Think DS may be dairy anaphylactic.

[ilovemydogandMrObama]

DS (2.3) is severely dairy and soya intolerant, although gastro consultant says 'allergic.'

This afternoon, at DD's school, he managed to grab a biscuit, and shove it in his mouth before I could leap up and stop him. About 5 minutes later, his lips swelled up and he was whinging. I called his GP and since he was calming down, didn't take him to A & E.

Doesn't look good, does it?

no , it doesnt.

are you going to try and get a nhs pead immunologist?

Doesn't look great unfortunately, carry Piriton with you just in case of future biscuit dives and follow up with GP.

Has he had skin prick or RAST tests - if not ask to be referred. If there isn't an allergist near you (there aren't many around unfortunately) then there should be a paediatrition (sp?) with an interest in allergies who can do it. How about phoning your gastro consultants secretary and explaining situation - he might be able to arrange testing and bypass your GP. I've tried it before and sometimes they're surprisingly helpful.

Have spoken to Gastro secretary and she did her usual, 'have you spoken to the GP...'. I said GP is reluctant to merely prescribe Epipen since DS is already under a Gastro consultant Grrrrr.

Was polite though and she said someone will call me back.

Hello ilove.

Sorry to hear this. What a total worry and stress.

Kick their asses and begin every sentence with...

'with respect, I request in the strongest terms that.....'

I found that got me through many doors

Has he had a challenge whilst an inpatient?

My advice is to give them till one. That allows for the 'on lunch' but covers the 'crap forgot...say we'll do it tomorrow as Mr X has gone to meeting/home/playing golf/to theatre'. The rng back. Then ring again at 3.30.

ilove, that's not looking good. I'd carry Piriton just in case. We have an epipen for ds2 after an anaphylactic reaction to yoghurt (plus a reaction to banging on a supermarket conveyor belt which had previously had milk split on it ).

Do you have an open appointment with the gastro? If so, you could just get an appointment via the usual hospital booking system. You might otherwise try to get a referral to a specialist in respiratory medicine if you can't get an immunologist. Your GP should be able to make that referral.

On the plus side though, he's starting to reach an age where you can teach him about his allergies and not to just eat anything without checking first. We did this with ds1 who has multiple allergies and by the time he was 3 he knew to ask "does that have eggs/nuts/beans in?" before eating anything. It does get easier with age (to a point), if that's any help.

So, saw GP this morning and we discussed carrying an epipen, but decided that if DS has another reaction, he needs an ambulance/Children's Hospital as will need treatment. He prescribed Cetirizine, and referred back to Children's Hospital to the Immunologist as any future challenges will need to be done under controlled conditions. .

Gastro team hasn't called back. Apparently it's political. To get the attention of the Gastro Team, one needs a specific stomach/gasto complaint of an urgent nature. The mind boggles