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Allergies and intolerances

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Histamine Intolerance

2 replies

ChocolateEmergency · 11/08/2025 16:22

Does anyone suffer with histamine intolerance? My 5 year old DD has been diagnosed and gets really sore in the vulval area.

I just can’t believe she has been diagnosed and then were told, it’s under researched, we don’t know enough about it so off you go, manage it yourself.

OP posts:
RosaMundi27 · 11/08/2025 20:46

I have mild histamine intolerance, mine responds to a low-histamine diet, and I supplement occasionally with DAO. I have no medical qualification so cannot advise about a child, but one thing I would say is that anti-histamines are not the answer. I think you should ask for a referral to an allergy specialist and/or dietician, it looks like the problem has just been passed back to you, which is crap.
Mast-cell activation syndrome is a similar issue, or maybe a more severe form of histamine intolerance. There is a charity which may be able to offer some pointers and help here: https://www.mastcellaction.org/
and children's allergies: https://www.thechildrensallergy.co.uk/mast-cell-activation-syndrome/
I hope you're able to find the help your daughter needs.
There's a lot of quacks out there too, so be careful.

Mast Cell Activation Syndrome | The Childrens Allergy | Private Paediatric Allergy Clinic

Mast Cell Activation Syndrome is a rare condition leading to various symptoms. The treatment options depend on the presenting symptoms.

https://www.thechildrensallergy.co.uk/mast-cell-activation-syndrome/

GreyAreas · 11/08/2025 21:30

I do. Think of it like some foods (or other things) increase histamine in the body, some things inhibit DAO which is how the body deals with histamine.
Exclusion diet is not the answer, because you can't avoid everything and get nutritionally deficient. But short term a low histamine diet will give you a clue about whether this is a correct diagnosis or not, and you will learn about main foods to avoid. Try to keep a food and symptom diary (remember symptoms might show up a day or so after, but usually fairly immediate).
For me, different triggers make me itchy in different places. Things like sourdough, beer, anything fermented cause itching down there. Dairy makes me itch all over, get hives and get congested, flaky scalp, bad ears, tinnitus. Citrus is bad. Leftovers have more histamine in. Eggs cooked some ways are fine, others not. I'm ok with some nuts but hazelnuts (Nutella) are bad. I don't avoid the full list, just my 'not worth it' ones.
Fexofenadine antihistamine works well.
My safest foods are
Whole grain wraps (and most granary breads)
Almond butter
Apples, blueberries, grapes
Most fresh veg
Most fresh meat and fish, tinned tuna
Potatoes, rice, sweet potato
Salted crisps
Soya yoghurt (I seem to have a big dairy issue)
Plant based Philadelphia
Curries mostly fine
Weetabix, soya milk
I do eat a wide variety though, I have just learned
It's quite individual I think. I was super itchy as a kid and then didn't know I had an issue again until my 40s. My dd gets a bit hivey too.
Teach her about the itch scratch cycle too to avoid worsening it.
Avoid yeasty, fermented, citrus, aged things.
Hope this helps. And for most people it's common and mild, I expect most people just put up with their symptoms and are none the wiser.

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