Has anyone else had a baby who is lactose intolerance? My little one is 4 months old and has got Congenital lactase deficiency (a genetic form of lactose intolerance) she is exclusively breastfed with the use of colief lactase enzymes. We have been referred to a dietitian and paediatrician and were told they should be InTouch shortly as she was so young, however we still haven't heard anything. The GP can no longer help us as they are not allowed to prescribe the lactase without paediatrician approval and not allowed to give advice without a dietitian. They have already chased the referrals up too.
She is really struggling with reflux and weight is dropping up and down on the percentile chart, month to month. I know babies that have this issue are normal given a thickener to put in their milk but obviously due to me breastfeeding I am unable to do this. I also know people who have tired the thickener with babies that have allergy's or reflux in cases where it has not worked can be advised to wean a little earlier (5 months). I'm a bit stuck now on what to do as I do not plan to stop breastfeeding nor do the doctors want me too, but at the same time I am not getting anywhere with the referral's.
I have done a bit of research into baby rice and have found that it has got no nutritional value and that it is basically a thicker version of formula. I have found that it can massively help babies that have allergies and reflux without causing any negative affects to the digestive system. Instead its given the gut some thicker substance to reduce spit up. It has also been proven that babies with a lactose intolerance find thicker substance helps massively as it helps the body break down the lactose more easily. Obviously if this were a thing I were to try it would be a tiny amount every other day or so, and would not "wean" until she was 6 months old.
In the meantime I have chased up referrals again and will be booking another doctors appointment to try and figure something out.