Is it possible to test negtive in intolerance blood test and STILL be intoerant iyswim??

[simpson]

DD (15mths) is intolerant to dairy and soya and is on neocate (and has been since 10mths) she is under the care of a pead consultant at the hosp..

Anyway I have always thought there is a problem with something else and I have twigged it is probably oats...Gave her oat biscuit yesterday and we have had 4 poos today so far and she seems constipated

Well pead has just rung and said that the blood tests she had a month ago included intolerance test for oats which came back negative

Basically now the pead is being a complete tosser and saying he doesn't think there is a problem with dairy and wants her back on normal milk and says cows milk protein intolerance is grown out of by age one

What do I do??

Hope so...

Still waiting for dietician to call...

DD is also cutting down on her neocate severely

She has only had 6ozs all day today and 9ozs yesterday.

simpson I have a child with nut allergy, family problems with milk protein and intolerance and friends with allergies. I also have problems with gluten despite a negative coeliac test.

There is a lot of confusion in your posts and I'm not sure if it's you not understanding him or the paediatrician. I've seen an ill-informed paediatrician and an allergy consultant and there is a world of difference - so it could easily be the paed.

Blood tests are usually either for allergy - and you aren't describing allergy symptoms - or coeliac disease, and that does need to be ruled out. However what you saying about the test results - negative for oats and sugar in stool sample - it sounds like an intolerance and a negative coeliac blood test. You've already been given figures for outgrowing milk protein intolerance but if there is sugar in a stool sample that's lactose intolerance and it can be temporary or permanent.

Postponing the appointment sounds a good idea. Try reintroducing milk before you go the appointment then you will be able to tell the consultant what has happened. It is possible that the lactose intolerance may have been temporary and outgrown after a period on neocate. It's also possible that it hasn't been and if you have tried to reintroduce and had problems you are in a much stronger position to argue.

A negative coeliac blood test doesn't necessarily mean a child isn't coeliac. However further tests are invasive and you only want to do them if you're really sure things like wheat are a problem. Otherwise just keep away from oats until they are older.

tatt elimination is also a valid process to determine an intolerance.

Also, even if a stool sample comes back negative, doesn't necessarily rule out an intolerance; DS' stool sample was negative for cow milk protein intolerance, but this was taken when he was nil by mouth for 48 hours and no cow milk for about 72 hours. Other indications such as putting on weight since taking cow milk out of diet, he has suddenly put on weight -- previously a failure to thrive.

Tatt - when the pead suggested the blood tests I thought they were for an intolerance iyswim.

It was only later I realised to was to test for an allergy which DD definately does not have..

ie it was a waste of time!!

But he did not explain this to me...

It is definately lactose intolerance and I just don't understand why pead thinks she is ok and wants to take her off neocate

ilovemydog - DD has always put on weight ok TBH but before going on neocate at 10mths she could not sit up alone. Once on neocate within 2wks she was sitting and crawling.

simpson lactose intolerance in babies can be temporary after an infection or as a result of some other problem, possibly cows milk protein intolerance - which again is often temporary. The most effective way to find out if it was a temporary problem is to reintroduce lactose. I don't think a stool sample would show anything when they aren't taking lactose, although I'm not sure on that.

Neocate is expensive so if it's not necessary they don't like children staying on it. Also longer term your child's life will be easier if they aren't lactose intolerant. It's quite reasonable for the paed to suggest testing if the problem has resolved, although when you try is more difficult to decide.

ILMY I'm well aware of that but simpson's child has a positive lactose test.

Oh. I see your point.

Think you're right about the stool sample. When DS was at Children's Hospital, a stool sample came back negative for lactose intolerance, but he was nil by mouth and on a drip for at least 48 hours and hadn't had any cow milk for about 72 hours, and the consultant seemed to think that it invalidated the results.

tatt - think the reason she was put onto neocate was because she was worse on soya formula than normal ff iyswim.

Unfortunately dairy has been tried a few times in error

very hard trying to stop a 3yr old sharing his piece of cake or chocolate etc

And whenever she has eaten this she has been bad the next day..so I still think there is a problem sadly...

Also DD is starting to cut down severely on her neocate intake so dietician has recommended calcium supplements, so have to get them from GP this wk.