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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

"Well my husband's brother's wife's son didn't talk til he was 4 so don't worry!"

80 replies

working9while5 · 03/02/2011 21:59

An acquaintance (friend of a friend) has a three and a half year old and has recently had a multidisciplinary assessment. The professionals have told her that her child is communicating and interacting like a nine month old and they are investigating a learning disability/autism. She is understandably shocked and distressed at this news.

Many of the people we know in common seem to have been very dismissive of the assessment both to her face and when speaking about it, with seemingly everyone having a story of a long-lost relatives who "chose" not to talk until they were at school. These late bloomers invariably all have Master's degrees and high earning jobs now Hmm.

I am a Speech and Language Therapist and I know that there are "late bloomers". However, I also know that what this mum has been told is that her child is interacting and communicating like a baby when she is three and a half. I know that this is not good.

I am filled with a sort of rage when I hear these "reassuring" stories because they are so dismissive of the mum who wants to share her distress - although I don't see her regularly, I've come across her at a few Stay and Play sessions in recent weeks where she wants to talk to everyone about it and let it al out. I've watched these stories being told to shut her up, really. It is very disheartening?

Am I unreasonable to be so frustrated? To wish people could be reassuring without denying? After all, if someone has cancer, people might share stories of how someone recovered but they wouldn't endlessly tell stories about how a diagnosis was wrong, would they? Perhaps it's not the same thing?

OP posts:
oxfordlass · 04/02/2011 13:49

Oh dear. I wish I had read a thread like this before my DS's diagnosis. In his case, he was 2.5, had great eye contact, interaction, but no speech and frequent glue ear.
My OH's family were constantly telling us there was nothing to worry about - OH's brother didn't speak until 4, not clearly until 6, had constant glue ear too. Went on to do amazingly well at school..blah, blah. I know they were trying to reassure us, but when, 1.5 yrs later, DS still wasn't talking, we received his diagnosis (a genetic disorder) it was like a bolt out of the blue. Something we were completely unprepared for...
I have a dd who is 14 months now. I had CVS when i was pregnant, and received the all-clear, but I will still watch her like a hawk..

donttrythisathome · 04/02/2011 23:57

Ah I'm so glad I read this thread now and will not be spouting platitudes in the future if i can help it. I really didn't think through the consequences of it and am horrified I may have undermined people or contributed to them delaying seeking help.

SylvanianFamily · 05/02/2011 07:14

I was on the other end of this issue. My family were all pressuring me to get a referral for Ds for late walking/late talking/unintelligeble speech when it came/tantrums / lack of weight gain.

I clung onto those stories of "my son was mute until he was 4 , then started to speak in full sentences". I knew that DS was well within the family pattern ( e.g. 4 close relatives including me and dh had early speech difficulties ; bilingualism mean all my kids were late talkers).

I went for help in my own sweet time - when I saw that DS had matured enough so that people weren't going to start throwing scary labels around for no reason. Maybe he is on some spectrum - but aged 4 he seems to have grown out of his 'problems' and grown into his 'strenghths' .

NacMacFeegle · 05/02/2011 08:25

DS1's speech was 90% unintelligible at 3, about 65% at 4. At 51/2 I can now understand most of it. He does have ASD, but XH, SIL and I are the only ones to accept and see it. The rest of he family and school are basically insisiting that the 13 professionals he has seen this far are wrong. Hmm

Everyone we know describes him as "quirky" though.

willowthecat · 05/02/2011 09:17

You are being very very reasonable - I hate these false re assurers too though can see why they are doing it, it is human nature to use wild optimism in any given situation. If a friend has a lump in her breast, we don't say 'Oh let's go and pick out a headstone now shall we ?' We offer up the most benign interpretation in order to re assure. Though I really really do not understand those who take the false re assurance to the stage of advising that assessments are not needed and they know the child is fine - we would not advise our friend to avoid screenings. Not every story has the conventional happy ending and the more information we have at the earliest possible stage, then the better off we will be

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