To cry when a meeting is cancelled ?

[Oblomov]

I don't think it is unreasonabble.
I am having ds1(7) assessed for Aspergers / ASD. The school is being totally unsupportive. I arrange a meeting with head and senco. Dh and I get nowhere. So, I arrange a meeting with dh, head, senco, teacher, school link worker and pwp ( Partnership with parents). I am hoping that school link worker and pwp will support me and help me get somewhere with the school, that dh and i have been unable to do so on our own.

there is some confusion as to the time of the meeting. it is me who has to contact everyone to arrange. then re-arrange.
I ask to leave work early. dh does too. I have no one to look after ds2 so ask someone, and arrange with his nursery to pick him up early, plaaning to take him to this new pweosn, to look after him.
All day I am working at work, doing statutory accounts, when all I can really think about is this meeting.
And then at 3.30 pm I get a call. The Pwp lady cant come . her dd is ill. She can't come tot he meeting at 5pm. She was the one person I was counting on to be strong and support me. I ring school link and then there is some confusion at school and people start getting stroppy. And I am at work. And I begin to cry. I phone dh who has left work early, but he turns around to go back.
And yes we can re-arrange. But when you build yourself up to something. and then something happes outside of your control.
IT REALLY IS SUCH A PISSER.

reading the title I was thinking yes, yes that is a bit unreasonable

but having read your thread NO! no unreasonable at all. We also have a son with suspected/half diagnosed asperger's, and we also have a school who are a bugger to arrange meetings with, so you have my sympathy!

in fact, i was supposed to be meeting with them this afternoon but it was put off.

we can cry together

Yesterday, you have my sympathy.
I think its the expectation. the build up. when you know that something is coming and you are planning it for a month, and then it falls apart, I think thats hard for anyone, right ?

No thats not unreasonable at all. I'm going through the same process with my DS (albeit with a supportive school) and I cry after every bloody meeting. If they cancelled one I'd be 10 x worse.

Psssst. {{{hugs}}} Sucks arse, doesn't it.

Wow, that makes three of us.

absolutely. just when you think you're going to get somewhere it all falls down again.
and no-one else ever seems in a hurry to get it sorted.

it depresses me when I think that this is my life from now on, constantly fighting to get my child the things he needs

Glad you agree guys. God, this is so sad,that we are all in the same position. And the constant fighting is draining, yesterday, isn't it ?
But I didn't expect this to be an AS thread !!
seriously when you have expectation, going away, a party, a promotion meeting, or anythting, when you have real expectation, its hard, right ?

Yes it is hard, especially when its something so darn important. I know that before I have any meetings I read and re-read the documents, go over and over in my head what I'm going to say and can't think about much else. To have it cancelled at the last minute, especially when you've had to do all of the running to get it set up just pulls the rug out from under you.

As soon as I read your OP I thought, "yeah, I'd have done the same and still be going over it now."

It is sad that we're in the same position. Last time I cried myself was oooh Monday as I was still dealing with the fact that the earliest appt I can get on the NHS for my child to be assessed is in 10 months time. So bloody frustrating.

yeah it is hard, but you know the more we find out about DS the more I realise how alike he and I are.
I've always thought that a lot of the things he does are normal, because I do them too
so now I am wondering if I have Asperger's too... and part of that of course is really not coping with things changing!!!

babyheave, 10 months is awful!!!

we were very lucky that the GP referred us back in October and our first paediatrician appt was in January!
She must've put forward a good case is all I can think. School refused to refer at all, saying that he was fine there