Maim thats the same as me. I have M.E./CFS, although I luckily get In Cap. Yes Labour brought in being reassessed which I was last year and was due anyway. Now the Tories are doing it again, what a complete waste of money! I was assessed for DLA by one of their docs, I was shaking like mad and he had to stop me doing the exercises, he wrote that I was fine though.
I lost that appeal as I wouldn't go to the court that was 4 hours away to attend the hearing so they just failed it. I reapplied the next year on exactly the same criteria and got the lowest rate care! Makes no sense.
No, people who are genuine do have something to worry about actually!! Not all illnesses can be 'proved' and its a case of 1 doctors opinion (and M.E. can be controversial) and how they see you that day.
How can you show that you are totally exhausted and aching so much? Conditions fluctuate on a daily and hourly basis. Its hardly fair that 1 assessment from an unknown doctor is the basis on whether you are awarded benefit. It should be an assessment from your own GP, the doctor who actually knows you.
I over do it the day before (housework and a short walk up hill, normal everyday things to everyone else) so they can see how tired I get.
Its a sodding nightmare, and like a previous poster said, genunine people tend to play down their disability whereas someone fiddling the system really puts it on. I could hire a wheelchair and sit in that if I wanted to, but I don't want to lie about it, why should I?
I know of someone who was assessed in his home for his 'bad back', he crawled up the stairs, made it look really good, got his benefit. Then the doctor saw him carrying all his shopping around outside the supermarket. This man is someone who knows how to really fiddle the system and always gets away with it.
I also know of someone who claims they are agrophobic. Doesn't stop them going down the pub all the time though.
Good luck to everyone on here, all the genuine ones who are worried for a good reason. I'm even more worried now after reading the awful conditions people have and have still had trouble!