Any alternative to Enfamil or Pepti Junior for intolerant newborn?

[MummyMellie]

Please help - DC2 was born last monday, and just like DC1 she definately can't tolerate my breast milk. I am devastated as really hoped to bf this time round.
Anyway, have tried her on DS's Enfamil which is a lactose free formula and she isn't any better on that, have now been trying Pepti Junior since Saturday night and she is suffering just as much on that.
Does anyone know of any other specialist formulas that might help? I don't even know if she is Lactose intolerant or Milk Protein intolerant, and my GP isn't really interested in finding out or helping get to the bottom of what is wrong with my poor wee babies .

MM are you sure she can't tolerate your milk? have you seen a GP about this and had a lactose intolerance confirmed????

it's really very, very rare for a baby to be truly intolerant to lactose and thus unable to have breastmilk.

i would personally continue breastfeeding until you have a proper diagnosis.

sorry, i want to elaborate slightly. if a lactose-free formula is making no difference then that would indicate that she has no lactose intolerance.

in which case YOUR milk is the best milk for her. I don;'t know how newborn she is, or when you stopped breastfeeding her, but if she is still little then there is no reason why you couldn't re-start.

THEN you need to talk to your GP about what is causing the symptoms you are seeing

I have no dairy or wheat in my diet as am intolerant to both, so it isn't that that is causing it.
Poor DS suffered for three months while a plethora of specialists, paedatritions and BF specialists scratched their heads. We finally changed to a lactose free formula and he became a different baby literally overnight. Up until then he was:
Screaming constantly day and night, straining all the time to poo but completely unable to, so much so that he burst blood vessels, the only way he could go was following suppositories and he then had the most horrendous diarreah (aagh, can't spell it!!) imagineable - his poo turned completely to mucous, he would bring up every feed violently, failed to thrive and vomited so often that his osophegous (another spelling worry!) became raw - he was not a happy baby!
DD is now 9 days old, I BF her until day three, but by then she was constantly uncomfortable, screaming in pain after a feed, straining to poo then having explosive nappies full of mucous . . . needless to say I have stopped BFing her for the moment.
My dearest hope is that in perhaps a month or so time I might be able to very very slowly re-introduce my milk into her feeds and see how we go, so I am carrying on expressing at the moment.
I'm not sure exactly what is wrong with my babies as the only way to have them tested according to my gp is to wait until they are at the mucous nappy stage and take a sample - I am not prepared to make them suffer that much.
Any suggestions as to what might be wrong would be gratefully recieved, I thought DD might have a Milk Protein intolerance as opposed to lactose intolerance, but now am not sure.
For the record, if I have anything more than a cup of tea with cows milk it makes me very sick!

hmmmm, could it be something else causing it from your diet? soya perhaps? that's a common one. or egg?

i don't want to suggest you just cut random stuff out though to see if it helps

all you know so far is that she is very unhappy, and that a lactose free formula hasn't helped, so it can't be that.

hmmmm, i would maybe call one of the breastfeeding helplines, LLL are particularly good IME and see what they suggest, they have very good knowledge of this type of thing.
where in the country are you?

I'm based in Oxford, so I'm sure there is a LLL here somewhere, I'll google it.

I'm pretty sure it isn't egg or soya, DS is absolutely fine with both and out of all the things we have tried DD is happiest on Soya formula - although obviously I don't want her to have it for more than a few days just to tide us over until we find what helps her.

Incidentally, if soya formula is so bad for babies how is it that manufacturers are allowed to sell is as a specific baby milk?? Just curious.

because they claim that parents demand it.

like anything else really isn't it? cigarettes, alcohol, baby food "from 4 months".... if there is demand then someone will sell it regardless

have no idea about the baby being allergic to your breast milk - but you have mentioned that her nappy was full of mucous, so what can't you give that as a sample ?

I too would have thought bm is better than anything & the reason (all) soya is available is because it's a billion $$ industry & it would take one hell of a lawsuit to stop it.

Am I right in understand you're giving your son soya milk ? I would suggest googling boys/soya milk & maybe rethinking this option.

Probaly not much help - hope the LL can help & I would get back to your midwife ASAP for urgent advice.

No don't worry, my little boy doesn't have soya - he is on a lactose free milk and since finding that for him he has thrived!

Finally managed to get Midwife to refer me to dietician, doctor wasn't interested at all - hope appointment doesn't take too long to come through.

In the meantime am still expressing to keep supply up and donating to hospital milk bank, in the desperate hope that perhaps in a month or so DD will have started to develop whichever enzyme she is lacking that stops her from digesting my milk and I will be able to very slowly re-introduce BM .... fingers crossed!

(Incedentally, was so devasted about nappy full of mucous again that just burst into tears and binned it - even if I had been thinking straight I'm not sure it would have been much use as it was a Friday night so couldn't have got it to Doc anyway!)