very very food sensitive child - help.

[snozmum]

Our two and a half year old son is so food sensitive I am tearing my hair out. He is hyperactive and dairy allergic and we have only just discovered that his Nutramigen was making his hyperactivity worse. He is now off that and also on the no-salycilate hyperactive children's diet and is completely transformed into a calm child but
we are struggling to find things for him to eat as buckwheat and quinoa have set him off again, I don't want him to have too much wheat and am worried that if he has too much rice he may become allergic to that too. We are a very allergic family, two of us have prescribed epipens, I have a limited diet and I have to cater for a family of six which incorporates wheat free, dairy-free, nut free, vegetarian, deadly nightshade free, salycilate free...where will it end? If I get it wrong we all end up itching/vomiting. hperactive or in hospital. And it costs a fortune. This is not faddiness- these have all been confirmed by NHS tests.
Has anyone ANY advice/help? Please?

Just one question, DEADLY NIGHTSHADE FREE what the score with that.

I realise that; potatoes, aubergines, tomatoes, red and green peppers are from the deadly nightshade family. But .. Who would want to eat deadly nightshade as a food???

Thank you. It is easy to feel very alone. But no longer...! I try to keep telling myself some poor parents have to live with worse things but I think it is the cost that gets me down as much as anything. That, and trying to give everybody healthy packed lunches AND needing a bigger kitchen with a range cooker...!

By deadly nightshade free I mean free from anything in the deadly nightshade family ie all the things you listed. When you are dealing with as many allergies as we are you tend to abbreviate....Sorry.

Thanks, HoochieMomma!

what sort of cooking / saucepans do you use,? some are not suitable for some people re allergies.

will post later when have more time.

Ok, Hoochie .. cards on the table, I didn't realise until after I had posted my first post and googled deadly nightshade allergy, that potatoes etc, were part of the deadly nightshade family; all I could think was who would willingly eat deadly nightshade.

Deadly nightshade - I think I am allergic to that

Do you have access to a nutritionist who also knows about allergies?

Had never thought of saucepans. Oh help, another thing to worry about! I think it is just the foods tho. At least I hope so. We have such a pick n mix variety of saucepans. I do know a good nutritionist but she costs £40.00 an hour. I am hoping an NHS dietician may be able to help and am waiting for an appointment but I don't hold out a lot of hope.
I think we just have to resign ourselves to never being able to eat out as a family ever again. We are going to my sister's next week and she said "what can you eat..." and I felt like cancelling. Luckily she has a good sense of humour and said she would order us all in a nice bottle of water each!
Don't worry about the deadly nightshade Conniedom. I have enough trouble getting my head around it all and I live with it.
Thanks everybody for moral support.

My friend has a very allergic son and she sees a god NHS dietician who also understands allergies. If you don't get a good one first time round, insist on seeing someone who can help and knows their stuff. You have so much to deal with already, someone else should be taking some of the strain.

Dear TheProvincialLady that gives me hope. I have just stumbled upon a really good salicylate-allergy website (how thrilling...) too which I think will help and there are people with problems far worse than ours which also helps me keep it in perspective. A bit! And williamsmummy - I looked up saucepans and you are absolutely right and Teflon is on the no-no list so I shan't be buying anymore of those. Is that what you meant? I'm so grateful. It is all so uphill.