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Allergies and intolerances

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Nut allergy but 2 month wait until clinic appointment - advice, please

34 replies

EJ72 · 29/11/2022 00:20

DD9 has recently been diagnosed with a 'moderate' hazelnut allergy (the words of the GP) via blood tests in early October. These were organised after allergic-type reactions to tomatoes, red peppers and paprika (the colouring in Dorritos, fish fingers and so on). The hazelnut was a surprise, but in recent weeks (4 weeks on), the reactions have got worse.

Symptons: red face around mouth and cheeks (up to eyes); some mild swelling of one side of face but not huge - I can't tell if I am imagining it), allergy cough that persists for about an hour, even with Piriton. She says she feels weird and coughing but I don't think it is affecting her breathing. It is just a cough (a sort of dry one, sometimes barky).

This has now been triggered every day for the last few days/ week or two. Culprits seem to be anything with 'may contain nuts' labels on, as in nuts in same factory. Has reacted in last couple of days (birthday weekend!) to shortbread ('may contain nuts') a mini mars in a celebration box, chocolate sauce on an ice-cream and a chocolate hobnob at her choir. None of which 'contained nuts'. Obviously we have stopped them all now.

Have just had my referral through for allergy clinic: 8th February! Seems so far off. Getting in a state that this worsening effect is going to go anaphylactic at some point...

Should I contact GP for advice in the meantime? I don't suppose they will give me much further guidance? Would they prescribe an epipen just in case? I doubt it. I'm feeling anxious and low about it all. All new for me. Are there any experienced mums out there to kindly give me some reassurance / advice on best steps to take or what to expect? Thank you so much! Sorry for long post.

OP posts:
EJ72 · 10/12/2022 12:23

Thank you @Yarnosaura. i think that’s great advice. I’m sure it’s the best thing to do. I’ll try London Allergy asap. Thank you for your reply 🙏

OP posts:
Yarnosaura · 10/12/2022 12:44

There's another private allergy clinic with a similar name, so make sure you book with the one fronted by Drs Fox and Till.

Good luck Flowers

Lilgamesh2 · 10/12/2022 13:53

Just as a heads up, I booked with Dr Fox and it cost £1100 because the skin pricks were inconclusive (they came back negative to things she had tested positive for at home) so we did blood tests too which are pricey.

Lilgamesh2 · 10/12/2022 13:59

In your position I would definitely avoid shop bought food for a while because she might be reacting to preservatives or cross contamination I would have thought.

You should go back to basics and intro one food at a time until you figure it out.

You don't want to spend loads on allergy testing only to find you tested for the wrong things. Initially they'll test all the top allergens unless you specify you think she's allergic to sometimes different.

So for example we didn't test for citrus fruits because I hadn't given any to my DD by the time we had the appointment. I'm now pretty sure she's allergic to kiwi and maybe grapefruit but I'm not going to spend another £1100 to find out, so it's not on record anywhere. But annoying really.

Oneorother · 10/12/2022 14:26

Have you checked all of her toiletries for nuts as quite a lot contain them?

Coraline353 · 10/12/2022 14:29

You should try calling the Anaphylaxis Campaign. They have an advice line and loads of info online

www.anaphylaxis.org.uk/

JessD83 · 12/01/2023 10:36

I see you’ve already got some great advice! Both my kids had so many allergies at that age and have grown out of some of them now (aged 6&7). If it’s any help in the meantime there is a company called Creative Nature who are free from all the top allergens with no “May contains” labels and I used loads of their stuff and the boys never had a reaction to any of it. Hope that gives you a bit of peace of mind whilst you’re still chasing the Drs.

Lilgamesh2 · 12/01/2023 11:51

JessD83 · 12/01/2023 10:36

I see you’ve already got some great advice! Both my kids had so many allergies at that age and have grown out of some of them now (aged 6&7). If it’s any help in the meantime there is a company called Creative Nature who are free from all the top allergens with no “May contains” labels and I used loads of their stuff and the boys never had a reaction to any of it. Hope that gives you a bit of peace of mind whilst you’re still chasing the Drs.

I know this wasn't aimed at me but just wanted to say thank you for this recommendation!

I've been struggling to find organic hemp and chia seeds that don't have "may contain nuts / sesame" on the label.

This is fabulous.

JessD83 · 17/01/2023 10:26

Oh fab! Glad I could help! 😊

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