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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to ask you all a question about Hepititas and what you think about people who have it???

38 replies

BarmCakes · 28/01/2011 14:00

Just found out that I most likely have Hep C, will find out for defininate next week but its not looking good.

Suddenly feel like I am carrying this deadly disease and that I am going to infect everyone around me including the DC.

If my kids friends find out their parents will surely stop them from coming to our house in case their kids catch it too.

And although i am a Sahm atm nobody is ever going to employ me in the future once they find out!

I need to know how people feel about Hep C, how would you feel about somebody that had it, would you keep your children away?

if you have it how did you get it? How do you tell people and/or your employers?

Sorry for all the questions but I'm desperately trying to find out as much as I can Sad

OP posts:
MmeLindt · 28/01/2011 16:06

When you say, you work with children, then for me there is a distinction to be made.

If you are a secondary school teacher rather than a nursery teacher then I would imagine that the reactions from parents would be different.

BarmCakes · 28/01/2011 16:16

I work with children between 3 and 5, I am a Teaching assistant in a primary school. I am not working at the moment while my daughter is still so young but its something I want to return to in the future.

OP posts:
lazarusb · 28/01/2011 16:19

I have a friend who has had it for a long time and it's never been an issue wrt telling people. If she feels they should know, she tells them, if not... I hope you are ok. Like anything else it takes a while to get your head round it but as long as you are sensible I wouldn't worry about passing it on.

kepler10b · 28/01/2011 16:23

i know a couple of people who have hep c...i think both got it from sharing needles (drugs). so i might assume most got it this way or through unprotected sex - pretty much same as hiv.

one of the people i know who has it i really don't like (long story) so in my mind it's just another bad thing to think about them in terms of dirty junkie past etc (my lower self coming through).

the other person i really like so it's more an area of concern about them...the increased risk of liver cancer / failure etc and the horrible drug treatments they might have to endure in the future.

generally if i found it out about someone i would think "poor you". if it was a sexual partner i'd be concerned about transmission.

MamaChris · 28/01/2011 16:26

You only need to tell who you want to. My friend has hep C. She is getting treatment (which is hard) and her work have given her time off on full pay to do this. I am for her to hold and kiss my babies, and would certainly not stop my children going to her house.

It must be a shock to take in. Hope you are ok.

orangina · 28/01/2011 16:29

I have a very good friend who is HIV positive. Not the same as hep C I know, but is communicable in the same way, no? I would certainly not be concerned about transmission as long as everyone concerned was aware of what constitutes a risk, but i have bothered to educate myself through my friend.... not everyone is the same though I'm afraid. DH is terrified of my friend and would love him never to meet the kids..... just in case. It's ridiculous and subject of a few GIGANTIC arguments between us.

Best of luck and I hope you find out soon and can stop worrying...

ChinaCup · 28/01/2011 16:30

I would have no problem. You would have to try very hard to infect someone else so I wouldn't worry or judge you.

Deliaskis · 28/01/2011 16:32

I would feel sorry for you, as I know it is worrying and that sometimes the treatments can be difficult, and I know the risk of future liver-related complications can be hard to deal with.

It wouldn't affect my willingness to have you in my life so to speak, and I wouldn't be bothered if my children wanted to play at your house, as long as I felt you were responsible about it.

Having said that, I wouldn't think there would be a reason for you to tell me unless we were very close and you wanted to share. I wouldn't be annoyed that you hadn't told me, it's your business.

You may be in a position where you have to tell an employer e.g. on a medical declaration form, but if e.g. to work in a nursery, this information would still be confidential and the parents of children there should never have to know.

Your medical history is still your own private concern. You don't suddenly have a big flashing light on your head announcing that you have this disease.

D

Scout19075 · 28/01/2011 16:34

You don't need to tell anyone you don't want to. Even employers. And you can continue to work with children, do first aid, etc. It doesn't have to be a life sentence. Just be sensible. I speak with experience (and if you want, PM me, we can chat).

NorthernGobshite · 28/01/2011 16:43

You are under no obligation to tell your employer. All of us should be blood aware anyway. It is very very very unlikely you would put any of your class at risk. Very.

I know it must be a huge shock, but one day it will just be another part of who you are.

I don't know if you are in relationship but any new partners do not need to know unless you practice unsafe sex or risky sexual practices.

saralyn · 28/01/2011 16:44

Hi BarmCakes

I can understand you are worried, but wanted to give you a good-news story. My mum has/had hep C. She was probably infected at 20, and is now over 50, with normal life expectancy, and no health problems because of the hep C.

She was diagnosed 15 years ago, and underwent an intensive treatment (regular injections) for 6 months. This was still fairly experimental back then I think, but was very sucessful, and I believe the virus is not detectable in her blood anymore.

The treatment meant she could not work at that time, as she got quite a lot of side effects, but i believe the treatment is now improved, and you only have to do it for 3 months. I might be wrong on the details though, just going by what i remember her telling me.

You mention that you are worried about giving it to your children. Your past and present partners and children will need to be checked, but the chance of infection is fairly low (i just googled and it say 1 in 20 chance, but not sure if that is the most up-to-date statistics).

My mother had it for 15 years without knowing and in that time got married to my dad and had me and my brother (vaginal birth, breastfeeding) and neither of us got infected, so please try not to worry.

Re telling people: My mum told her family and some friends. I actually do not know if she told her employers, she work with children like yourself. She certainly did not inform the parents of her pupils. I see no reason to, as a child care professional you should anyway always use gloves when you take care of children who are injured. And you can't catch it without blood-to-blood-contact.

She also didn't tell the parents of my friends, again i see no reason to do so.

She told me,(after i had been tested), i was about 12, but she didn't tell my little brother until he was 18.

I think my mother was worried that people who did not know her well would judge, thinking she got it from sharing needles (she didn't, she caught it from her first boyfriend, he probably was a drug user but she didn't know that). She has unfortunately also experienced that some health care professionals assume that she has caught it from injecting drugs and treating her differently because of it. Which is a shame, but I can understand that for that reason you might, want to keep it private, not that you should have to, but if you want to, you should, I think .

I have respected her privacy and never told anyone, except one ex-boyfriend ?partly because I wanted him to understand why I wanted him to get tested for STDs before we stopped using condoms? Since she is now pretty much recovered there is no reason to
tell anyone now really.

Sorry, this post is getting very long, but just wanted to say one more thing.
As i said, i see no reason why you should tell people other than those close to you , who you would like to know. However, if you will be visibly ill/off work etc meaning that people who don't know you have hep C will notice, please make up a standard excuse that your children can tell people.

I remember my mother being off work when she had the treatment, and when friends and neighbours asked why, i just had to vaguely say that she was ill, as far as i remember i didn?t know specifically what to say, and that was a bit difficult for me. If your children is very young that might not apply anyway.

In short: Hep C certainly don?t have to be a death sentence, the chance of infecting anyone is very small, and you are perfectly in your right to keep it private.
I wish you luck, take care

Pseudo341 · 28/01/2011 16:56

That really sucks, but at least you know now and can get treatment. Take care of yourself, and don't rule out councelling to help you come to terms with it, helped me loads when I ended up needing a wheelchair.

Haven't read all the replies but am shocked at someone saying they'd want reassurance before letting their kids play at your house, WTF??!!!

In light of that I think you might be better off keeping quiet about it, something that simply hadn't occured to me before reading this thread.

I do know someone with hep C, he got it from a blood transfusion many years ago, not that it's any of my business but he's always been very open about it, makes not difference to me how he got it. He hasn't met my 20 week old baby yet but he'll be very welcome to cuddles when he does, hope that sums it up.

Socy · 28/01/2011 17:19

My brother had hep C, probably from sharing needles. He had the interferon (I think that's the right name for it) treatment, over about 6 months, maybe a bit longer and whilst it makes you feel ill at the time he is now cured - no trace of it & can even drink alcohol as his liver is back to normal.
I never worried about my kids catching it from him when he stayed with us.

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