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Allergies and intolerances

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Is food intolerance symptom actually recovery from malnutrition? Possible periheral neuropathy?

8 replies

AlwaysTryingVeryHard · 06/04/2025 03:54

Hi,

I wondered if I could ask for advice on reintroducing foods to fix dietary deficiencies?

I have a lot of problems with food intolerances, and I know my diet is deficient in iodine, B12 and vitamin D. I can't take vitamin pills as they make me feel really sick, but I manage quite well just on a really carefully calculated diet.

Having said that, I am constantly tired, have trouble swallowing and my tongue is a bit numb all the time (sorry TMI). I think this is to do with the shortage of B12, iodine and vitamin D. I slightly wonder if I have a bit of peripheral neuropathy in my tongue, but I'm not sure, because I only found out about that by googling.

Sometimes I take my courage in both hands and try to fix the intolerances. I eat liver for B12, or I put iodine on my skin, or I take a little bit of a vitamin D pill.

When I do that, after about 20 minutes my mind clears and I can think faster, and it is good. But then some hours later I get this weird feeling in my tongue and cheeks like somebody was pinching them and it is really uncomfortable. It keeps me awake at night and I don't like the feeling at all. Sometimes I also get pins and needles.

Usually the next day the numbness in my tongue is reduced and my swallowing is better and that is good. Sometimes I can actually roll my tongue better and the co-ordination is really markedly improved. This improvement is especially marked if I put iodine on my skin, but then the discomfort in my tongue is also worse before the improvement shows.

I'm not sure whether this is some kind of intolerance reaction, or whether it is that I maybe have peripheral neuropathy in my tongue and that this feeling is the nerves growing back, followed by the improvement in movement the next day.

I think the improvement is good, but the pinching feeling really makes me nervous of persisting in having these good foods, because I don't understand what it is and struggle to manage the discomfort.

Oddly, if I eat one particular kind of fish with lots of iodine in it, then I don't get the bad feeling in my tongue. My tongue just starts working better and is less numb, but then I have to eat that one kind of fish every single day, which gets really hard work.

When I get vitamin D from sunshine I don't get the uncomfortable feeling in my tongue at all and my vitamin D level rockets from below 30 to about 80 on a blood test.

I wondered if anybody might know what this is about and how I could eat these foods to improve my symtoms, without getting this uncomfortable feeling in my tongue every time?

I asked my GP and he says I haven't got an eating disorder, but just have been really really stressed for years. I have worked hard on the stress, and have been seeing a psychologist for 10 years, with very marked imrovements. That side of things is taken care of. I just want to get back to eating well now and would be grateful for any advice.

Thanks!

OP posts:
parietal · 06/04/2025 08:31

How many different foods do you eat and what are they? Do you have a very restrictive diet and why?

can you do anything else to broaden your diet and try new things?

AlwaysTryingVeryHard · 06/04/2025 09:10

Thanks for asking. I'm really hoping that I might be able to find a neurobiologist who comment specifically on whether peripheral neuropathy or something like that, could result from these deficiencies and whether restoring the vitamins and minerals would lead to this sort of sensation.

I have the other stuff covered.

OP posts:
AlteredStater · 10/04/2025 06:35

Hello! I've quite a number of food intolerances, you said you can't take oral iodine, B12, Vit D - all these can be taken as transdermal oils (not the cheapest way to take but if it's your only option, might be worth considering). You'd want to start with very small amounts to begin with. It just rubs into your skin and disappears, so very easy to apply.

Certainly you can get peripheral neuropathy from B12 deficiency.

https://b12oils.com/products.htm

The oils come from Australia and were developed by a biochemist called Dr Greg Russell-Jones. He has a Facebook group it would be worth joining as they've experience with the sorts of symptoms you have. It's called Understanding B12 Deficiency.

https://www.facebook.com/groups/946944078825502

If you can't find the group try again the next day as it gets archived on certain days of the week.

AlwaysTryingVeryHard · 10/04/2025 16:38

Thank you very much for explaining. I did actually know about that group and have been experimenting with transdermal vitamins and minerals. They also give me wild side effects, but I keep trying.

I tried eating lambs liver again this week and it gave me that weird feeling in my tongue but after a few days my tongue was working much better so I think it really must be peripheral neuropathy right enough.

I wish I could find organic lamb's liver, but it's really hard to get it unless I'm willing to have it posted to me frozen, which seems a bit OTT.

I did try that once, but it was left behind my garden gate by the delivery man, and had thawed by the time I found it. Expensive mistake.

OP posts:
AlwaysTryingVeryHard · 10/04/2025 16:39

I tried that facebook page and it just asks me for a password, which I don't have.

OP posts:
AlteredStater · 11/04/2025 09:05

AlwaysTryingVeryHard · 10/04/2025 16:39

I tried that facebook page and it just asks me for a password, which I don't have.

It would only do that if you're not on Facebook or use a different browser to the one you normally use to access FB?

lovepets · 11/04/2025 11:37

Could you have B12 injections? I had one every two days for 12 days (so 6 injections) and now have one every 3 months

AlwaysTryingVeryHard · 12/04/2025 12:09

@lovepets I did consider that but I have allergic reactions to everything and I don't want to risk it with an injection. I have a SEND child who is totally dependent on me 24/7 and I can't risk a severe allergic reaction right now. I saw an allergist and he said I have no markers for allergy and only low vitamin D and B12. I'm trying to dig my way out the old fashioned way by eating liver.

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