermmmm you know ....ermmm movement.... more like a tap but tmi Grin

But back to your fil ....please don't carry this worry, pass it on to professionals , this is unique to you but to the professionals it is an almost every day occurrence (sadly)

take care

SunshineisSorry · 28/05/2011 23:28

Thank you all for your replies, much food for thought here - there is no easy answer, i feel my hands are tied because i am quite removed from it all but feel frustrated with DP for not taking the stance described by vickster11.

OP posts:
Morloth · 28/05/2011 23:38

Because ScaredeyDog all of the people involved are adults capable of making their own decisions regardless of how they make the OP feel.

It is his body and therefore his choice.

Saggyoldclothcatpuss · 29/05/2011 01:15

With all due respect to you during what I'm sure is a very awful time for you and your DP, I read your description of your FIL, rightly or wrongly, as an elderly man, who is housebound, poorly, possibly hiding a diagnosis from his family, and probably depressed, and has little control over his life.
you feel the need to override his decision to reject medical treatment because it upsets you.. if you call in SS you take this last bit of control away from him.
I'm sorry if that sounds harsh, but I think the most anyone should do, is convince him to see a doctor just to verify his wishes.
Yes, you have a medical background, but I think you need to step back. Do you really feel that no other member of the family has tried to reason with him?
I know it's hard to stand at a distance and watch the situation unfold, and I'm sure that all the family feel as bad as you do, but I don't think you should get involved.

New posts on this thread. Refresh page
Swipe left for the next trending thread