Just fornd out ds had bad dairy intolerence

[charleepeters]

Hi we found out yesterday that ds (8months) had a bad dairy intolerence now im finding it very difficult to find things to give him, hes used to yoghurts and moose's and things its amazing how many things have milk in them, we origionally thought ds just had a lactose intolerence but mow peadiatrician says to cut all milk and dairy out completley so what do i give him except fruit/veg and meat hes been put on special milk which he doesnt like! sorry just stressed i thought he was getting better but seems hes not anyone got any ideas or has anyone got the same thing any help would be much appreciated.

Soya is quite a common allergen so children who have a problem with milk sometimes react to soya too. There is a higher rate of nut allergy in children given soya milk although whether this is simply because such children are more likely to have a genetic tendency to allergy is not known. Soya being from the same plant family as nut there is a reason to be wary.

Soya milk does contain more sugar than most milk so a link to obesity would not be surprising.

This link suggests a possible link to damaging the immune system.

news.bbc.co.uk/1/hi/health/1998946.stm

Soya milk is extremely useful for some children and none of these concerns is actually that great in comparison to its benefits. However where there is an alternative it makes sense to use it.

I'm afraid if we all had to wait for a medically supervised exclusion trial our children would suffer a lot of unnecessary ill health. Proper testing should always be arranged but that can take months - or even years in some parts of the country.

Hello charlee, my ds1 has a cow's milk and soya intolerance and I have been told to assume ds2 has the same. I know it's worrying when you first hear, but the ideas here are great and you really do get used to a dairy-free diet (apart from occasional cravings for blue cheese, chocolate, ice-cream etc ).

I just wanted to say that I agree with RachelsAunty and tatt about keeping soya to moderation. See my post here .

And skin prick tests (and RAST too) won't be of any help with intolerances - they can only show up allergies (and that's only sometimes). But as you've already been seeing a paediatrician they should know this anyway.

hth

We saw a Kneisologist who diagnosed dd allergies - blood tests were done three times at the hospital before they came back with results: In the mean time we had seen a Knesiologist who also suggested alternatives based on what suited dd

Both children were tested in the end and they have both been dairy free for years: ds chest infections and ear infections stopped and dd chronic stomach ache stopped too. They both revert to their old probs if we try and re-introduce, we are on Soy milk so I will need to read into it abit more after reading this thread

My concern and reason for my last post is that some parents restrict their child's diet unnecessarily and this can cause harm to the child's health. I'm not saying that soya is a wonder food, and I agree that it may cause problems, but I was concerned that rumplestiltskin's dd's diet sounded quite limited and lacking in protein. It's fine for children to do without milk and / or soya, but alternative sources of nutrition must then be used and unless you're an expert (none of us are) professional help should be sought.
I guess I get pissed off that when I tell some people that my ds is really allergic to milk and eggs, they tell me that their child is the same, except that while we're talking their kid is eating icecream. So it's okay for the kid to eat icecream but his parents are not allowing him to eat really nutritious foods like cheese and yogurt. This happens surprisingly often and I worry that these kids are being deprived of good food, and that they are developing hangups about food too.
Not that I'm saying any of you are like this.

My ds is 19months now and was diagonosed with dairy intolerance plus many others at 8 months. he cant have soya either so we give him Rice milk which he is fine with.

im a bit of an expert now on what to give him, he has an extrmemely healty diet. But it didnt come easy and i stll spend hours checking ingrediants. Basically he has all fresh food now but it was a long process

cp3, what did you do for milk when your ds was 8 months? did you bfeed him or use any formula? Mine is 7months and i've given up on neocate so he's bfeeding and solids only, worried he's not getting enough calcium.

Kinnerton do a chocolate bar that is milk/lactose free and nut free. Find it in the allery free section of sainsburys, or their website home shopping thingy. Lidl also sell a chocolate bar with the same requirements. It's called Fin Carre, and it's 74% cocoa solids. In 3 years of looking I haven't found nut free lactose free "milk" chocolate, IYSWIM. we found dd2 is quite happy to eat the others though. We also make her cocoa with soya milk, or stir cocoa into ready brek to replicate chocolately kids cereals.

Another quick idea for dessert is fruit puree + baby rice + milk (the fruit might disguise the taste of the neocate). I freeze batches of fruit puree in ice-cube trays and defrost a couple of cubes, sprinkle on some baby rice and add breast milk. I'm trying to keep dd off cows milk and soya milk until 1 year because of excema.

ruty, has anyone referred you to a dietitian for your son? In my experience they are of limited help but they can at least check through his diet to see if they think his calcium intake is sufficient, and tell your GP to prescribe calcium drops (Sandoz) to make up the difference if necessary.

Although the info here might reassure you about his calcium intake - and it has a good list of foods with calcium in, some of which are suitable for babies.

Tropicana do an orange juice with added calcium, which we gave to my ds1 when he stopped having the soya formula (and had already weaned off the breast). I know citrus fruits can cause some problems so I'm not sure if it's a good idea at 7m, I think he was over 1 when we started using it.

Ruty, he was put on prescription milk at first. Nutramagin. Then we put him on Rice milk as precription stuff tastes awfull and is hard to cook with as it turns the food a grey colour.

The rice milk we get has extra calcium inlcluded i also make sure he eats plenty of greens etc. Although i have to puree his veg and hide it in his food or he wouldnt eat it.

this thread is reminding me that I need to check with our gp that he has actually made a referral to a specialist. When asked for one he agreed it was wise but said he didn't know of a local allergy specialist and would have to find out. So we may not even be in the queue yet. Meanwhile we're gone more or less dairy free. Since our problem is lactose rather than milk protein and he can tolerate very small amounts of lactose it is possible we might have one of the ice creams that contain very little milk, especially if we are trying lactase to see if that helps.

Of course there are people who remove things from their diet without good reason - but I get more than slightly fed up of people telling me food intolerance is all in the mind. I'm also fed up of the effort it takes to actually get to a doctor who understands allergy and intolerance. I have checked the net and there are several consultants with an interest in allergy at the nearest major hospital - have to phone the most suitable and see if the gp has referred us.

We got a referral to a nutritionist for DS to check he was getting enough protein in his diet. (I felt satisfied that the added calcium in the rice milk was giving him enoug calcium but he's very fussy when it comes to meat and fish). I went armed with a list of everything he'd had to eat for the past two weeks, including any reactions when we had tried introducing dairy. She couldn't have cared less. She basically took my word for it that he was dairy intolerant, handed me a leaflet on milk-free diets and left it at that. I'm still hoping he might grow out of it as I've been told some babies do after about 2 yrs. But if not I'm going to take him back to my GP as I'm still not convinced he gets enough protein. He eats soya yogurts which I think have some protein and he eats peanut butter regularly. But fish, chicken and meat he will sometimes eat and sometimes refuse for weeks on end! I'd really like to find a nutritionist who might take at least a little bit of an interest!

My ds's dietitian recommended Crusha syrup to disguise the strong taste of Neocate Advance. It didn't work for him but it might work for others.... (My ds was too old by then, apparently they need to be only a few months old to take to it well. He was about 3 or 4 years by then.) His non-allergic friend liked the Neocate-Advance tho!!!
Find it in your local supermarket with squashes & cold drinks. Its no good for teeth but then neither is soya milk. The dietitian said use it at meal times and clean teeth well & regularly.
Oatly make calcium fortified milk as well as the standard one - not cheap tho', I pay £1.59 or £1.79 depending wether or not its got calcium. I prefer Oatly to the rice milk cos I found the rice milk too thin and custard made with rice milk glows!!
See here to order online in bulk.

Ready Brek or the supermarkets own brand (check ingredients & nutrients) is packed full of Calcium, as recommended by my DS's dietitian. My ds doesn't like it but I make real porridge thinly & then use it as a thickener - goes down a treat!

we've been to dietitian - she just handed me some artificial flavours [E no.s and aspartame] for neocate and couldn't understand why i didn't want them. I asked about calcium drops and she said just give him more neocate. Grrrr! Can i give ds rice milk at 7 months? No vits in it.

Thanks for all your help we have got a dieticians appointment soon but we found asda to be helpfull and managed to find ds his favorite. yoghurt! we also got a small carton of goats milk for the odd occasion and rich tea biscuits and some jars of baby food (for lazy days only!) i found all baby food packets to be clear and helpfull about dietry needs it wasnt as hard as i thought thanks ladies hurrah for mumsnet!

DD2 was diagnosed as having a cow's milk protein intolerance at 18 months. She was very small and skinny, with bad eczema, frequent diahhrea and huge dark circles beneath her eyes. I was very fortunate in that I had a close friend whose 2 sons had severe dairy allergies and she recommended a paediatric gastroenterologist and a paediatric dermatologist, who we went to see privately, thus sidestepping all the frustrations involved in getting a correct diagnosis.

In the past 6 months, since her diagnosis, there has been a huge turnaround - dd2 is still skinny and petite but her eczema has vanished, she is full of beans and generally high on life. So different to before the dairy-free diet. We saw a good dietician who immediately told me I had to put her on Nutramigen, as rice and soya milk was not nutritious enough nor did it contain enough calcium (even the enriched with calcium versions) for an underweight child. She also told me that if you do use the calcium-enriched rice milk you must shake it violently for a minute before pouring it out as the calcium is added in the form of a syrup which separates out to the bottom of the carton while it is standing in the fridge.

Getting on to the Nutramigen (which stinks) took about a month, and I did it by slowly introducing it into her Aptamil (started off 1 oz Nutramigen and 6oz Aptamil then slowly upped the Nutramigen and lessened the amount of aptamil every 4 days). She didn't even seem to notice and is still on 2 bottles (11oz) a day as she is still quite underweight for her age.

We went back to the doctor after 6wks as dd2's diahhreaa still had not cleared up. He told us she could not have any soya in her diet as so many kids with dairy intolerance also react to soya and it is actually quite allergenic. We removed all soya and her gut totally cleared up - now we have one regular pooing session a day after supper (sorry to be so graphic!). This is a pain as she can't have provamel yogurts or tofutti ice-cream and makes puddings a nightmare. I offer raisins, jelly or stewed fruit instead. A friend told me that you can buy UHT rice-based yogurt type desserts in some health-food shops (apparently they are an Italian make) but I've never managed to track them down.

I cook with tons of olive oil and add huge slugs of Hemp oil to tomato pasta sauce or bolognese sauce. We also eat lots of meat & 2 veg type meals e.g roast chicken, home-made burgers, lamb chops, home-made chicken nuggets etc. DD2 also eats potfuls of hummous.

Hope all this rambling is of some help to someone!

was trying to find an online stockist for the UHT desserts and found this list of dairy fre foods

www.goodnessdirect.co.uk/cgi-local/frameset/sect/ID.html

Sometimes if you have a list like this the local health food store can get things in for you and avoid the postage

Does anyone here use the provamel rice milk w/ calcium? It's just that it sometimes seems to leave DS' bottle coated with a kind of residue (not always though strangely enough). Doesn't bother him - he seems to love the stuff. Just wondering if this was supposed to happen.

agree with you about restricted diets but we seem to have a family intolerence to milk showing inself with excema and also sometimes with stomach upsets as well. dd has lots of lentils and wheat seems to have no effect at all so plenty of couscous and bread but i am veggie and it is difficult. my gp thought it unnecessary to do askin prick until a year old (though i don't know why and didn't think to ask) and seem to think dd would get plenty of protein etc from my milk, what would be the advantage of replacing a breast feed with a formula feed? she eats stacks of veggies and fruit and her weepy patch has complety gone whether that was the switch to goats milk on her breakfast or the flax oil i don't know. her skin is still very dry though.

veggie's have a problem with getting the right balance between omega 3 and omega 6 don't they? I know my veggie friend has been advised to have more flaxseed oil if she can't face fish. Don't think there is any advantage to a formula feed over breast milk but nutramigen is better than rice milk.

My baby (5 and a half months) has a very severe dairy allergy and has to be weaned on to Pepti Junior. However she thinks it is disgusting and won't drink it. The dietician suggested added vanilla drops to it but she hasn't fallen for that.. has anyone else found a way to make it less revolting that might make her change her mind?

our dietician suggested a tiny bit of crusha syrup....but our dd was one, so I'm not sure about that for such a small child....to be honest, if you keep perservering they usually become accustomed to the taste, or else see if they'll change it for a different one...our dd now happily drains a cupful several times a day

my dd never learned to like any subsitute for milk/dairy and I tried it all, even flavoured drinks like calcium enriched soy milk. I just ad to ensure she got alot of other foods with calcium (she loves broccali which is rich in calcium). But I finally gave up and used calcium supplements recommended by her allergist. I ended up adding to her water (which is all she would drink). She didn't like juice much and I didn't encourage it as it is so high in sugar. ANy way, I just added 1/2 teaspoon to her water 3 times a day. The good news is, at age almost 2, her allergy to milk/dairy is gone, gone gone! THank god, and she loves yogurt and cheese but, won't drink milk. Same thing happened to my older dd who was allergic to egg until age 3, then was fine but to this day, won't eat egg.

Yuck - neocate is VILE and smells like raw potato - could never get my dd to drink the stuff but luckily was BF so just had to go dairy free too. Was concerned about lack of calcium and iron so gave her minadex syrup and calcium supplements.
She was soy intolerant too - its a pain in the butt.
Ready brek is good for breakfasts - can make it up with oat milk or just water and it tastes yum with jam on. Other than that - what everyone else has recommended - good luck - hope they grow out of it - my dd wouldn't be parted from her strawberry yoghurt these days!