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Allergies and intolerances

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Atypical gluten intolerance symptoms

8 replies

Gigwidow · 19/03/2023 07:26

Just wondering if anybody has been diagnosed with gluten intolerance without the typical running to the loo type symptoms?
My DS was diagnosed dairy intolerant as a baby so we have always avoided dairy, but he still (now age 7) frequently complains of tummy ache and is quite windy. Frequent constipation. He also has learning difficulties, and having read the internet as you do, these can also be symptoms.
Having said that I’m not sure I’ve ever read any threads with people experiencing that in real life? I’ve tried the GP but the wait lists for allergy testing are awful and I’m seriously considering a GF trial over the Easter holidays. What do people think? Advice greatly appreciated.

OP posts:
Artisticpaint · 19/03/2023 07:32

Constipation can be a symptom. Not sure about learning dIffuculties , but I did have less brain fog after diagnosis.

Youvebeenseeingsos · 19/03/2023 07:36

Has the GP arranged blood test first to check for coeliac? I wouldn’t cut things out until this has been done. There is also a risk of vitamin deficiency (Iron · Calcium · Folate · Vitamin B12 · Fat-soluble vitamins such as A, D, E and K)
if you cut out gluten foods so it may cause further issues.

www.coeliac.org.uk/information-and-support/coeliac-disease/about-coeliac-disease/coeliac-disease-in-children/

Once a person has avoided gluten for a while, it becomes more difficult to establish if he or she has celiac disease, gluten sensitivity, or neither. If you don't have celiac disease or a gluten sensitivity, eliminating gluten from your diet can cause nutritional deficiencies.

Gigwidow · 19/03/2023 07:41

@Youvebeenseeingsos thanks for the response, the GP wants him to go through the dietitian for allergy testing but the wait is over a year! I just wondered if a short sharp trial might make it obvious either way but I won’t if it could mess his system up.

OP posts:
blumppump · 19/03/2023 07:52

What do you mean by "learning difficulties"?

Lemonademoney · 16/07/2023 20:06

My ds has a milk protein intolerance and it definitely affects his ability to learn. Before diagnosis he was anaemic, sleepy, fatigued with brain fog and had constant constipation and tummy pains. Since removing milk products he is so much more focused and alert (and no longer looks horrendously blowted). His school and extracurricular teachers have all commented on his improved attention span since his dietary changes

LMNT · 16/07/2023 20:12

Youvebeenseeingsos · 19/03/2023 07:36

Has the GP arranged blood test first to check for coeliac? I wouldn’t cut things out until this has been done. There is also a risk of vitamin deficiency (Iron · Calcium · Folate · Vitamin B12 · Fat-soluble vitamins such as A, D, E and K)
if you cut out gluten foods so it may cause further issues.

www.coeliac.org.uk/information-and-support/coeliac-disease/about-coeliac-disease/coeliac-disease-in-children/

Once a person has avoided gluten for a while, it becomes more difficult to establish if he or she has celiac disease, gluten sensitivity, or neither. If you don't have celiac disease or a gluten sensitivity, eliminating gluten from your diet can cause nutritional deficiencies.

This is nonsense. Grains and cereals are wholly unnecessary in the diet and often cause more problems with absorption not less.

Your absorption of fat soluble vitamins depends on eating sources of those vitamins and eating enough fat to absorb them (hence the fat soluble name).

OP if I suspect food intolerance (symptoms of which can also be neurological) I get clients to cut out gluten and cereals, dairy and soy for at least 6 weeks. You should see a difference in that time if one of these foods is the culprit.

dragonbreaths · 16/07/2023 22:03

by doing that you're scuppering the chance to get a definitive diagnosis of coeliac disease. if you stop gluten, you need to be eating 4 slices of bread a day for 6 weeks pre- endoscopy, according to coeliac uk. And your response to gluten can be exacerbated by stopping it, so having to restart for tests can be miserable. See a GP before you cut out gluten

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