I want to stamp my feet and shout at Dr Surgery....

[wangle99]

I know I know I'm over reacting but am hoping perhaps somebody out there understands how I'm feeling, I phoned to get DS coeliac and gluten antibody blood results this morning and the receptionist said they are there but she can't comment on them as the doctor hadn't seen them yet. ARGHGHGHGHG I am so desperate to know these results, I tried begging and telling her to just give me the numbers I didn't need a comment lol but I know she can't really.

Got to phone back at 3pm.

DS is horrible at the moment, EVIL behaviour, poo (lets not go there), wind (lets not go there), not sleeping argh the list goes on. I SO want to know what is going on and am so worried these tests will not have shown anything.

Right, rant over...will go and keep myself busy...

Would the numbers mean anything to you? Prehaps she is'nt allowed or prehaps she is being a twunt?

Anyway, you have my sympathies - you sound stressed out.

I feel your pain but she is doing the right thing.

Still, I do understand this must be frustrating - stamp and shout away!

She isn't allowed but it's entirely reasonable of you to be VERY frustrated. Just rant here rather than at the receptionist!

Oh please don't think I went on at the receptionist because I didn't (or they'll never be helpful lol)

3 hours and I shall be phoning again!

She is doing the right thing but GOD how frustrating for you. i feel your pain - same sort of thing trying to get allergy appointment for dd (only thing that worked was when I burst into tears Rant away freely here!

Doctor not had time to comment yet got to phone back at 5.10pm sigh

Spoke to surgery turns out the EMA result isn't back yet ARGHGHGH

His liver function is fine

I am confused though because she said his immune system is fine as the immunology test was ok... would this be the IgA gluten antibody test?

I am in tears, how stupid is that, had pinned so much on finding out what was going on and now still no way forward and am more confused.

oh and they also mentioned something that sounded like electopharesis but haven't got a clue what that was about either.

allergies are such a hit and miss thing. Tbh, I found no real help from my GP.
I got proactive.
Read, read, read. Keep a food diary, read EVERY label.
Don't take no for an answer, I found that I was taken more seriously when I made an effort to know exactly what caused upsets.
It sounds like alot of work however the benefits faaaar outway the effort when you child begins to settle down.
The tears I cried for my baby whose pain I could not stop, I cannot tell you.
I did the elimination thing, EVERYTHING I thought was a problem.
By the time we actually got to the allergy clinic I has solved most of the issues myself.
My baby girl had her first reaction at 5 weeks and was allergic to dairy, soy, colours, preservatives, eggs, all citrus foods.
We survived, I was determined to help her but I would honestly encourage you to help her by doing as much research as you can.

I have written all this not knowing exactly what your child's problems are, I just hope it helps.
Be persistant, assertive, and yes, maybe even a little agression at times won't go astray when your GP isn't listening.
Good luck, hang in there, when your little one is making you feel insane remember that if you aren't able to figure it out, imagine how he/she is feeling about it all.
With best wishes

Our surgery will only give out a result over the phone if the dr has signed it off as "entirely normal" and doesn't need to discuss further with you.

Sympathies with the poo and wind, ds2 is being tested next week and we're at our wit's end with foul stinky stuff every day ....

Being in tears isn't stupid at all (and as I said earlier you are in tearful company here). Let us know how you go on Monday - I'm guessing thats when you will have to until to call back. Good luck!

Thank you, so glad I am not alone in all this (although wouldn't wish any of this on anyone).

Have calmed down a bit now, have done some serious bathroom cleaning whilst watching DS and DD in the bath

Been thinking though, presumably if the immune system blood test was ok (thinking maybe she meant white blood cell count?) then can't be coeliac disease as that is an autoimmune disease?

Or am I thinking about this waaaaaay too much?!

I don't know I'm sorry but that does sound logical - anyone else??