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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be worried about DS future?

29 replies

welshbyrd · 12/01/2011 16:18

DS7yo, 8 in August - he had speech and language therapy since 3 years old, until last year. [his speech is much better]. Attended the ICAN because of this.
He did not walk until he was well over 2
He could not jump on spot etc [can now]
Can not ride a 2 wheel bike, and was near 5yo before he could ride a 3 wheeler bike
Struggles with buttons
Still wet bed at night
Can not change himself, if he does, he will forget his t-shirt or, forget to put pants on [ swimming lesson recently in school, he forgot to put his socks on, even though it was snowing outside, and he had to walk back to school]
Low concentration span
Forgetful
There is loads more things,

He yearly sees a child specialist, who informed me when my DS was 4, that DS, could have dyspraxia, amongst other learning problems. He stated he would never diagnose a child until child was 7, as young children develop at different speeds, and can catch up to quickly too
As years have gone on, DS is so severely behind his peers, teachers know it, I know it. He is taken out of his class 3 times a week, for one to one,
He recognises and can write his name, well his first name, but can not read even basic words, even after schools and my perseverance.
Spoke to his teacher yesterday after school, was asking her advice, as to what happens when dyspraxia is diagnosed, she basically said nothing changes, just each class he moves up to will be aware of his problems.
Im terrified of him going up to comp school, and being dismissed, bullied, ignored, well bit of everything really

His last year told me, If I could grade him on effort he would be in year 6 Sad

He is a FANTASTIC KID, brilliant natured, abit emotional even, which I think adds to his vulnerability, Has anyone else had dealing with these issues, on a secondary school level. im terrified for him.
Bringing Lambs to the slaughterhouse is coming to mind everytime I think about it

OP posts:
Ingles2 · 13/01/2011 19:09

Hi Welshbyrd...it sounds like your son is really being sold short by the school.
My ds2 is 9 and in yr 5. He is dyspraxic and dyscalculic but is very bright, especially with comprehension, reading and languages.
We first had a referral via the GP to dyspraxia specialist within the Ed Psych dept at the local Hospital (we're Kent btw)
He then organised the OT to come into school to assess Ds2 with myself, ds' teacher and the Senco.
From that point on we had loads of support from the school.
Ds2 did 20mis Fizzy every day with exercise recommended by the OT, he had various other intervention for handwriting. He had a special cushion, and a sloping writing board and various pencil grips. The school were totally on side and now 2 school years later.. he has made so much progress, the is barely a difference from other dc...
When I look back, at 7 he couldn't throw, or catch, struggled with hyper sensitivity, had so many tics and twitches...
There is always things he is going to be poor at, he can't ride a bike, his swimming is somewhat bizarre but he is going to be absolutely fine.... So please, don't worry about your ds just yet.. Smile
Obviously I don' know the system in Wales but You need to insist now that his Paed follows through and his recommendations are followed in school. Ask for an OT to visit. He should also be assessed for Dyslexia, that might be the root of his reading problems.
JellyKat sounds like she has loads of info for your area, use her knowledge and "make yourself known" to everyone who can possibly help.

welshbyrd · 13/01/2011 20:05

Jellykat - thank you so much, you have helped me massively already.
Have PMd you x

Thanks HFJ - will speak to DS teacher on Tuesday, and ask for a letter, and basically, I want her to put her opinion on it, I know she is not a DR but she see"s more of DS than his consultant does

Ingles - agreed he is being let down, just wander how much it will all change after his appt in March, when he is diagnosed, I personally also think he has dyslexia, will discuss this possibility with his teacher also.

Quite bizarrely, DS, is a fantastic swimmer, he has just had his first stage 3 swimming lesson this evening, he only started swimming in September, and has already passed stage 1 &2. Im just really pleased he is getting the results he deserves.

Academically, he tries so hard in school,but never gets the results his hard work deserves, his last teacher said if she could grade him on effort he would be in year 6.

Thanks you all for all advice, and personal experiences with dyspraxia. I really do appreciate it.

OP posts:
Jellykat · 13/01/2011 21:11

You're welcome.

Have PMd ya back.

Ingles2 · 13/01/2011 21:23

Definitely get that letter from the teacher.
After our inital diagnosis, the Paed sent a questionnaire to both myself and the school. The schools had questions like,
What does ds1 need particular support with iyo?
then tick lists for, sport, getting dressed, organisation, academically.
What intervention he is receiving atm.
His levels for core subjects
comments on handwriting / pen pressure etc
How ds1 copes socially, emotionally.
Try and get her to include all of this and take it with you, it might help speed things up.
There are basic tests the teaching staff can do in schools for dyspraxia, it involves looking at their wrist / arm movements when they move ... Have the school done these do you know? If so, take copies of the results.
Your Ds sounds lovely, and I'm glad to hear he's doing to so well at swimming, hopefully he's enjoying it as well. Smile

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