Gluten challenge for 10 month old

[LouBIL]

Hi all,

I’m having a bad morning this morning and probably just needed to offload more than anything.

My 10 month old suffered with reflux pretty much from birth and dropped three centiles. He was combi fed and always seemed worse after I’d fed him vs when he’d had formula.

Fast forward to weaning and we discovered he has FPIEs with a reaction to Oats plus a gluten intolerance.

We’re under a consultant who is testing for gluten allergy and Coeliac. We’re now having to reintroduce gluten for the blood tests.

Ever since reintroducing he’s not done a solid poo, it’s been basically water 4/5 times a day and he’s leaking through his nappy every time meaning multiple outfit changes. I’ve got to the point I don’t want to leave the house as I’m sick of sweating in public toilet trying to clean him down without covering myself with it.

I know it’s a necessary evil to keep on with the gluten and people keep telling me it would be so much harder the older he gets to reintroduce but currently we’re only doing a small bit of gluten every other day and it’s having a bad impact on him.

The consultant said we need to give him it everyday and I read online twice a day, I just don’t know how we’re going to manage that for six weeks straight.

It’s just been a bad morning, we’ve had two blow outs, he refused his breakfast and a stressful school run for my oldest 😭

Bump

Do you have a date for the blood tests? I would start giving gluten every day now, he's already having symptoms so starting with small amounts isn't helping and surely will mean he'll have to be on gluten for longer as it needs to be 6 weeks of daily gluten, so better to do daily now for 6 weeks and get the bloods done. But do check if he's going to need an endoscopy after bloods or not (some doctors will diagnose children just with blood test results rather than put them through an endoscopy) as if he needs one you'll have to keep feeding him gluten for longer.

Thanks for your reply. We can self book the blood test, I had it booked for six weeks from
our consultant appointment but he hasn’t been having gluten daily (that app was two weeks ago) so I think I’ll have to push it back.

That’s what I was wondering too, if he’s having symptoms and it’s making him poorly surely this is just prolonging him being unwell. If it is coeliac it’s not like increasing the gluten daily will help him build a tolerance.

I’m not sure about the endoscopy, I will ask thank you. I was looking forward to stopping the gluten the day of his blood tests but I don’t want to have to restart again and go through all this again!

Yeah push the blood test back now to 6 weeks from today and start giving enough daily. And call and ask about the possibility of an endoscopy. Would be much worse to stop after the blood tests and have to start again. I feel for you, must be horrible knowing your baby is suffering but it will be over in time, and 6 weeks isn't such a long time in the grand view of things, and then you'll have a diagnosis (as judging by the symptoms it sounds very likely to me, but of course there's a possibility its something else so you can't just go by the symptoms and need the test results to be certain)

What kind of gluten are you giving him?

My DS has a known wheat intolerance but we've just had a blood test to check if it's coeliac. So I was giving him ryvitas on an almost daily basis in order to give him gluten, but not wheat.

Just wondering if your son might manage rye, or even barley a little easier.