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New to eczema - advice needed for 3 month old baby!

26 replies

StepfordWeeble · 05/03/2010 12:02

My 3 month old baby has pretty bad eczema on his face and dry patches over the rest of his body. It's sooo heartbreaking to see him trying to rub himself all the time and getting more and more sore.

Neither my husband nor I suffer and so we are new to this business and although I've googled like mad I still have millions of quite a few questions.

Treating flare-ups DS is really bad at the moment - very red and bobbly on his cheeks and almost at the oozing stage. We're in the middle of his first prescribed course of 0.5% hydrocortisone and so have been (in accordance with instructions) weaning him off so only applying at night instead of twice a day, but I feel as though that's not enough at the moment.

What's the best way to deal with a bad flare up on his face? I'm off to the dermatology clinic again on Wednesday but would appreciate advice on whether it's better to stop this flare-up in its tracks by slapping on a bit more hydrocortisone or to stick with the "weaning off" programme?

I'm trying to keep him cool and so am reducing the amount the central heating is on, but should I turn it off altogether? It's pretty nippy!

Is it worth getting a humidifier? Any recommendations?

Is it also worth bothering with the various natural ointments and creams during the really bad flare-ups or should I just stick with the hydrocortisone and hydromol at these times?

How quickly do you get a reaction I've ordered a whole load of organic creams and ointments (most of which have been recommended at various points on MN). How quickly can you tell whether one is working or making it worse? Ie does it take a couple of applications/days/weeks etc to know whether it's any good?

Generally, if you have a few creams which you use in a cycle, how long do you use them for before switching?

Dairy problems I'm currently EBF my DS and so any dairy he has will come via me. I may have bone density issues (currently under investigation) and so don't want to give up dairy unless I need to, but wondered whether you can establish a dairy issue by not having it for, say, a couple of days and then having a lot? Or would I need to go without for longer?

Scratching at night Currently I'm swaddling DS overnight in just his nappy and a super size muslin, as its the only way I know of to stop him scratching his face all night and waking himself up all the time. But he seems to wake up wriggling and rubbing anyway. Are there any other ways to prevent him scratching himself?

Has anyone else tried Dermatherapy sheets? They are quite spenny: are they worth it?

Thanks for bearing with the long post!

OP posts:
EldonAve · 05/03/2010 17:24

www.eczemaclothing.com/

do you think the HC is making things better or worse?
when you say you are weaning him off it - who gave the instructions, the derm clinic or the packet?

what detergent are you using?

Tanga · 05/03/2010 17:30

Stop using any scented beauty products yourself, eg body lotion, shower gel etc - my LO used to have flare ups when he came into contact with my skin when I used these things. Ditto wearing synthetic fabrics - both of you wear cotton for a while, at least on your top half which he's likely to come into most contact with. And changing the washing powder worked for me too.

helibee · 08/03/2010 00:53

My ds was the same, he is now 2 and a half. Use socks on his hands, that should stop him being able to scratch so easily and if you put the socks on under his sleepsuit he should find it harder to pull them off.

As for HC, if it has been prescribed, don't use less than you are told, or you'll end up needing to use it for longer. My ds still needs it during flare ups for about 1 or 2 weeks then maybe nothing for months.

Maybe ask about some medicine if it is still bad. Both my ds and a good friend who's ds has bad eczema too both need a daily prescribed antihistamine.

Don't use more than 1 cream at once as you wont know whats working or aggravating things. We found out by accident that Vaseline intensive care lotion works wonders for ds but doublebase did nothing for him. Unfortunately it's all trial and error

Agree with the others to be careful what products you are using yourself.

Don't give up dairy, especially if you need it yourself, without advice and help from a Dr. Try these other things first. Also we find that heat REALLY aggravates my sons eczema and I've had many a strange look when in the middle of winter he is dressed for autumn but it works for us

Hope some of this helps. I know its heartbreaking to look at your wee tiny baby so sore. Take Care.

eisbaer · 08/03/2010 14:35

Nothing we tried worked until we went to the doc and got a steroid cream. Wish we'd done it alot sooner, so it's great you're addressing it at 3 months. Your wee one sounds like he's really suffering, poor thing.
There is a school of thought out there that dairy is the cause of ALL eczema. I'm not sure if I buy it, but the past week when my son has been sick, he hasn't had any dairy and his skin is beautiful, first time in his life at 18 months. So I'm now experimenting with no dairy for both my sons, (using liquid calcium supplement) for three or four weeks to see an outcome, as they both have eczema and other issues. Why don't you get Osteocare from the health food shop for yourself and try not having dairy for a month? Your bones won't suffer that way and you can rule it out this early on if it doesn't have an impact. looking back, I wish I'd tried skipping dairy ages ago, i.e. while breastfeeding, to rule it out if nothing else.
Just a suggestions, sounds like you're trying everything. Good luck.
p.s. I wouldn't be afraid of applying a steroid. As one paediatrician put it, he hasn't seen any child in recent years with skin damage from using a steroid, but a good handful with damage from scratching etc. Up to you though.

WingedVictory · 08/03/2010 14:50

Hi, there.

So sorry you have got this. It's hard for you as well as your child!

The things we do are:

  • moisturise, moisturise, moisturise. Oilatum or Epaderm in the bath, aqueous cream for washing hands (don't worry about this one; we have a toddler). Epaderm and Doublebase for day-in-day-out moisturising (several times a day, and I mean several).
  • keep cool (we use a 1 tog bag rather than a 2.5 tog bag. Small babies are better not overheated, anyway (not to alarm you, but this is mentioned in some cot death research, so pay attention to the guidelines for temperature in the nursery), and if he is too cold, he will just wake up)
  • bathe very infrequently. We finally found once a week to be a good maximum, and laugh at people suggesting "only bathing every other day" - that's still 3/4 times a week!

The bathing and washing appear to be the biggest factors for us in controlling DS's eczema.He still has patches of it, and we do have some Fucibet cream to attack bad flare-ups, but the bathing and moisturising are our major weapons.

However, the most important thing is to remember that everyone has a different magic bullet, or set of magic bullets, so you must not be despondent if much of the advice you are given is useless for you. You might want to keep all of it in mind, and use the ideas in different combinations (e.g. change diet but not cream. Then change cream but not diet).

WingedVictory · 08/03/2010 14:52

P.S. Integrated scratch-mitts stop at about 3 or 6 months on most baby clothes, but Green Baby's sleep gowns do them all the way up to about 18 months, so we kept DS's hands covered at night.

bridewolf · 08/03/2010 21:43

wingedvictory, you posted everything i was going to post!

hygeine is VERY important, and if really oozing , get checked in case of infection if really raw and wet looking.

the creams dont often wash out of kids cotton clothes very well, and some, rot the rubber /elastic, esp in washing machine.
so soak the clothes in a bucket of salty water over night, then was on 40% wash.

not the help you asked for, but it saved many a pair of cotton pjs for my boy!

helibee · 09/03/2010 00:58

wingedvictorys advice is very good. I'll second the bathing infrequently, we only bathe ds once a week and now he's a wee bit bigger, actually find the shower better as he's wet for less time. Try creaming him up before you put him in the bath too.

We also found 1 tog sleeping bags good and we keep the house temp to about 16-18 degrees and in the summer ds has an air con unit in his room to keep it at a consistent cool temp. Be prepared as the outside weather changes for that to cause a flare up, i think its their internal thermometers adjusting but we and others i know all find the changing seasons cause this.

My ds is allergic to certain dairy proteins and cows milk, soft cheese and fromage frais all flare up his eczema (on top of having an allergic reaction) but yoghurt, hard cheese and cream don't! You'll find foods trial and error. Also try and hold of weaning until the 6 months as this will hopefully help to reduce any other reactions your ds may have with food/eczema

WingedVictory · 09/03/2010 09:32

bridewolf that's really interesting about the cream in clothes; thank you. How old is your DS? He must be old enough to keep a pair of pyjamas for more than a couple of months, so I may use this advice for mine later!

lilypants · 09/03/2010 15:43

I have a 20 month old who had severe eczema when she was teeny. I would agree with most of what wingedvictory said except for the bathing. The skin needs to be kept clean to prevent infection, which can exacerbate the problem. To make bathwater "safe" I was prescribed Dermol 600, and Dermol 500 as an alternative to soap.
Epaderm rocks, and makes her skin lovely and soft (even if it makes her hair a bit greasy!)
We were referred to Dermatology and were given Ichthammol treatments for her. It is like a soft gummy clay, and is slathered all over the body before covering in bandages and left on overnight. We had to do this intensively for 3 weeks but it really did the trick. Now we do it once a month to give her skin a treat (and occasionally put some on my feet overnight for an intensive moisture treatment)

WingedVictory · 09/03/2010 19:18

lilypants, a former boss had a daughter with terrible eczema (and nut allergy as well), and they used to do "wet wrapping" with her. Is that what you are describing?

Sounds as though you and your DD have it much worse than most. I'm so sorry.

lilypants · 10/03/2010 16:38

I'm not exactly sure what wet wrapping is but think it sounds similar. She looked like a mummy for a few weeks with all the bandages but was well worth it. Her skin is gorgeous now and we can take her swimming again! Suffice to say, I know a fair bit about ezcema now and we were lucky enough to get referred to dermatology. I wish all ezcema children could be referred, it would save so much distress for parents and children...

WingedVictory · 10/03/2010 21:02

Yes, that sounds like what they did, lilypants.

How are you and DS getting on, StepfordWeeble?

Eartha20 · 12/03/2010 21:40

Reading your post brought back awful memories. Our little eight month old had terrible eczema same age. It broke our hearts watching her struggle her way through days and nights. She's still scratching but better now. Everyone's eczema story is different; here's ours. We got an appointment at Great Ormond Street and were told oily baths and steroid cream on affected parts twice a day (using the stuff they prescribed). I went through loads of essential oil-based and organic creams but it was like holding back a tidal wave with a stick. You can try loads of products, both natural and petroleum-based, but in the end - sorry everyone - for really bad eczema, properly prescribed, properly applied steroid cream is the most effective solution. Heat, dust, fragranced washing powders and conditioners, synthetic fabrics, winter wind on little faces - avoid all these for now. For little hands that scratch, go to Next - it does bodysuits with integral mitts till age 6 months - but we still found we had to sleep with our little one between us and gently hold her hands down to stop her rubbing too desperately. Sleep deprivation was a big problem for her - and us. Humidifier - we have one. Who knows if it works but we don't dare switch it off. The good news? When eczema develops this young, your baby has a big chance of growing out of it by his teens - and it'll probably be at its worst now. Good luck. My heart goes out to all of you. Give your baby a cuddle for us.

WingedVictory · 12/03/2010 21:47

Oh, Eartha20, ouch!

Eartha20 · 12/03/2010 21:49

sorry, don't get?

WingedVictory · 13/03/2010 10:11

It wasn't a question, just a noise of sympathy.

Eartha20 · 14/03/2010 23:15

Thanks, Winged Victory. Didn't understand the symbol ... Hope StepfordWeebie and her son are ok.

aishasaj · 15/03/2010 15:29

my daughter had a really bad eczma,we tried all sorts of creams and tips but nothing much worked. surprisngly we found out that 'Weleda Baby Calendula Nappy Change Cream' works very well on her, she is nearly 2 now and still wenever any patch appears, my we use it

Aaaachoooo · 15/03/2010 15:42

I would completely cut out dairy if you can. I did this and saw a great improvement in my daughter's eczema within a week.

RegineBroo · 02/07/2017 10:32

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

PumpkinSpiceEverything · 09/07/2017 17:26

Bathe in water without baby bath, use coconut oil with a few drops of lavender oil instead of baby oil. Lavender oil is soothing for eczema. Also use a basic, unscented nonbio detergent and no fabric softener. Coconut oil w/ lavender oil can replace nappy rash cream as well - just go as natural as possible and eliminate any chemicals that could cause a flare up

GrumpetLikesCrumpets · 11/07/2017 21:54

As a 40year old adult who has had eczema since a baby, and never grew out of it I consider myself to have good knowledge about how to manage it. But, I don't have a child with eczema so my advice is just from personal expereince rather than looking after a LO with the condition.

Ditto Winged Victory on moisturising. Even if the skin is weepy it needs moisturising. Trust me on this one. Moisturising is particularly important because hydrocortisone or steroid creams dry out the skin. You may have been given an ointment rather than a cream because the ointment is more moisturising. Every time you apply the hydrocortisone/steroids ( and do apply it, you have to use them to keep flare ups under control) use moisturiser too. Moisturise At least twice a day. The moisturiser doesn't have to be expensive, or organic etc etc.I use Cetraben, Aveno cream (both available on prescription if you ask your GP). My skin hates E45, Nivea, Johnsons baby lotion, but other brands have been fine. Try different things and see what works. Don't just follow what works for others people, trial an error on your baby is the only thing to try (sorry, this will take time). I mean E45 claims to be really eczema friendly but I know several people with eczema who can't use it. I find Coconut oil is nice and soothing, and so is olive oil, but it is really greasy so it's only really an option to use it at night time, wear pjs, and wash off in the morning, or what I do if my skin is really dry, apply it half an hour before a shower/bath.

Re how quickly will you get a reaction. It depends, but for me it's within a couple of hours for something I put on my skin. I know there are a few dietary things that make my skin worse (alcohol, caffeine ) and those reactions take longer- I usually have tight red dry skin the next day if I've had too much of either. With a bad moisturiser, or a detergent that doesn't agree with my skin, I could get hives (like nettle rash) which are really itchy, or skin will just be really red dry and itchy. Again though, different people have different reactions.

A lot of the time when I was growing up, it was a case of working out what had caused the problem...we had pets, I played outside a lot in long grass, wore wool jumpers and tights, the carpets were wool, and I had loads of different skin products.. it was a mine field. Now I know that animal hair, grass pollen, wool, and scented products can all be triggers. A general tactic when near any of those things is to cover myself in cotton. I always have a long sleeve cardigan on me on a sunny day, just incase the pollen gets me itchy.

Also agree about not using scented products, and be careful about laundry products. I use Fairy laundry liquid and, if I really needed it, Comfort softener. My skin had a massive reactions to Arial... but that was 30 years ago now.

Check what baby wipes you're using. Again go for really skin friendly ones, and try different brands. My hands aren't good with a lot of wipes, and as with moisturisers, it's just pot luck what works, you need to try different ones and stick with what works. It honestly doesn't need to be organic/homeopathic blah blah, it's just use what works. Often cheap= simple ingredients. As a student I used a lot of Superdrug own brand moisturisers, they worked and didn't irritate my skin. Can you just use cotton wool and water for most of the nappy changes and wipes only when not near a sink?

Cotton, cotton, cotton. Don't use any wool...not even something that has 5%wool. Do your carpets have wool I them? How about cushions, or sofa covers, or blankets? Keep LO's skin away from wool. ...just sit on a cotton blanket instead will be fine. I found that sitting on a towel on top of the carpet worked well if I knew I would be sitting on the floor.

My mum used to bandage my problem areas so I couldn't scratch them at night...usually knees/elbows/wrists/feet. I also wore cotton gloves at night she. I was a bit older, but agree with the person above who suggested socks on hands at night would help.

Re baths. My skin actually really benefits from a bath . I think it helps to slough off the dry skin, which can sometimes get a bit built up with moisturisers, in a gentle way. I don't use soap, i just add a handful of table salt (it has antiseptic properties) to the bath, sometimes some oilatum, soak for about 20minutes, gentle rub a flannel all over, get out, pat dry and moisturise. My skin always feels a lot more comfortable after a bath than after a shower.

For the flare up on your LO's face, I would bath get a bowl of warm water with a table spoon of salt dissolved in it. Use cotton wool to wipe his face. Apply the hydrocortisone (yes, continue to use during a flare up...3 days is usually the advice right? If it's not sorted after 3days you should go back to GPfor something stronger ), and apply a a moisturiser. Even if the skin is weepy, it needs moisturising .

I've never heard of dermotherapy sheets . 100%cotton bed sheets work for me. I have synthetic fibre pillows, and no feathers in the duvet either.

I seem to have ranted on a lot here, but honestly, once your I know what to avoid, ie what triggers the condition, it will be a lot easier to manage. HTH

GrumpetLikesCrumpets · 11/07/2017 21:57

Oh and ASDA George baby grows also have integral baby mits and are lovely and soft. They even put the labels in the legs rather than on the neck so it's not to scratchy.

Kilicat · 13/07/2017 13:49

So sorry you're having to go through this. I've not read the entire thread but couldn't not reply as we went through a similar experience when my DS was 4-6 months old.

Really, there is loads of advice out there, magic creams and cures, better hoovers, avoid this that and the other....Unfortunately every case is different and so treat other people's advise with caution.

Steroid cream - is it working? If not then it's too early to wean him off it and you may need something stronger. Hydrocortisone didn't touch my son's eczema and a dermatologist put us on a stronger stereo cream called elocon. It cleared the eczema up over night, as if a miracle, after months of suffering. The change in my son the next day was incredible - not just his skin but his personality as the suffering eased off. So definitely ask the dermatologist if it is the right cream and what to do if it doesn't go away. No other cream we tried made a scrap of difference so I wouldn't spend too much money in the quest for a miracle cure. We wasted loads!

We used these at night - DS really loved wearing them and they became a good sleep cue: www.scratchsleeves.co.uk/shop/index.php?route=product/product&product_id=250 Think you can get them on eBay as well. He still enjoys wearing them 18 months later but we're phasing them out as we don't need them anymore and so a bit of a waste of money!

Has he had any allergy tests? We ended up paying to see a private dermatologist after our GP was seriously unhelpful and every time I went they suggested I wasn't moisturising him enough. She took one look at him (covered in red, weepy eczema) and ordered some allergy tests - a blood test. I came back with severe allergies to wheat, egg and milk and moderate for house dust mites. It was the best £150 I spent and we only needed to see her once as she gave us the results over the phone.

Cutting random foods out of your diet might work, but it also might not - we could never have imagined the extent of DS's allergies and after several times of cutting out dairy / wheat etc it didn't make a scrap of difference as I didn't cut all of those things out at the same time. Even after we had the results back and I gave up all of the offending foods (I was BF), it took the strong steroid cream to get the eczema under control before it actually made a difference to his skin. Therefore, simply giving it up won't necessarily help! If possible get the dermatologist to arrange a blood test so that you know what you're dealing with as I know how agonising it is to try everything and not have much success.