Feeling quite miserable about DS and his wheat intolerance...

[wangle99]

I know there are people with worse allergies to deal with but its just getting to me today.

DS has been wheat free since last June, he's very sensitive to any wheat so we follow same 'rules' as for coeliac patients - different chopping boards, different toaster, butter, jam pots etc. Its all been going fine except recently the chronic diarrhoea is coming back in fits and starts.

He just had a bout this afternoon, he doesn't have bug, it smells and looks (sorry for tmi) like when he had intolerance issues but I KNOW nobody has fed him anything and that he hasn't helped himself.

Argh don't mind doing everything to keep everything separate when it helps him but now its not and I'm not sure what to do.

Not looking for answers really (although if you had some that would be great lol) just needed to get it off my chest...

Poor you i know what you mean - am sitting her with a very unhappy little girl. I must have mistakenly eaten something with dairy in it (am BF) and i feel just awful that i'm making her ill. But i'm sure i didn't, so was wondering is she now becoming allergic to something else. It that possible for your DS? Fingers crossed not and you find an answer.

It is frustrating when you think you have cracked the problem and then something else rears it's ugly head. DS's allergy to gluten and milk started at the same time - but then later he developed intolerances (as opposed to allergic reactions) to egg and the preservatives in ham (though he can eat traditionally dry cured organic ham). Keep a food diary to try to help to identify what is triggering him at the minute - could gluten be the culprit if he is having rye etc. It could be that when his intolerance was disgnosed he was in the very early stages of becoming coeliac and that now he is reacting to gluten. However, it's more likely to be that he is now intolerant to something else - or It might just be that he has a limit for something he is eating and that if he goes over it his digestive system rebels!

Good luck with finding what is doing it - I know what its like.

((((you guys))))
(living with a coeliac and a very windy diabetic, whom I think will probably end up coeliac as well - there's a link )

just on the allergy related stuff, dh ended up allergic to eggs as well as gluten, so there could be a link.

Hope it improves for you all.

Wangle, darrhoea is often a result of gluten intolerance (ie not just wheat), looks like he is not absorbing food - so it shoots down fast, especially if containing fats (oil, butter and so on).

FT, I was so fed up with looking at labels that these days most of my shopping is basic ingredients rather than processed. Glad you mentioned saponin (I didn't know what it was called), that reminded me that I have read recommendations against all grains for that very reason: anti-fungals and pesticides for storage - apparently these are harmful not only to small creatures, but also to us. I am trying not get too paranoid about it, but will give extra rinse to my grains.

Bramble, I also investigated the link, thankfully my ds was tested and OK so far as far as insulin goes, but my understanding is that celiac comes first, although the symptoms are sometimes a bit obscure, also depending on the age. I thought that gluten can cause autoimmune damage to pancreas that leads to diabetes?

Not sure which way round, nightcat. They're both autoimmune diseases and as a diabetic, my ds will have regular tests to see if he's developped coeliac. My DH didn't present with coeliac until he was 40.

Agree with what you said though about the symptoms of gluten intolerance. If it continues it would be wise to be referred for specialist attention.

nightcat - I'm with you on cooking from scratch - it's much better for everybody and a lot cheaper when catering for special diets, and we know what is in it! I agree with what you say about washing grains well - I once returned a pack of rice which had weevils in it (yuk!!!) and the explanation I got was that they didn't know how it happened as the rice was regularly fumigated! I must admit I then washed my rice even more thoroughly (and tried not to think how much had been absorbed!).

Thanks ladies, you made me feel I wasn't actually being unreasonable.

DS was tested for coeliac and it was negative, we have done a food diary (last year) and it showed that no gluten food was a problem just wheat. However I am going to start up another food diary now because I need to isolate what it causing it.

Everyone keeps saying 'how do you know it isn't a bug or something' but you do KNOW the difference between 'bug' diarrhoea and food just gone straight through the system 'diarrhoea'!!!!

DH is lactose intolerance (such fun preparing food in our house) DS is also slightly egg intolerant and so is DD (he can eat them in cakes but not hard boiled etc).

Will let you know if anything else shows up!