Help! BF DS2 diagnosed with CMPI, I'm veggie...

[cakeforbrains]

DS2 (10months) was diagnosed as cows milk protein intolerent today, so I need to cut all milk and soya out of his diet. He is still BF, and I don't really want to stop yet, so I am also cutting all milk products out of my diet. But I am veggie, so I've found today a bit of a challenge, especcially as I really love(d) stuff like cheese, pizza, lattes etc.

Can anyone help with the following:

• Any suggestions for where and what to eat out - it took me over an hour this lunch time to find something.
• Can I eat stuff like goats cheese and buffalo mozzerella - I forgot to ask
• Are there any soya and dairy-free deserts for DS2?
• Which supermarket stocks the best range of milk free products?
• DS2 has been prescribed neocate as a back up to BF and for cooking. Do I just neocate as I would normally use milk in recipes?
• Is Vitalite spread ok? Says it is dairy free but has lactic acid in - I've googled this a bit and think this is from non-dairy sources but it's all a bit confusing ...

Thanks for your help - I'm feeling pretty overwhelmed at the moment so I'd really appreciate some suggestions.

Waitrose and Sainsburys do a wide range of dairy free products. Soya Yoghurts and shakes. You can try rice milk as well.
Use soya for making rice puddings with nutmeg. Soya Margerine is brilliant and you can cook with it and plenty of cakes that do not require eggs.
Soya for custard and cereals, though watch some things as they do have milk protein in the ingredients.
It isnt as hard as you think once you establish a routine.
Check on Amazon for Dairy free recipe books. Enjoy rather than worry ~ think of it in another way pizza sticks to your hips you can enjoy a naan bread base using all your fav ingredients, tomatoes, mushrooms, herbs, garlic and humous instead of cheese. Another nice topping is Mexican pate V.

oops had meant to say that Soya is not dairy. It is from the soya bean. Good luck and keep on breast feeding until babe chooses to stop on own free will.

hiya, i had the same thing when ds2 was small, only I had to cut out egg too, so was effectively on a vegan diet for well over a year!!!

it's very, very hard eating out tbh. i tended to end up with a jacket potato and baked beans!
marks and spencer do a few dairy free things (veggie samosas, humous and breadsticks, some of their pasta salads)
Boots also sometimes stock vegan sandwiches

a lot of children who react to cow's milk also react to goat's milk as the proteins are very similar- you may have to test this to find out if yours is though! ditto buffalo (although this is actually closer to human milk than most other animal milks (aside from donkey!))

soya and dairy free desserts "off the shelf" are going to be hard to come by I think. You may find some in the "free from" aisle in supermarkets though. M&S make a vegetarian jelly, or you could make your own with agar or veggie gelatine
you can make rice puddings etc with oat or rice milk, and custard

as he is 10 months i wouldn't bother with the neocate tbh! ds2 has only ever had breastmilk or oat milk and is a fine and healthy 2 year old now. oat milk can be uised as a substitute for regular milk in just about anything

if vitalite says it's dairy free then I wou,d presume the lactic acid from it is from non-dairy sources.
sainsburys do their own dairy-free marg as do m&s (which is nicer)
or you can get a brand called Pure, from most supermarkets

i can highly recommend this book too

• I was told to avoid goats cheese and buffalo mozzarella as well with CMP allergy.
• soya and dairy free desserts are really hard, there is a banana rice baby jar dessert by HIPP I think, jelly or you can make blancmange or custard using oat or rice milk. You can buy some rice desserts from either goodnessdirect.co.uk or dietary needs direct online but they are quite dear.
• Tesco seems to have the best range IMO, they sell Oatly cream which is pretty good, i have made ice cream from it and mixed pureed fruit into it to make a dessert.
• Yes, just use neocate as normal.
• Vitalite spread is fine, but my favourite is the Pure sunflower spread (don't get the organic one as it contains soya).

-Eating out is very difficult, there's no way you'll find a pre made sandwich without dairy in it. We usually end up going to McDs or Burger King as at least they have good lists of ingredients, but that will be difficult if you are veggie.

The worst thing with a soya allergy IMO is finding bread. Tesco do a wholemeal loaf in their finest range and M&S do a couple that are soya free. Those part baked baguettes are normally OK too for soya allergy.

Honestly it does get easier once you get a few recipes together!

I would recommend getting the fortified Oatly milk as that is the best milk substitute and some pure spread. Good Luck!!

My DS1 was 9 months old when lactose intolerance was diagnosed and he is 3.6 now, and veggie too. If this is the same thing as your problem then to save you reinventing the wheel, some points you may find useful:

"Pure" dairy free spread

"Lactofree" cheese and milk & yoghurt, in the chillers with other cheese & cartons of milk. Has a big cow in the front. Tastes fine. Milk great to use in porridge, makey it tase creamy for some reason!

"Arla" do a fab vanilla desert in little pots of four. Usually in the free from range in sainsburys - tastes just like custard & is great cold or warmued up in to microwave

We had SMA LF (lactose free) available on demand on prescriptionfor DS1, free as it was for him. We used it until about a year ago when we realised you could buy lactofree, which tastes nicer. We still have a couple of tins in, just incase we run out of lactofree. has your doctor prescribed it for your DS2? We would get it six or eight tins at a time

oh and " Swedish Glace" vegan ice cream is fab, as are "Dairy free" 'chocolate' buttons (oh I know,...but all main stream chocolate is off limits so he gets hardly any treats)

Seems to tolerate a couple of jaffa cakes nowadays - hardly any choc on, and dark at that so very occasionally he has one or two as a treat.

Eating out was a bit of a pain,(for a long long time he would not eat potato either..aagghh!) I agree, though I hve always made a point of telling staff I have brought his food and everywhere I go I have never encountered any problem/refusal of entry etc.

Finally, just wanted to thank the posters for rallying to to cause. I always take something new from this sort of thread. And to say to you that once you become product savvy it all becomes second nature after a while. (Checking labels, would be amazed at how much stuff has milk or cheese init!) At 3.6 DS1 knows why he cannot have certain things and perhaps importantly, why and he really has never taken issue with not having certain things.

Good luck, it gets to be ok after a little learning curve

sorry to be a PITA but lactose intolerence and CMP allergy are different things. lactofree milk would still cause reactions in someone who has a CMP allergy.

I dont know about what things are milk and soya free, as dd4 has allergies to milk, eggs and peanut. i do allow myself to have soya products but avoid them for dd4 to have directly. her results for soya came back clear, but just not keen on here to have soya stuff for some reason.

we eat a lot of basic home cooked foods, inc pasta and rice, potatoes. we arent veggie so she does eat a lot of white meat, particually chicken.

if i am out, then i have a soya latte from starbuck its ok.

some people prefer rice and oat milks. persona;lly i didnt like them.

when you go shoppping, allow yourself double the time. you will need to check every label if you want to give it to your ds. check for the little allergy advice box, then check the ingrediants to make sure.

be aware of things like caesin, whey, milk powder etc. being added to things.

dont be afraid to speak up on your ds's behalf when out and about.

carry a snack box of safe long lasting foods. i always have somerfield rich tea fingers, raisens, goodies cereal bars, and a cup of water/juice for dd4, and if we are out for lunch i take marmite sandwiches and banana as well.

Oh no PITA at all !! Very important to get it right! As I said, i was unsure if it was the same thing as lactose intolerance, it was the vegginess of the OP that drew me in to post.

Sorry for the bum steer team!
LP

thats ok loads of people have recommended the lacto-free stuff for dd4, but its totally unsuitable for her.

the pure sunflower spread is good though. we use that. or vitalite if we cant find pure.

cakeforbrains, is your ds alllergic or intolerent?

Wow thanks everyone for all the information, you are a brilliant help!

DS has been diagnosed as intolerent - he's been producing v loose 'curdled' poos, often streaked with mucus and sometimes with blood. He is often sick. He's also got execema.

I'm really angry because I asked the GP about CMPI when ds2 was four months old after I noticed that he was more sicky if I had cereal with milk for bfast rather than toast, but I was told that exclusively BF babies couldn't be milk intolerent

DS2 is not veggie, just me, so ironically I will be on a more restricted diet than he is!!

I'm off to town to investigate the free from ranges ...

thank you all so much again!

thisisyesterday - did you start using oat milk for your DS2 at 10months? DS2 has never had formula, so I'm not particularly enthusiastic about the neocate. I'm not planning on using it that much, maybe to try to make the occasional milky sauce. But DS2 starts at nursery two days a week in March when I go back to work. I'd planned that he'd just move on to cows milk (I'm rubbish at expressing any quantity), but now I'm thinking he will need either neocate or oat milk for cereal and I think they have beakers of milk twice a day.

... I'll be BFing him the rest of the time, so it really is just the nursery days where I need to find a cows milk substitute.

he had oat milk on cereal and stuff like that yes.
he's never ever had any kind of formula!

i think if you were planning to use cows milk as a substitute you'd be fine just using oat milk, as long as you['re breastfeeding the rest of the time and managing to give him a fairly good varied diet of solid food.

the fortified oat milk has the same amount of calcium and stuff as cow's milk.

cake, I went back to work when DS was 12 months old. I bf him morning and before bed. He had rice milk at nursery, but now not recommended for under 5s as contains arsenic so would have had oat milk.

If you give up bfing before your DS is 2 he will need formula as oat milk doesn't have enough nutrients to be a cow's milk substitute.

For help with an infant / toddler dairy free diet this book is good. Rice milk has added vitamins, Almond milk (in powdered form) and tahini added to food (porridge, mashed potatoes, soup) are good. At ten months, breastfeeding morning and night is sufficient (as advised by my health visitor).

My 10 month old is dairy free, breastfeed morning and evening and has rice dream in food - no other formula. He does have vitamin suppliments and I take an iron suppliment. You should be / should ask for a referral to a nutritionist who will help and should be supportive of you not wishing to have formula.

Eating out for you is a pain (I'm dairy, wheat and sugar free at the moment but do have soya!) Try Wagamamas if you have one nearby, some curry's (dhal based) and maybe chinese food though I don't know much about Chinese food. English / French food tends to have alot of dairy.

Good Luck. (I miss cheese!! but you do get used to it.)

I am veggie (for the last 22 or so years), but gave up dairy for 6 months whilst bf ds2 who has a severe dairy allergy. Unfortunately you do need to stop goats and sheeps milk/cheese etc as well because the proteins in these are so similar to those in cows milk there is a >95% chance he will react.

Oat milk also doesn't have the fat or calories to be a good cows milk subsitute for your lo (it has a nutritional profile very much like semi-skimmed which is not recommended till 2yo). However, you can use it in cooking in order to cook fairly "normal" dishes.

I use lots of toffutti soya cream-cheese or toffutti soya-"mozzerella" is also good for cooking (and home-made pizza). Otherwise, vegan korma is good with coconut milk, rice-milk ice-cream is good (from goodness direct) or you can buy an ice-cream maker and make your own with rice/oat/coconut milk which is surprisingly easy, rice-pudding is really easy by taking pudding rice and adding fat, rice-milk, sugar and cinnamon and stick in the oven to cook. It is difficult to eat out with dairy free and veggie and for this reason I introduced fish into my diet (for the first time in 22 years) and then it was much easier as most places will always serve steamed or grilled fish and salad. This obviously depends how "dedicated" you are (and in my case, nuts and beans are out due to ds1's allergies, so introducing fish was a necessity rather than a choice).

It's not too difficult once you get used to it and in no time it becomes second nature. In the meantime, perservere with the neocate. It took ds2 about 6 months to drink it but now he accepts it fine!

I found that both my girls were less colicky when I cut out dairy products while the were exclusively BF,they were fine as they got older.I did eat soya products which you want to cut out,but I didn't have a lot.I used oat or nut milk in drinks,and I got used to things like pizza without the cheese.Goat or sheep milk/cheese may be fine or it may not,you will have to trial it. I am sure I found a vegan margarine without soya in it but I can't think what it was called.I did get used to taking snack bars etc out with me for times when it was hard to find a vegan lunch but most health food places should have a good selection.Also try looking online for things you can get delivered. There is a good organic baby food site I bought things from,I think it is ulula.co.uk,they might be able to give more advice on things for the baby.

DS is on Neocate Advance (changing soon though) and it's good as it gives him the calories/vitamins. It does come in other flavors including chocolate

As others have said, oat milk isn't really a good milk replacement, but is fine for cooking, cereals etc.

Eating out dairy free and veggie free means a lot of chips, hummous and pita bread! Although Indian food and Thai seems to offer more variety.

Hi,
my daughter has been diagnosed with cmpi. She is BF so I'm on dairy free diet have been now for a week. She is also on Omeprazole 5mgs. Just wondering when things start to settle. She's still crying at feeds and having blood in nappys.
Also she is in a Pavlick harness for hip abnormality if anyone has experience of these!
Shes 17wks. Thanks.