I thought intolerances were grown out of....

[wangle99]

Our GP said to me when DS was younger that intolerances are grown out of when they are seen in such young children. DS is now 6, still tests negative for coeliac disease (been tested 3 times now, full gluten diet before hand for sufficient times).

He is still reacting heavily, messed up the other day and gave him crisps with malt vinegar in (which according to coeliac UK shouldn't be a problem however they weren't in the coeliac UK book as being ok) within 1/2 an hour he was on the loo with really bad 'fatty' looking diarrhoea.

Its obviously showing no signs of abating in him now. I'm so worried they are missing something and it isn't just an intolerance and isn't coeliac disease.

I know I'm probably being silly and need a slap but I just can't help thinking what if they are missing something

Intolerances can be grown out of but it's not a definite, they can stay into adulthood, it's more common for children to grow out of them than not.

That sounds quite severe for an intolerance though, I'm guessing you've had lots of tests...imo you could try and get referred to an allergy nurse (don't have to have a 'diagnosed allergy') or maybe a dietician.

You may need to be pushy but you need to put you mind at rest

Good Luck x

I was diagnosed with coeliac when i was 9, never ever been told i will grow out of it as its an issue with your villi. its just one of those things you have to learn to live with, in 22 now and automatically eat a gluten free diet, knowing you have it from a young age is a good thing as you DS will get used to it as he grows. also [i don't know if they mentioned it to you] but you can get different level of coeliac, some people can eat porriage and be fine, whereas others [like me] only have to eat the slightest and be sick.
i'd say go back to the gp, request more tests to see how severe it is, and if need be they can refer you to a dietian [very helpful]

Coeliac disease is often described as an intolerance but is really an auto-immune disease so the body attacks itself when exposed to gluten. The reaction you describe is certainly one my mum (a sufferer) has had but it seems strange if your son has tested negative. Did he have a biopsy or the blood test? If it's the blood test you can get false negatives. Whatever the cause is it sounds like you should go back to the GP. Hope they can resolve it soon for you.

the coeliac blood tests aren't infallible, especially if IgA levels are low (did they test those?) and you may have to consider a biopsy. It sounds as though he is coeliac. As this isn't an allergic response I'd think asking to see a paediatric gastroenterologist was more appropriate.